Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs And Celiac?


Alex33

Recommended Posts

Alex33 Newbie

anyone diagnosed with both? do you have a hard time telling the symptoms apart? how do you manage them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kayo Explorer

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

AlysounRI Contributor

IBS stands for "I'm basically stumped" ...

It's a nothing diagnosis. :angry:

If you present with symptoms of IBS you should get checked for celiac disease.

If you are not diagnosed with celiac disease, then you have non-celiac gluten intolerance.

Either way, I, too, believe that cutting out the gluten in your diet will take care of your IBS.

hypersof Apprentice

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

Yep, I agree. I think a lot of us have been diagnosed w/ IBS before discovering the celiac thing...

I am "only" gluten intolerant/ sensitive/ whatever, but I have to point out that before going gluten-free, absolutely NOTHING I tried -for several years- to relieve the IBS symptoms worked (be it water/ fiber intake, eating a very balanced diet, not too much fat/ spicy food, always eating small amounts and slowly, exercising, relaxing...really, I was trying hard!) but it just kept getting worse.

Then, removing gluten from my diet reversed the process and I am now getting better.

Not all 100% perfect, but it is definitely going the right way so I have hope (I have been gluten-free for 10 weeks now)

So, my two cents are, either IBS is really celiac and it is going to get better on a gluten-free diet; or if the symptoms persist, maybe they are caused by something else?

skigirlchar Newbie

my dr doesnt even diagnosis IBS because he feels it's really a "catchall" diagnosis when there is something else wrong but the insurance company doesn't want to pay for more expensive tests.

by following the gluten-free/cf/sf diet, my "ibs" symptoms have all but disappeared

eastvangal Newbie

Yup, me too with the IBS diagnoses. I also tried everything- ibs drugs, macrobiotic diet, yeast-free diet, 17 years of antidepressants, colonics, a naturopath, psychotherapy, cognitive-behavioural therapy, fiber, laxatives, transcendental meditation...

I too think is IBS is Celiac Disease.

WheatChef Apprentice

See sig. It literally just means that something is wrong in your bowels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

My "IBS" went away when I stopped eating gluten. Mom's "IBS" went away when she stopped eating fructose. I have a friend with "IBS" who is intolerant of soy and nightshades. It seems to me that IBS is a symptom of a lot of different food intolerances.

zergcoffeebean Newbie

I was given the IBS diagnosis when I had my colonoscopy and gastroscopy they didn't see anything indicative of anything else. So there, I got IBS. That was when I was 16. So, 9 Years ago. The only medication that ever seemed to help was buscopan. Nothing else seemed to do anything. I tried diets and food elimination. (Not going gluten free though, I hadn't ever heard of that, the concept didn't exist in the reality I was walking in.) Only recently when my last doctor asked me if I had ever been tested for Celiac disease did the idea ever come up. Going gluten free eliminated my symptoms, completely. Now, I just get "IBS" when I've been glutened some how, and usually only after the next day.

starrytrekchic Apprentice

Add me to the group initially diagnosed with IBS...but didn't really have that.

My doctor didn't even test for anything! He just listened to my tummy, listened to my description, and told me I had IBS. I was a freshman in college and clueless--no idea I should have pursued it further. 11 often miserable years later and finally everything has resolved due to being gluten free.

I'm also skeptical that IBS actually exists as a separate illness. Seems like it's more of a symptom of an illness, rather than an illness itself.

Alex33 Newbie

Thank you for your replies everyone.

So, a few years ago I was officially diagnosed with IBS by my doctor, with minimal testing I'll admit. I now do not have insurance so I cannot go back for a celiac test, or other tests for that matter. I have tried to go gluten-free to test myself (I was very diligent and careful about it) and also cut out dairy at that time too. I think I went gluten-free for roughly a month or so and did not see much, if any change. I know a month isn't THAT long, but from what I've read, I should have seen some improvement?

Skylark Collaborator

I felt better after two weeks of a really strict lamb/rice/veggies elimination diet. When I tried to reintroduce wheat, my symptoms came right back.

K8ling Enthusiast

I am gluten-free and I still am classified as "IBS" because I get symptoms around my period. Hormones can cause IBS.

Nor-TX Enthusiast

Along with being gluten intolerant, I have Colitis, Dairy intolerance, IBS and Gastro Paresis. Being on this diet along with dairy free, fresh veggie and fruit free, has helped alot. I still have issues with some foods and still trying to work out all the kinks, but feeling much better than I did. The biggest issue is that food is on my mind every minute... what to eat, what to buy, when to eat, how much to eat.... *sigh*

DownWithGluten Explorer

I am. My opinion is that IBS isn't really an illness, just a label doctors hand out to describe a set of symptoms when they're too lazy to find out the real cause. I believe my IBS is celiac, that they are one in the same.

I agree. Probably everyone diagnosed with 'IBS' has some more specific condition. Such as Chron's, celiac, other food intolerance, maybe even conditions we haven't discovered yet.

I was diagnosed with IBS "C-D." I used to post on an IBS board, and was struck with how varying everyone's symptoms/triggers were. That's when I got a little suspicious...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.