Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Little Curiosity Poll


conniebky

Gluten Reactions  

114 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

conniebky Collaborator

And if other, what's your other? :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Looks like I was the first to vote! I voted 'both':)

conniebky Collaborator

Looks like I was the first to vote! I voted 'both':)

LOL I forgot to vote on my own poll! :P

polarbearscooby Explorer

I voted both :P

Roda Rising Star

I voted gi issues. I usually get heartburn, bloating and contipation.

knittingmonkey Newbie

I voted gi issues. I usually get heartburn, bloating and contipation.

I voted G.I. issues, but am not going to disclose them because they're quite embarrassing. :huh:

Korwyn Explorer

My other is neuro and psychological. Anxiety, black moods, insomnia are my primary psychological.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jencat Rookie

Both. I have GI issues and depression, anxiety and fatigue, body aches, numbness to extremities and brain fog.-Jen

  • 4 weeks later...
Coinkey Apprentice

Still discovering my reactions to gluten. I've only been free of it for a month. So far: neuro first then GI. FUN. :angry:

  • 2 months later...
Cheryl-C Enthusiast

I voted for GI even though I also get some neuro - my GI responses are more severe than the neuro, so that's why I voted GI. I get the runs for a day, followed by constipation for about 4 or 5. Bloating, gas, rumbly gut. Not fun.

On the neuro side, I get anxious, depressed, anti-social and grumpy.

I also get sinus migraines, but I'm not sure which category that fits into.

Boo to gluten. <_<

Skylark Collaborator

I'm calling my depression and insomnia from gluten neuro. This poll is getting really interesting...

brendab Contributor

I first get stomach pain that turns into constipation in a couple of days. The rest is anxiety, depression, brain fog, grouchiness, headaches/migraines, forgetfulness, bloating, slight weight gain, insomnia, chronic fatigue, intense cravings for wheat products...........I forgot what else..........I had gluten yesterday! LOL

Chattyaholic Rookie

I voted G.I. issues. If I stick to my gluten-free diet religiously then I'm fine, but if I give in to a craving and have something with gluten then I pretty much just stay home the next day (at least the morning/early afternoon) because of "bathroom issues." :(

It's interesting to see what others are saying. I have been thinking my foggy brain and forgetfulness was because of menopause, but maybe not???

Superfudge Rookie

I said both, but I'm a newbie to this

sweeeeet Rookie

basically bloating, distention, diarrhea vs. constipation (IBS) stomach cramps.

Also extreme fatigue, spinning head, headache, dry eyes, brain fog. I didn't know if that was neuro related so I put GI related.

  • 2 weeks later...
Bennie Rookie

GI issues and feel very tired

  • 1 month later...
pickyguin Newbie

I voted other. I have Muscle and Joint pain when I eat gluten. I've been poked, prodded, stuck, Biopsyed and still tested Neg. When not eating gluten I can move and I have no pain or muscle tremmers. This has been a painful 25 years and finally @ 48 years old I live vertually pain free unless something unknowen to me is in my eats.

  • 3 months later...
Sarah B Apprentice

I get a little stomach pain and fatigue. The one thing other than fatigue that I notice is neuro problems. I can't think straight or remember things.

I'm still trying to figure out if its gluten but so far going gluten free is the only thing that seems to work.

India Contributor

I've been gluten-free for a year and I'm lucky that I've only been glutened properly once. However, as well as GI issues, tiredness, brain fog etc, the longest-lasting effect was a big increase in my word muddling. Weird.

LivesIntheSun Apprentice

I go 'mental' and I get a canker sore in my throat

Emilushka Contributor

I get stomach pains, bloating, nausea, reflux for about the first 12 hours after the glutening. Then it moves into plain old bloating and GI cramping for a day or two. Then it moves into diarrhea and discomfort for another 5-6 days. All in all, I've had a week's worth of symptoms from 2 bites of wheat pasta (accidentally given to me by a waiter). I've also had a couple hours of plain old stomach cramping without anything else after a contaminated pan was used. I don't get neurological symptoms, though.

revenant Enthusiast

Hmmm I have equal neuro and G.I

GI: Constipation 1 day, and then diarrhea 2 days. Bloating, acid reflux, grumbling tummy... tummy pain :o

neuro: Anxiety, 'black cloud' depression, paranoia, anxiety, going from mania/hyperactivity on and off with intense fatigue/sloww moods, horrible attention span, visual disturbances, rage

So, this is more neuro for me actually but I put both

Muffy Rookie

I voted both but I don't feel my GI symptoms much, but they do take a lot of damage. The neuro affects are what actually bother me and they are similar to the others listed here. One thing that is very common for me as well is a difficulty swallowing. Like to the point where I have almost actually chocked on food that I can't neither swallow or move out of the back of my throat. It happens right away.

Does anyone get this? Do you think this would fit as a neuro or GI?

Cypressmyst Explorer

I get this. :P The choking I mean. I'd put it as GI not neuro, but next to GI symptoms neuro are the most common.

I don't know why Michael J. Fox hasn't been able to find a cure for Parkinsons, it's right there on his plate.

jeannieknits Rookie

I turn into a raving jerk! and it's funny (?) how long it took me to realize the connection. (my poor kids)

YEARS.

so, neuro issues: anxiety, rage, hyperactivity then brain fog.

gastro: first sign is a sharp pain across the top of my belly under my ribs....then I know what's coming. then it's the IBS, constipation for a day the D for the next 2-3 days. all the while grumbling belly and bloating and discomfort, insomnia....ugh.

I got glutened 2 weeks ago from a "gluten free" cupcake--from a bakery that I trusted. obvious CC issue, that I alerted them to. I was scared to death to try another cupcake, but I did, this week and was fine, thankfully.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.