Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions From Me, Imagine That!

conniebky

Recommended Posts

conniebky Collaborator
conniebky
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar!

Tootsie Roll Midgies--no gluten in the facility! ;)

One more question, how long did most of you all go with symptoms before you finally figured it out?

20 freakin' years :angry: Seriously.

Lisa Mentor
Lisa
Posted

BUT HERE'S THE LOW DOWN:

Don't depend on lists for your information, many can be out of date.

Learn to read labels - it will be your ultimate safe guard and control in your hands. (ie. you have

no one to blame but yourself :blink: )

Call companies to verify ingredient status if in doubt.

Don't rely on internet information to keep you safe, use multiple sources. If someone said, a product made them sick, does not mean it was gluten - i.e,not all sick feeling lead to a gluten exposure.

If something made you sick, don't eat it again...or at least not for a while, when you can precisely test a potential issue.

If you have a question about a product - Google the product name and - gluten free... you would be amazed what you can find.

Learn your system, listen to your body.

AND most of all, a mistake won't kill you!!!

....The End :D

Open Original Shared Link

Here is last years Candy List - they put this out every year just prior to Holloween.

pues Rookie
pues
Posted

jelly bellies are gluten free and delicious

2 years with symptoms

WheatChef Apprentice
WheatChef
Posted

Cut carrots, now gluten free!

concernedmamma Explorer
concernedmamma
Posted

I believe Mike and Ike's say gluten free right on the box (my son is only 2 months gluten free, but we have had birthday parties and goody bags to figure out! ) :unsure:

RoseTapper Newbie
RoseTapper
Posted

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kpryan Apprentice
kpryan
Posted

SKITTLES!!! My fave and so yummy!! Only the fruit and cinammon Mike and Ike's are gluten-free...not the licorice ones....

I've always had gastro symptoms my whole life (34 years) but they really intensified after I had my first daughter at 30....been gluten-free for 2 years now...and dairy free for 6 months.

luvs2eat Collaborator
luvs2eat
Posted

Wheat in Twizzlers cracks me up! What's the purpose??

I only had symptoms for several months before finding out it was celiac... I was lucky, I guess. I could have used a little of that "unexplained weight loss" tho... :blink:

sa1937 Community Regular
sa1937
Posted

Wheat in Twizzlers cracks me up! What's the purpose??

Lots of licorice contains wheat. Lots of ingredients in a lot of products make no sense (like wheat in chicken and beef broth, for example). That's why we have to major in "Label Reading 101" ph34r.gif

sa1937 Community Regular
sa1937
Posted

There are actually lots of regular candies that we can eat; for example, Reese's Peanut Butter Cup, Dark Milky Way, Payday, Junior Mints, Hershey's chocolate, See's Candies, Almond Joy, etc. There's a full list on Dr. Holland's gluten-free list:

Open Original Shared Link

You'll find that many candies are gluten free--I have no problem finding sweets.

This list is much more up-to-date: Open Original Shared Link

The Glutenator Contributor
The Glutenator
Posted

I miss licorice all sorts! But sweet tarts and most of the maynards candies (Cherry Blasters, Sour Patch Kids, Sour Patch Keys, Gummie Worms, Gummie Bears, Fuzzy Peach, Swedish Berries, Swedish Fish, Wild Strawberries, Wine Gums, Jujubes, Gum Drops) are examples of some good gluten free candy options.

SwimmingUpstream Newbie
SwimmingUpstream
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

Unfortunately, there is no shortage of sweets that are gluten free. I eat Snickers, 3 Muskateers, Reeses PB Cups, Starburst, Skittles, M&M's, Smarties, Tootsie Rolls. I also gained 50 pounds in one year after being diagnosed. I've lost 10 of those now, 40 more to go. My advice is to stay away from the sweets because your body is in starvation mode and they will turn directly to fat. Also, the sugar is so addictive, it's hard to stop once you get going. I found that the sick to my stomach feeling I used to get after eating anything kept me from eating too much. It was actually the Celiacs and now I feel much better, I also never get that feeling that keeps me from continuing to eat. I wish someone would have warned me at the beginning how easy it would be to gain weight.

I went for four weeks with diarhea till I went to the doctor. I thoght I had a 'bug' that just wouldn't go away. I had already been diagnosed with type 2 diabetes and they were telling me I needed to gain weight. That is when they found the Celiacs. Well I guess they're not telling me to gain weight anymore.

Cinderella10 Newbie
Cinderella10
Posted

I have an undying passion for Hot Tamales. :) Yum.

Korwyn Explorer
Korwyn
Posted

What's up with the candy? :blink: I decided to buy some candy today to take the place of my 2:00 coffee.

It all had wheat in it, even twizzlers! Is there any candy that you all pick up that you can eat? I just wanted something chewy, don't care if it's chocolate, just sugar! Sugar Babies are my favorite. I found some Raisinettes however you spell that, but the cellophane was bumpy and I couldn't see the ingredients and I don't trust ingredients anyways.

One more question, how long did most of you all go with symptoms before you finally figured it out?

thank you!

M&M are gluten-free. And it was about 20 years for me too.

  • 5 months later...
Jonathon's dad Newbie
Jonathon's dad
Posted

This is my first post, I just want to say thank you to everyone here!

You are all helping each other and me. I feel much better about being able to trust the labeling on some of the Halloween candy my son was so excited to get.

Also hearing how many of you were not diagnosed quickly, I am happy my son was diagnosed so quickly (at 3 years old)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold. Our bodies have difficulty absorbing and utilizing it. Only 30% is absorbed and less can be utilized. There's some question as to how well multivitamins...
    2. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      I am taking a multivitamin which is pretty bolstered with B’s. Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol. Started Creapure creatine monohydrate in June for athletic recovery and brain fog. I have been working with a Nutritionist along side my Dr. since February. My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t ...
    3. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies. It's worth talking to a dietician or nutritionist about. Did you get a Marsh score at your diagnosis? Was your tTg IgA level very high? These can indicate more intestinal damage and poorer absorption of nutrients. Are you eating...
    4. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Vitamin and mineral deficiencies can make TMJ worse. Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain. Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease. It's important to eat healthy nutrient dense diets like the Autoimmune...
    5. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748
    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.