Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure Of What To Do..


kannne

Recommended Posts

kannne Explorer

I have had celiac for 10 years and for 2 years ago I got a huge antibiotic dose and I got very bad and I know have dysbioses, leaky gut ++ I have been on strict SCD for 10 months and have shown great improvement. Specially after starting with digestive enzymes in December. I am now able to eat 10 soft vegetables, meat and some type off sea food without getting pain and bms are good.

I am going to take a CDSA stool test to see if I (and my doctor) can figure out what is wrong with my gut (there is something more then only celiac..). But before I going to take CDSA I need to be medication free for 2 days and not take medication and supplements when I take the test (to days). So total of 4 days with out any enzyme or medication.. And because my stomach is very slow it will be best to be 3 days without enzymes.. So that will be 5 days without anything.

I just started with Bio Gest and S.A.T and I has really helped me. I have been able to introduce new food and I am able to DIGEST fat! I eat the chicken skin now and I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I have had celiac for 10 years and for 2 years ago I got a huge antibiotic dose and I got very bad and I know have dysbioses, leaky gut ++ I have been on strict SCD for 10 months and have shown great improvement. Specially after starting with digestive enzymes in December. I am now able to eat 10 soft vegetables, meat and some type off sea food without getting pain and bms are good.

I am going to take a CDSA stool test to see if I (and my doctor) can figure out what is wrong with my gut (there is something more then only celiac..). But before I going to take CDSA I need to be medication free for 2 days and not take medication and supplements when I take the test (to days). So total of 4 days with out any enzyme or medication.. And because my stomach is very slow it will be best to be 3 days without enzymes.. So that will be 5 days without anything.

I just started with Bio Gest and S.A.T and I has really helped me. I have been able to introduce new food and I am able to DIGEST fat! I eat the chicken skin now and I don't get any pain and the BM is very good. Before if I tried eating skin I got bloated stomach and floating poop with undigested food pieces.

Now I am taking digestive enzyme to every meal and S.A.T + Bio Gest to meals that are higher then "normal" in fat (for me).

I am just so unsure what to do because I want to take the test. But I don't want to stop enzyme because I get pain.

I'm just so confused :(

The stool test can tell you a lot, so it might be worth a bit of suffering to have it done. Just lay off the foods that normally set you off, like the chicken skin - you really don't need that anyway, use herbs and spices to give it good flavor. Eat sparingly so you don't over load your system and give it easy to digest foods, no cruciferous vegetables, no raw food; eat apple sauce, rice pudding, fin fish, cooked veggies and rice, skinless chicken, canned fruits. Hey, you can do this for a few days, really you can.:)

kannne Explorer

The stool test can tell you a lot, so it might be worth a bit of suffering to have it done. Just lay off the foods that normally set you off, like the chicken skin - you really don't need that anyway, use herbs and spices to give it good flavor. Eat sparingly so you don't over load your system and give it easy to digest foods, no cruciferous vegetables, no raw food; eat apple sauce, rice pudding, fin fish, cooked veggies and rice, skinless chicken, canned fruits. Hey, you can do this for a few days, really you can.:)

Well... I'm on SCD and I can only eat a few vegetable..

I can eat:

Broccoli

Cauliflower

Sugar snaps

Carrots

Green peas

Green beans

This vegetable needs to be boiled for 45 minutes

I can also eat:

Butternut squash

Kabocha squash

This need to be baked 1,5 hour at 400F or boiled for 1 hour.

I can eat lean meat, catfish and shrimps.

Thats it! ... :(

burdee Enthusiast

Antibiotics are notorious for killing all our good bacteria, which assist digestion in our small intestines. Digestive enzymes can help somewhat with protein and fat digestion. However, you may have very low levels of good bacteria or even some bad bugs (bacteria, parasites or fungus like candida) which moved into the space created when the antibiotic killed both bad and good bugs in your gut.

The stool test should indicate your levels of good bacteria and whether you have any bad bugs which you will need to treat. If you take more antibiotics (or antiparastic or antifungal drugs), you will need to take high dose probiotics both during and after treatment in order to prevent another gut bug infection. A good stool test lab will also test whatever gut bugs they find for sensitivites to specific drugs or herbal supplements which can kill those bugs.

I've had 8 different gut bugs (5 bacteria, 2 parasites and candida) during the past 8 years. I always take high dose probiotics during and after treatment for any gut bugs.

SUE

Mari Contributor

I use the SCD too and have been able to tolerate more foods. A few months ago I started eating goat's milk yogurt and no longer have to take probiotics or betaine to acidify my stomach. The gas and bloating problem has almost gone away after using Candida Herbs and Neem. I've had to flush out my gall bladder (liver flushes) and improve my bile pool by using gluten-free oat bran with meals. I avoid antibiotics when possible and use well tested natural methods of improving my digestion. I often visit the Forums at Curezone to see what has worked for other people.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.