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Is Coffee The Problem


Wp1234

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Wp1234 Newbie

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


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motif Contributor

I

looking4help Apprentice

I agree. 10 cups is the problem. (Unless you have an allergy to coffee and that's a whole different discussion.)

What do you use to sweeten your coffee? I found that milk was my issue. I have cut out the milk in everything until I heal and then I will attempt it again. Your intestines may be so damaged it can't handle the milk.

Also, going gluten free doesn't heal you instantly. It took a long time to damage your insides and it can take a while to heal them as well. Be prepared for the ups and downs of healing. I am only a few months into my gluten free and still have what you are calling relapses.

You are in the right place though for advice and just plain ole support. This board is full of caring people!

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

AlysounRI Contributor

Hi WP:

That is a lot of coffee!!

Even though the coffee is decaf, it tends to be very acidic and it can irritate your stomach.

I had to give up any kind of coffee. It does awful thing to my stomach and digestive system.

I drink decaf indian spice tea now and never have a problem.

Do you drink decaf tea, and if you do does it bother you as well??

lucia Enthusiast

Yeah, that's a lot of coffee. The acidity in coffee can cause acid reflux which I've heard is very painful.

An alternative - if you're not ready to give up caffeine entirely - is green tea. It has a quarter of the caffeine of coffee, it's not acid, and it's got a lot of antioxidants. Even so, though, 10 cups a day of green tea would still be a lot.

Maybe adopting a water habit would be a good idea. Are you getting 6-8 cups of water a day?

K8ling Enthusiast

I drank coffee like a madwoman after my son was born and...well...it was causing a lot of problems I didn't even connect. I suggest switching to tea (I drink Earl Gray in the morning, green the rest of the day) and at least seeing if it helps.

T.H. Community Regular

Question on how you make your coffee/tea.

Do you use tea bags or those coffee equivalent ones, where they are in sealed pouches? Some of those can be sealed with gluten and could be glutening you.

Have you double checked your coffee brand for gluten? I know some brands have gluten in them, like Teeccino brand has barley in it, if I remember right.

Same question with the tea - we just zapped ourselves the other day because a chamomile tea had 'oatstraw,' and that seemed to have some gluten contamination issue.

I have no idea about coffee filters, but I wonder if it's possible that coffee paper filters might have the same issue as some tea bags and some may be sealed with gluten? I've never heard of this being an issue, but it might be worth a little research.

Also, I know you are on a gluten free diet, but I didn't know how much research you've been able to do yet on non-food sources of gluten? Chapstick and lipstick is a big gluten source, whether on your lips or on someone whom you kiss. Or if your shampoo has gluten and you get any in your mouth when you rinse it from your hair, stuff like that.

All that said - when I went gluten free, I suddenly started reacting to other foods that I had never noticed a reaction to, and one of them WAS coffee, so that could definitely be an issue. :)

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I


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TSC1 Newbie

My advice as a recently diagnosed person is that you were using coffee even decaf to a certain degree for energy and to rehydrate. It is now no longer needed and you simply are having too much for a healthy person who is digesting and feeling a lot more energy and health. Unless the coffe is sharing the same euiopment to be processed as wheat or another gltuen product (yes, even many designer mushrooms are grown in soil that has wood chip and wheat bran), there is no reason coffee that is not usually cross-contaminated to be a problem.

I have one or two cups in the morning and then drink water or ice tea, etc.

Hello all,

Just found this great site and am hoping for some help from fellow sufferers. I was diagnosed via biopsy with Coeliac Disease three weeks ago and immediately switch to a gluten free diet .Within days I could feel an improvement but now three weeks later I

TSC1 Newbie

Be careful, sweetners especially in large amounts like mannitol, sorbitol, etc. give me lots of intestinal problems and I steer clear of them even in small amounts.

coffee or tea is not a problem but 10 cups a day is a problem, especially when you sweeten them or drink with milk.

Besides "relapse" is normal because you can react to grains even few days after eating something. BTW drinking decaf makes no sense and is more bad for you then regular.

Looking for answers Contributor

One more thought about coffee, especially decaf. Unless it decaffienated using the swiss water process, decaf coffee contains a load of chemicals and pesticides. Since you have an autoimmune disease and are in the process of healing, I too recommend switching over to tea. Good quality green tea is not bitter and doesn't give you the ups and downs of coffee. It's also an amazing source of antioxidants and vitamins, and will lower your body's overall inflamation. I use the premium green tea from Teavana. It's pricey, but each batch of loose tea can be used up to three times, so it lasts a long time...and it's so pure that I don't need to add anything to it. Good tea is not bitter if you don't over steep it!!! For a more affordable tea, Costco sells bagged green tea that is manufactured in Japan from a quality distributor who uses high grade leaves. I know this because my best friend is from Japan and her family validated the maker for me.

For anyone reading this who drinks green tea, if your "green" tea looks more yellow than green it means it's oxidated - switch to a better quality brand. Both teas I recommend are the color of grass in the cup.

SGWhiskers Collaborator

Congrats on going gluten free and figuring out how to become healthy again. I'm all for the coffee theory, but I would like to add that as a newbie to the gluten-free world, it is also likely that you are inadvertently getting some CC somewhere. For me it was the BBQ grill, the vegetable steamer, and pineapple juice. Think about every kitchen item that touches your food. Unless you are better at itching, sweating, and showering than me, check every product that touches your body, makeup, fancy soaps, hair products. While you are at it, cut that coffee down to 2 in the morning and switch to tea. Make sure you are also eliminating or going very light on dairy in the begining of a gluten-free diet. Almost as a rule, dairy is really rough on celiac intestines until they heal.

Best wishes on a quick recovery.

  • 1 year later...
EPrasn Newbie

I'm new to the group and I was so impressed with all of the information, I decided to join. It all started with me around 3/17, I just didn't feel good, and I had this bad taste in my mouth and it was making me sick. I went to my primary doctor and she took 6 vials of blood, it all came back normal (thank God), I even had an app't with my digestive Health specialist and he suggested that I eat parsley 3x's a day to get rid of the taste in my mouth. I really had to think about the whole situration, and it seemed like I was getting sick in the morning and especially in the afternoon, after I had a cup of coffee. So I just started drinking Soy Milk and you know what, it wasn't too bad. I do feel better but not 100%, now I'm wondering if it is the coffee????? I know one thing, I don't ever want to feel this way again. I look forward to contine to read your post and thank you for all of your valuable information.

Skylark Collaborator

I'm not sure you noticed, but this is a two-year old thread. Most of the people who answered are not on the board any longer.

If you suspect you are reacting to something, eliminate it and see how you feel. :)

By the way, I would not feel well having soymilk in my coffee. A lot of people react to soy. I'd suggest just cutting out the coffee entirely and have some black tea.

MikeOhio Rookie

Some people are sensitive to coffee. I get diarrhea 8-24 hours after drinking coffee. I used to drink it in very small amounts if I was constipated. I still was a little more un-constipated than I wanted to be.

woodnewt Rookie

There could be some sort of cross-contamination in your diet that you're not aware of, so you might want to go through all of your food items and double check. But otherwise, like others here have said, 10 cups of decaf coffee is a lot! If your gut's unwell, that is definitely going to be an agitant, especially if you're adding cream and sugar. Coffee was one of the many, many foods I had to totally stop while I was recovering. Just couldn't tolerate it or a lot of other things that are even slightly harsh to the gut. Now I drink 2-4 cups a day, instant, with nothing added (no cream or sugar) with absolutely no problems.

tuxedocat Apprentice

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

Jestgar Rising Star

If acidity is the problem, try cold brewing your coffee.

Open Original Shared Link

It's such a good cup that you may never want standard coffee again. I stopped needing to sweeten the coffee and it even tastes good without cream.

I have read about this, but never tried it. Thanks for the reminder, I may try it this summer.

deb445 Rookie

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

kareng Grand Master

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

That's an odd ingredient for coffee. But it's gluten free.

lovegrov Collaborator

I recently received a Keurig coffee maker - the one with the little single serving coffee doins' that you pop into the machine & press GO. I noticed that some brands of the coffee doins' contain autolyzed yeast extract. NOT going near that cuppa joe!

If you're worried about gluten in tha,t don't be.

richard

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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