Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency

tennisman

Recommended Posts

tennisman Contributor
tennisman
Posted

Hi , i'm new here so not sure if this is the right part of the forum to post this ? I have been Celiac since 2003 and last year my doctor found out I had a Vitamin D deficiency , which was probably caused by me being Celiac. I was just wondering if many other Celiac's here have a Vitamin D deficiency ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Lots of us. I take 50,000 units once a week and it has risen well.

That reminds me , I'm supposed to take it with dinner tonight & I forgot.

tictax707 Apprentice
tictax707
Posted

yup - I have a vitamin D deficiency too. I've really been struggling with it because all the supplements seem to give me gas. :(

Roda Rising Star
Roda
Posted

I found out I was deficient 4 months after diagnosis. I've been taking RX vitamin D 50,000 iu weekley now for about 1 1/2 years. My level is perfect now. My various doctors recommend me staying on that dose all the time.

mushroom Proficient
mushroom
Posted

I also was taking 50,000 iu weekly, but am down to monthly now. D deficiency is unfortunately very common amongst celiacs. So is osteoporosis :(

lizard00 Enthusiast
lizard00
Posted

Add me to the deficient list... :lol:

When I started taking a supplement, I noticed a HUGE improvement. HUGE!

mbrookes Community Regular
mbrookes
Posted

I take 50,000 iu once a week. This seems to have brought me to normaal, but there is no discussion of ever discontinuing it. It's just a little pill so who cares?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Traveller Rookie
Traveller
Posted

Given that vitamin D deficiencies are widespread in our population, I question how well a deficiency correlates with celiac. Vitamin D is made in the skin. I've heard doctors put forth many theories -- such as the cleanliness in our society today "washes away" the Vit D -- but nothing more than theories.

Regardless, I'm Vit D deficient as well. My levels are regularly checked because too much Vit D can lead to other problems.

Jaxita Newbie
Jaxita
Posted

Yup, deficient here too..50,000IU 2x/week, & I get my blood tested next month to see if my levels have improved. 2x a week is a tough one to remember when it comes to taking pills, so I put it on the calendar in my Droid; now it reminds me what days I need to take my Vitamin D. :)

tennisman Contributor
tennisman
Posted
  • Author

Thanks for the replies , I have been on Vitamin D for a year but my level is still not that high my doctor says because im Celiac im probably not absorbing the all the Vitamin D I take could that be right ? Also has anyone had back pain which has been caused by a Vitamin D deficiency ?

kwylee Apprentice
kwylee
Posted

Last December my Vitamin D level was at about a 3, which is horribly low. I am sure someone here knows the correct normal level, so feel free to correct me if I am wrong, but I think somewhere between 40-50 is normal. So, in any event a level of 3 really sucked!

Well, couldn't tolerate the supplements the doctor prescribed, took 1 a week for 2 weeks, and it tore my tummy up. So I got a Sperti lamp and really just spent 5 minutes a day, just 3 times a week sitting in front of it wearing the little green glasses they give you. In fact, as I recall, some weeks I missed for one reason or another. But that's all I did, no add'l supplements, and I NEVER go in the sun. I live in southern USA and it's steamy and sticky and hard to be outdoors when the sun's out. Anyway, I just got retested for the first time about 5 weeks ago, and my levels had risen to 30. Since then I have been pretty religious about doing it.

It cost about $300 or so, but well worth it. I'm not big on recommending things to others because everybody's so different. But just in case, here's the link if anyone wants to check it out.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.