Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"But You Can Eat Whole Wheat, Right?"


earthtoneNJ

Recommended Posts

danaf617 Explorer

When I tell them chicken, beef vegetables, fruit. It is inevitability followed by them saying how much they would rather die than have to eat like I do. :o

And sadly, they probably will die from eating the way they do... diets filled with pseudo-food. :(

When did it become such a crazy notion to eat whole, unprocessed foods?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 121
  • Created
  • Last Reply
ravenwoodglass Mentor

Jerk. Good thing my hillbilly butt wasn't there when he said that to you.

Yea really, in my younger and more volatile prediagnosed days I would have backed him up to a wall and lit into him. I did have quite the temper then and little ole 100 lb me could back down even the biggest guy. Noone messed with me and as my ex used to say when my eyes spit fire it was time to walk away, real quick. Now you really have to work to get me mad. That guy came real close though.

vbecton Explorer

I've had a few folks recently tell me that "a little wheat won't kill you." So, I've politely offered to eat the wheat, but ONLY if they would politely spend the night with me and read me stories while I spend an entire evening on the toilet with "D." While it may not kill me, they will most certainly want to die after an evening spent with me trying to de-gluten myself :P

GlutenFreeManna Rising Star

I've had a few folks recently tell me that "a little wheat won't kill you." So, I've politely offered to eat the wheat, but ONLY if they would politely spend the night with me and read me stories while I spend an entire evening on the toilet with "D." While it may not kill me, they will most certainly want to die after an evening spent with me trying to de-gluten myself :P

I would respond that a little bit of e.coli in their food (probably) won't kill them either, but would they eat something they knew had e.coli and would give them symptoms of food poisoning? People need to understand that it's not like this is just a fad health diet, were we can eat gluten "in moderation". Gluten is the same thing as poison to us.

Skylark Collaborator

I would respond that a little bit of e.coli in their food (probably) won't kill them either, but would they eat something they knew had e.coli and would give them symptoms of food poisoning? People need to understand that it's not like this is just a fad health diet, were we can eat gluten "in moderation". Gluten is the same thing as poison to us.

I have one of those friends who picks and chooses as far as gluten-free. She knows she gets sick if she eats a lot of wheat but apparently she's not sensitive enough that she can't have a cookie here or there. She's celiac negative and probably just a little allergic.

To her credit, she did bring a wonderful gluten-free pasta salad to my pot luck along with some normal wheat cookies for all the glutenoids. It was good and made carefully enough that I did not get CC'd. :)

GlutenFreeManna Rising Star

I have one of those friends who picks and chooses as far as gluten-free. She knows she gets sick if she eats a lot of wheat but apparently she's not sensitive enough that she can't have a cookie here or there. She's celiac negative and probably just a little allergic.

To her credit, she did bring a wonderful gluten-free pasta salad to my pot luck along with some normal wheat cookies for all the glutenoids. It was good and made carefully enough that I did not get CC'd. :)

I know someone like that too. She was diagnosed with DH, so she has celiac, but she doesn't have any other symptoms. She does eat gluten free when she's on her own, but if she goes to a party and people offer her a cookie she will eat it. She doesn't mind having a rash occasionally and would rather deal with the DH later instead of "being rude". I have tried explaining that even if she doesn't have gastro problems now she could be damaging her body by eating gluten and she doesn't want to hear about it. Calls me rude for either not going to a party where I won't be able to eat anything or going and turning down food or insisting I bring my own food. I'm no longer friends with this person. That type of thinking makes me crazy. I guess everyone is allowed to choose what level of vigilance they are comfortable with but I can't help but think that people like that are the reason people with more severe reactions are given such a hard time. It's why we often see threads on here where friends ask "A little bit of wheat won't hurt you, will it?" or family members slip some flour into a gluten-free meal to "test" if we really get sick or this is all in our heads.

Now don't get me wrong, I don't mind at all if people decide to be gluten free just because they think it's healthier or something (hey, the more people eating gluten free the more products will hit the market and the easier things will be!) BUT I wish those people would be clear when talking to others they are CHOOSING to eat that way for most of their diet and some people don't have any choice. For people with celiac or gluten intolerance gluten is poison, not something we are JUST choosing to avoid.

Chakra2 Contributor

For years after I became vegetarian my grandmother would ask my mom why I wouldn't eat chicken salad -- "that's a salad, isn't it?" I think she really was trying hard to find things for me to eat but that comment always made me laugh.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

For years after I became vegetarian my grandmother would ask my mom why I wouldn't eat chicken salad -- "that's a salad, isn't it?" I think she really was trying hard to find things for me to eat but that comment always made me laugh.

Oh my. Reminds me of that scene from "My Big Fat Greek Wedding?"

Tulla: "Aunt Voula, he doesn't eat meat."

Voula: "He don't eat no meat? WHAT DO YOU MEAN HE DON'T EAT NO MEAT?"

**Everyone stops and stares**

Voula: "Oh, it's okay. I make lamb."

**Party continues**

:huh::lol:

Wenmin Enthusiast

Too funny! I am constantly amazed at how ignorant people are about what is in their food, and how many people don't cook. I ALWAYS cooked my own food and knew what was in it, even before I realized I had celiac.

As I sit everyday at work and eat my delicious gluten free food that I prepared, my coworkers are eating those boxed up lunches (Healthy Choice -yeah right!). One of my coworkers swears when she wins the lottery she will hire me as her personal chef to cook dinner every evening at her house!!!! I think this is so funny!

Wenmin

Lexi Enthusiast

These are all making me laugh. I was in Native Sun a few months ago, and I went to the counter to ask if a certain product was gluten free. The lady said, "no honey, gluten is mainly just in grasses". I didn't even respond. However, I do LOVE Native Sun, and they are Usually very well informed there.

Skylark Collaborator

As I sit everyday at work and eat my delicious gluten free food that I prepared, my coworkers are eating those boxed up lunches (Healthy Choice -yeah right!). One of my coworkers swears when she wins the lottery she will hire me as her personal chef to cook dinner every evening at her house!!!! I think this is so funny!

Wenmin

When I have friends over for dinner, they generally don't notice the food is gluten-free. :lol: I made Costco pulled pork with a gluten-free barbecue sauce and served it with rice for the party. Someone commented on how different and good it was with rice instead of bread.

Juliebove Rising Star

I was watching a British comedy (can't remember the name) and the son announced that his girlfriend was vegetarian. The grandma then looked a bit confused then said brightly, "Can she have some of that ham if it's chopped up really fine?"

AnneM Apprentice

When i was first diagnosed with Celiac, i was told by the gastros assistant of my disease, she was explaining to me exactly what it was, and how it was going to change my life, and she then she went on to say "you can't eat wheat anymore, but it's not that bad, you can still eat potato bread".

Well i went grocery shopping all excited thinking hey i like potato bread i picked up a loaf and read the ingrediants, i was shocked to see wheat! I can't believe a medical professional actually told me i could have potato bread!!

:blink:

missceliac2010 Apprentice

This thread is hysterical! My bf and I thoroughly enjoy every post. I read him the examples, and we both giggle.

My most recent duh moment was with my Grandmother (she's 80). We were there for a bbq last week, and she made deviled eggs. I love deviled eggs, but I had to ask questions about the ingredients she'd used. When she told me she used mustard, it threw up a red flag. I searched her fridge and sure enough, she had a bottle of gluten-laden mustard in there. When I said "sorry Grandma, there's gluten in the mustard," she replied "O it's just a tiny bit, you know, for flavor...that won't hurt you...." Yes it will Grandma. Next time I'm at the store I'll pick you up some gluten free mustard so next time I can enjoy all of your hard work! Grandma says "O that's just wasting money. Just eat one, it's only a tiny bit of mustard," and rolls her eyes.

I don't fault her. She's old. This is new. And my sister was in town for that dinner too, and she has Chrones Disease. Between the two of us and our diet restrictions, my "food pushing" Grandmother is not a happy camper while menu prepping. I wish she would just drop it when either my sister or I say we can't have x or y because of our diseases, but she still "food pushes", which stresses her AND us out! Ugh!

Not to bad though in the grand scheme of life. Her heart is in the right place. :)

kareng Grand Master

This thread is hysterical! My bf and I thoroughly enjoy every post. I read him the examples, and we both giggle.

My most recent duh moment was with my Grandmother (she's 80). We were there for a bbq last week, and she made deviled eggs. I love deviled eggs, but I had to ask questions about the ingredients she'd used. When she told me she used mustard, it threw up a red flag. I searched her fridge and sure enough, she had a bottle of gluten-laden mustard in there. When I said "sorry Grandma, there's gluten in the mustard," she replied "O it's just a tiny bit, you know, for flavor...that won't hurt you...." Yes it will Grandma. Next time I'm at the store I'll pick you up some gluten free mustard so next time I can enjoy all of your hard work! Grandma says "O that's just wasting money. Just eat one, it's only a tiny bit of mustard," and rolls her eyes.

I don't fault her. She's old. This is new. And my sister was in town for that dinner too, and she has Chrones Disease. Between the two of us and our diet restrictions, my "food pushing" Grandmother is not a happy camper while menu prepping. I wish she would just drop it when either my sister or I say we can't have x or y because of our diseases, but she still "food pushes", which stresses her AND us out! Ugh!

Not to bad though in the grand scheme of life. Her heart is in the right place. :)

I haven't seen gluten in mustard. What is in mustard that has gluten or what kinds are "Gluten laden"?

i-geek Rookie

I haven't seen gluten in mustard. What is in mustard that has gluten or what kinds are "Gluten laden"?

I was wondering that myself. I've got Grey Poupon and Tabasco mustards in my fridge and both are safe.

This thread is hilarious and sad all at once. People are so ignorant. Luckily, I haven't had too much trouble. I spent the weekend with my husband's family for my sister-in-law's wedding, and other than fielding a lot of questions and having to order special foods, I didn't have problems (my sister-in-law and new brother-in-law are sweethearts and made sure to have the rehearsal dinner at a place with a gluten-free menu, made sure to let the management know that I was coming- food was delicious- and had gluten-free cookies for me and an uncle with celiac at their dessert reception). Husband's cousin is a naturopathic doctor and was so happy to hear that I didn't view celiac disease as a death sentence- apparently a lot of her patients freak out at the idea of having to cook everything and give up mainstream processed foods. I can't believe how many people don't cook for themselves.

miles2go Contributor

I was wondering that myself. I've got Grey Poupon and Tabasco mustards in my fridge and both are safe.

Mustards with beer in them. There are a few mustard sauce kinds of things out there, but I don't eat enough of them to remember if they are gluteny or not.

tarnalberry Community Regular

And there are a few mustards (I've seen them at Safeway) that have wheat starch. Always read the label. :)

missceliac2010 Apprentice

I haven't seen gluten in mustard. What is in mustard that has gluten or what kinds are "Gluten laden"?

My Grandma is notoriously cheap! LOL! Her version was some cheap store brand and yes, it had "wheat starch" in it. I did a little research and it said wheat is sometimes added to mustard to adjust the texture. I also think it was a "deli style" (with the little brown flecks in it), which could have been the issue. But yeah, as others have said, always read the label. Mustard is one of those things I would have thought was always gluten free, but nopers! Read read read!

K8ling Enthusiast

The one that really got me upset was the woman who insisted she was feeding her toddler a gluten free diet while her toddler ate mostly cheerios for snacks.

Me: Cheerios have wheat in them.

Her: No they don't, they are oats.

Me: They have wheat starch listed in the ingredients and besides some celiacs react to oats.

Her: Well a little bit shouldn't hurt him. Afterall, the main ingredient is oats, not wheat. Besides cheerios are heart healthy, see it says so right on the box...blah, blah, blah...

Me: *Bangs head against wall and gives up.*

Oh my goodness I just had this conversation with my sons school! They said "well we gave him cheerios for snack"...When I said that they were not safe and he had to have chex instead, the administrator told me that I was overreacting!! After taking it to the owner, I got a letter of apology, a discount, and the promise that it will not happen again. It's so hard to make people understand!!!

Sometimes I REALLY hate people.

BethJ Rookie

This thread has made my day. I can't stop laughing.

Earlier this year we had to travel up to South Carolina to visit the BIL in Greenville. One morning we were stuck eating at a Waffle House. Not my choice but DH was starving. I carefully ordered eggs and bacon, explaining I'm "allergic" to wheat. I've found most people know what allergy is so that's what I say.

Me: Two eggs, over easy, bacon - and NO BREAD. I'm allergic to wheat.

The waitress: No bread?

Me: No, I'm allergic to wheat.

The waitress: Oh well then, we also have white and rye bread. That should be okay.

Me: No, no bread. It's all made with flour. Flour is all wheat and I can't eat it.

The waitress: Well glory be, I didn't know that. Hey Sue *waitress half way across the room* did you know bread is made from wheat?

Other waitress Sue: Really? Gosh, no Hon, never knew that before.

Me: *sitting twiddling thumbs waiting the dialog to end* Ahem, trust me, I can't have bread so please just bring my eggs and bacon.

I can only imagine what would have happened if I had mentioned celiac. :rolleyes:

I can't get over how ignorant most people are about what they put into their bodies. This instance was the funniest but it happens all the time. People seem surprised that wheat is in anything other than "whole wheat" products. I always love how waitresses ask, "White, wheat or rye" when taking orders. Duh, it's all wheat.

vbecton Explorer

This thread has made my day. I can't stop laughing.

Earlier this year we had to travel up to South Carolina to visit the BIL in Greenville. One morning we were stuck eating at a Waffle House. Not my choice but DH was starving. I carefully ordered eggs and bacon, explaining I'm "allergic" to wheat. I've found most people know what allergy is so that's what I say.

Me: Two eggs, over easy, bacon - and NO BREAD. I'm allergic to wheat.

The waitress: No bread?

Me: No, I'm allergic to wheat.

The waitress: Oh well then, we also have white and rye bread. That should be okay.

Me: No, no bread. It's all made with flour. Flour is all wheat and I can't eat it.

The waitress: Well glory be, I didn't know that. Hey Sue *waitress half way across the room* did you know bread is made from wheat?

Other waitress Sue: Really? Gosh, no Hon, never knew that before.

Me: *sitting twiddling thumbs waiting the dialog to end* Ahem, trust me, I can't have bread so please just bring my eggs and bacon.

I can only imagine what would have happened if I had mentioned celiac. :rolleyes:

I can't get over how ignorant most people are about what they put into their bodies. This instance was the funniest but it happens all the time. People seem surprised that wheat is in anything other than "whole wheat" products. I always love how waitresses ask, "White, wheat or rye" when taking orders. Duh, it's all wheat.

This was hilarious! I live in a small Texas town (and luckily not too far from a big city) and this is how people talk here. In the few instances that I've had to refuse food and briefly explain why I can't eat it, they always respond with, *insert texas twang* "well bless your heart sweetie, you must be so miserable without dumplins' and biscuits. come on by momma's house and i'll get you sumpin nice to eat." And by "sumpin nice" I'm sure it would involve gluten :blink: Those sweet ol' ladies!

Googles Community Regular

I guess I shouldn't have been as surprised as I was when I went to the grocery store. The cashier (maybe 16 or 17) asked me what I was buying since she didn't recognize the gluten free food. I told her that I was getting gluten free food because I couldn't eat wheat. She looked at me really confused. I said that I couldn't eat flour. She then said. Oh I've never heard of that (meaning that flour was made out of wheat.) This somewhat surprised me since the store is good and has a complete freezer case that is just gluten free food with a nice big sign over it. The best place to get it anywhere around.

vbecton Explorer

Took my daughter to Chick-Fil-A for toddler time.

Me: Are the french fries fried in the same grease that the nuggets? Or, do they have a dedicated fryer?

Worker: They have a dedicated fryer.

Me: Awesome, I'm just curious because some people are intolerant, or allergic to gluten and if they are all fried together than the french fries would be CC.

Worker: *dazed, confused look*

Me: Did that make sense?

Worker: Really? Some people are allergic to chicken nuggets?

Me: *hands in face laughing*. I'll just have an order of fries and a small water for this young lady.

Worker: Would you like to upgrade to a nugget meal for $2 more dollars?

Me: No thanks.

Was it wrong that I never corrected him on people being allergic to chicken nuggets? :P

miles2go Contributor

Forgot to mention that at a local food fare where there was some serious sampling of Maine organic food products...

Me: I can't eat wheat.

Them: Weed?

Me: No, wheat.

Them: Meat? No?...

Me: [next food vendor?]

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.