Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D

MommyL

Recommended Posts

MommyL Rookie
MommyL
Posted

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dixiebell Contributor
Dixiebell
Posted

Hi. Mine was 16.7 (range 32.0-100). My Dr. put me on 50,000 units once a week for two months and then I took 4,000 units a day for about three months now I am down to 1,000 units a day. At my last visit she said I was in the normal range now.

Simona19 Collaborator
Simona19
Posted

Hi! I just got back my results yesterday.

I had: Vitamin D, 25-OH, total 31 referance range: 30 to 100

Vit D, 25-OH, D3 31

Vit D, 25-OH, 02 <4

Note: 25-OHD3 indicates both endogenous production and supplementation. 25-OHD2 is an inbdicatore of exogenous souces such as diet or supplementation. Therapy is based on measurement of total 25-OHD, with levels <20ng/mL indicative of Vitamin D deficiency, while levels between 20ng/mL and 30ng/mL suggest insufficiency. Optimal levels are > or = 30 nag/mL.

My doctor told me that I need to take Vitamin D supplement 1 000 units for the three monts, and I should be ok. He would retest me after that.

I hope that this will help you some how.

jststric Contributor
jststric
Posted

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

MommyL Rookie
MommyL
Posted
  • Author

I'm thinking mine was 17. My doc simply had me start taking 4000 units/day. I haven't been retested as it was just discovered in the past month. Is this a normal symptom of being gluten-intolerant? I am also a 51 yr old woman going thru the change. I assumed it was due to that. Maybe a double-whammy? I know my mood seemed to noticeably pick up after starting to take the added D.

Glad to hear you all have been tested. I went through Direct Labs for $69 (those of you who are intrested plus you can get 10% off if you search Direct Labs coupon). My understanding is that many people are deficient in vitamin D and it plays an important role in preventing cancers, MS, autoimmune, and osteoprosis. I think those of you who have celiac should really consider checking your vitamin D and everyone else as well as it is an important vitamin.

blissfully-unaware Rookie
blissfully-unaware
Posted

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

MommyL Rookie
MommyL
Posted
  • Author

Mine is 14.4 (normal range is 30-100).

My doctor gave me a shot of vitamin D. I'll get another test done in 3 months and based on the results, he'll decide if I need another shot. He said that it'll take a long time for my vitamin D level to increase if I take oral tablets... he felt it's best to take the shot.

Wow that is low! Glad he gave you a shot. Take care. Enjoy some sunshine :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Mine was 17 also (range 32-100) and was put on RX vitamin D 50,000 iu capsules once a week and I am still currently taking this dosage. I was retested at 3 months and it went up to the minimum range. I have had labs over the last 1 1/2 years since I started taking it and I am now at 64.2. My GI, endo and gyn all recommended me staying on it year round and like to see the level between the 50-70 range.

blissfully-unaware Rookie
blissfully-unaware
Posted

Wow that is low! Glad he gave you a shot. Take care. Enjoy some sunshine :)

Thanks :D

In fact, I have been going out in the early morning sun after seeing my results!

frieze Community Regular
frieze
Posted

Thanks :D

In fact, I have been going out in the early morning sun after seeing my results!

i dont think the early morning sun is going to do you overmuch good.....10-20 minutes of FULL sun a day, i think is the idea.....

Linda L Newbie
Linda L
Posted

I agree with Frieze, but it depends where you live. I'm in Maine, USA and I've read that you need direct sun on clean (no sunscreen) skin between 10am and 3pm. Unfortunately, it only works here between May and September (different experts give different time frames). In the winter the angle of the sun prevents the right rays from reaching us. At all. I have osteopinea, so although my Vit D test was 39.5, my PA has me taking 50,000 units weekly for 8 weeks to see if I can get my numbers up because of the relationship between Vit D and calcium absorption. (Some researchers think the "normal" range of 30 or above is too low for optimum health and we ought to be trying for 50+.)

sb2178 Enthusiast
sb2178
Posted

2007 : 15

50,000 IU/ one weekly for 12 weeks

retest: 72

daily: 1200 IU

2010: 32 (and this was when I was doing lots of mid-day gardening, too... bah!)

new dose: daily 3200 IU

blissfully-unaware Rookie
blissfully-unaware
Posted

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

jststric Contributor
jststric
Posted

Well, I usually go out in the sun around 8am for 10-12 minutes. I stay in Dubai where we have full sun (no clouds) for 350 days of the year!

I always thought that going out in the sun between 10am and 3pm would increase the risk of skin cancer?

It does. I suspect the sun in Dubai is completely different than we are used to here in the States. My doc recommended the supplements over spending time in the sun because she figured in the fact that most people use sunscreen these days (or should, which would lower the Vit. D exposure also. I have to admit I'm surprised at the amounts many people are taking here.

anabananakins Explorer
anabananakins
Posted

I do not have celiac but I recently got my vitamin D tested through Direct labs and was 21.9.

1) How low was your vitamin D when it was tested?

2) How much vitamin D do you take?

3) How long did it take for your vitamin D to go up after supplementing?

1) My result was 2. I haven't seen the hard copy so I'm not sure of the range but he said it should be a minimum of 50 and 70 was optimal. So 2 was terrible.

2) He put me on 3 x 1000 IU per day.

3) I don't know yet, haven't been re-tested. He said it takes a long time, a few months at least.

I live in Australia so even if I'm not lying in the beach, I still should be getting a fair amount of sun so I was really shocked how low mine was.

Linda L Newbie
Linda L
Posted

To blissfully unaware: I agree that where you live on the planet determines what time of day is best for getting sun. Doing a little research on the recommendations for your latitude is extra important. The options for those of us living in very northern and southern latitudes is limited to certain months and times of day. The closer you live to the equator, the bigger your "window of opportunity" would be. Certainly 8am could be the safest time of day for you to collect some natural Vitamin D, but do be careful to limit your exposure without sunscreen.

SaraKat Contributor
SaraKat
Posted

Mine is 60 and I was just dx'd with celiac by blood test 2 weeks ago. I guess that hadn't gone down yet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Gluten-Free Mapo Tofu: Authentic Sichuan Flavor Without the Gluten

    2. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      trents: Why some can tolerate european bread but not american bread. I take 600 mcg a day. Right in the middle of the safe range. Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the...
    3. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    4. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    5. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,129
    • Most Online (within 30 mins)
      7,748
    PorkchopKate
    Newest Member
    PorkchopKate
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      trents:  Why some can tolerate european bread but not american bread.     I take 600 mcg a day.  Right in the middle of the safe range.   Groups at Risk of Iodine Inadequacy Though though the NIH does not specifically list Celiac Disease in this group, they state: "Iodide is quickly and almost completely absorbed in the stomach and duodenum. Iodate is reduced in the gastrointestinal tract and absorbed as iodide [2,5]."  That would certainly include malabsorption of Iodine due to Celiac Disease with resultant Iodine Deficiency. Vegans and people who eat few or no dairy products, seafood, and eggs People who do not use iodized salt Pregnant women People with marginal iodine status who eat foods containing goitrogens Deficiencies of iron and/or vitamin A may also be goitrogenic [51] https://ods.od.nih.gov/factsheets/Iodine-HealthProfessiona   1  
    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.