Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Hypothyroid- Any Tips?


Charlie's Girl

Recommended Posts

Charlie's Girl Apprentice

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Gemini Experienced

Just got diagnosed (officially) August 23rd. They gave me Levo- I did some research and asked for Naturethroid at my follow up visit last Friday. I forgot to get a copy of my test results- oops- too sleepy- even tho' I wrote myself a reminder note.

I am still exhausted. Any tips for adjusting my dosage? Adjusting my gluten free diet? Lifestyle? Prayer? Voodoo? I really need to join the world of the living. I am currently working two 1/2 days per week and pass out for 3 hours when I get home. If I work two days in a row- it takes two days to recover. I can only do one activity per day. I went gluten free in March but was cc'ed by supplements until May and have dealt with almost weekly cc since July. I am starting a very simple elimination diet on Monday- although it isn't much different from what I eat now.

I was taking 50 mcg of Levo in the AM and now am taking 1/2 "grain" of Naturethroid in the AM.

Thanks gang!

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

Skylark Collaborator

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

Charlie's Girl Apprentice

Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it in 2007. I think that equates to that I was not converting the T4 into T3 effectively. I currently take 112 mcg of levothyroxine and 5 mcg of cytomel in the morning and then another 5 mcg of cytomel in the afternoon. With T4 medications it can take the body 4-6 weeks to regulate but with cytomel it is somewhere in the neighborhood of a week or so making it easy to adjust if you get overmedication symptoms.

Thanks for the feedback Roda. I will get a copy of my tests from now on so as to stay up on my levels. I am sooooo looking forward to feeling some pep!

Charlie's Girl Apprentice

I would ditch the Levo and go entirely with Nature-throid. I switched this year from Levo to the Nature-throid and love it! It has kick and I noticed a huge difference in how I felt. It does take a while to get your thyroid in the optimal range but hang in there...it will happen. Just keep eating gluten-free so your meds will be properly absorbed and be patient. As for adjusting your dosage, go slowly on that or you could end up hyper-thyroid like I did.

Not pleasant......

I read so many positive things about Naturethroid- that's why I switched. People seem to love it. My ND said to give this dosage two weeks before I try a higher level. Should I wait longer? I'll go back to see her in 4-6 weeks for another blood test. Should I wait until then? I understand that as I am still fairly new to gluten free living (and had to remove a few human obstacles to live without cc), that it may take a while for me to feel peppy again.

Thanks for your input Gemini. I appreciate all the help I receive here.

Charlie's Girl Apprentice

Your doctor should order another TSH in a couple more weeks to see if you're on enough thyroid medicine. Also, gluten CC will make me tired. Whatever you're doing to get CC'd weekly really needs to stop.

My "whatevers" were "whoevers" and I am hoping that I have addressed the situation. My 86 year old Mom lives with me and it was/is a huge learning curve for her. She has just gotten the separate shelves in the frig concept. Bless her heart. She is trying. I also had to deal with "one of those" who accused me of being obsessive when I caught her using peanut butter that was clearly labelled with my name. I asked her how long she had been using it and she told me to stop trying to blame my problems on her- sigh :( She isn't staying with me anymore.

I also had an acupuncturist who kept giving me supplements that weren't gluten free. She carries a certain line and their digestive enzymes say - in very small writing- not suitable for people with gluten intolerance. I was in such a haze when I first went gluten free- I trusted her to give me supplements that were ok. Now I don't trust anyone- except forum members. :)

I definitely feel sleepy when I am cc'ed. I am hoping that the combo of thyroid meds and gluten free living will be the ticket to living a more energetic life. I am avoiding soy and dairy products until I feel better. I am going to start the elimination diet to check for other food issues. I am staying on top of my supplements to address low Vitamin D, leaky gut, etc....

I'll be going back in 4-6 weeks for follow up blood tests.

Thanks for all your help Skylark.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748

    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.