Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Neuro Effects Research


ravenwoodglass

  

38 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

T.H. Community Regular

Just curious if you have seen any information on people getting relief from anger as opposed to anxiety? I didn't have the anxiety issues, but I have had irrational anger that wasn't effected by circumstances, but disappeared on going gluten free.

I hope we get to see the paper when you've finished it; it sounds like it will be very interesting! :)

I am hoping to get some answers from those of us who have neuro issues from gluten. I am writing a paper for a class about the neurological effects of celiac. If you have been on the diet at least 6 months and had issues with any of the associated neuro effects please take the poll. It would be quite helpful. You can select multiple answers in case you had multiple impact. No names or comments will be used in the paper only poll numbers.

Thanks for your input. I appretiate it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Just voted :)

ravenwoodglass Mentor

Just curious if you have seen any information on people getting relief from anger as opposed to anxiety? I didn't have the anxiety issues, but I have had irrational anger that wasn't effected by circumstances, but disappeared on going gluten free.

I hope we get to see the paper when you've finished it; it sounds like it will be very interesting! :)

I think the irrational anger would fit in but I don't know what you would call it. I used to have those issues also. In my case I was told that it was part of my seizure disorder and I took antiseizure meds for quite a while which brought it under control but the med had really nasty side effects. Don't know if it would be the same for others.

srall Contributor

I considered irrational anger part of my anxiety. It definitely fits in somewhere. I'm so relieved I was able to manage the rage with diet changes and exercises. My doctor had pen in hand to write out a prescription for Xanax. I was willing to do anything to avoid drugs.

Marilyn R Community Regular

I just re-voted by deleting my earlier vote too.

I'm just short of your 6 month gluten-free criteria and responded "yes" to all 4 questions about getting relief from a gluten-free diet.

Regarding anger, I went through a bad period of unreasonable anger before the other neurological symptoms started occuring and approximately 18 months before I was diagnosed. As things became progressively worse, the anger dispelled because depression came in like a lion. Then insomnia. Then increased neuropathy and gait ataxia.

I wonder if there's any correlation to neurological symptoms and dual intolerances of soy and gluten? Maybe another paper down the road?

Thanks.

ravenwoodglass Mentor

I just re-voted by deleting my earlier vote too.

I wonder if there's any correlation to neurological symptoms and dual intolerances of soy and gluten? Maybe another paper down the road?

Thanks.

That's an interesting question. I know my neuro symptoms don't occur when I get soyed but don't know if it might impact others neurologically or if those of us who do have neuro issues also are more prone to being intolerant to soy.

rdunbar Explorer

I considered irrational anger part of my anxiety. It definitely fits in somewhere.

No pun intended, right?

I've had huge problems with irrational anger as well, its definatly like a fit, or a siezure. I start shaking and feel like my brain is on fire. This has sabotaged me so many different ways. It's so unpleasant for others, it's been getting much better, but if it does happen now, it's much less severe, and goes away much faster. I'm so encouraged to hear that ravenwoodglass has healed up from this!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Glad that it is getting better for you also. That overwhelming rage is definately scarey. It is so nice to be able to feel in control. I hope things continue to improve for you.

MelindaLee Contributor

I am hoping to get some answers from those of us who have neuro issues from gluten. I am writing a paper for a class about the neurological effects of celiac. If you have been on the diet at least 6 months and had issues with any of the associated neuro effects please take the poll. It would be quite helpful. You can select multiple answers in case you had multiple impact. No names or comments will be used in the paper only poll numbers.

Thanks for your input. I appretiate it.

I didn't vote as I have only been gluten-free for 2 months. I have noticed a HUGE improvement in things I didn't even realize could have been related. Migraines, muschle twitches, tingling in arms and leg, dizziness, memory, word retrieval. I don't think I went a long time undiagnosed like many I have read about, so I am thinking I might have just been lucky, and my symptoms have resolved quicker. Just wanted to weigh in...though I realize that you probably can't use the info.

ravenwoodglass Mentor

I didn't vote as I have only been gluten-free for 2 months. I have noticed a HUGE improvement in things I didn't even realize could have been related. Migraines, muschle twitches, tingling in arms and leg, dizziness, memory, word retrieval. I don't think I went a long time undiagnosed like many I have read about, so I am thinking I might have just been lucky, and my symptoms have resolved quicker. Just wanted to weigh in...though I realize that you probably can't use the info.

If you have had a great deal of relief that is really good news. Since this is a paper for just my health class and not for clinical research feel free to go ahead and vote. A lot of my symptoms like the migraines and the tingling went away long before six months also. I can see who voted on what even though others can't and I will note if I use your info that you were under the six month mark.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.