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My Description.

IveGotEffinCeliac

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IveGotEffinCeliac Apprentice
IveGotEffinCeliac
Posted

I finally found an accurate way to describe how my gut feels after a glutening. I compare it to shredded beef or pulled pork. It actually feels like someone is shredding the lining of my stomach by hand. It feels as though this imaginary person intends on making my innards into a meal for others.

That is how the gut feels. I don't know of a way to describe my other symptoms in a way that would accurately convey how absolutely horrible it makes me feel. The extreme exhaustion, and inability to have the energy to get out of bed, even to pee. Or the depression. The brain fog and lack of focus. There's no ability to even focus on something for 30 seconds.

Just wanted to share the shredded beef stomach feeling. That really captures the exact sensation in my lower gut.

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sandsurfgirl Collaborator
sandsurfgirl
Posted

graphic but so true. I feel like someone is twisting a sharp knife in circles.

i-geek Rookie
i-geek
Posted

Yep. I find it confusing because the "shredding" almost feels like hunger at times...except there's nausea in there as well. It was how I knew I got glutened at my in-laws' house last night. Grrr...

Emilushka Contributor
Emilushka
Posted

I feel more like my stomach acid is trying to burn its way through my abdominal wall, but I totally hear you. It's awful. I described "pooping that makes you want to cry, 9 times in 24 hours" to some friends and they didn't quite grasp the concept.

IveGotEffinCeliac Apprentice
IveGotEffinCeliac
Posted
  • Author

Yep. I find it confusing because the "shredding" almost feels like hunger at times...except there's nausea in there as well. It was how I knew I got glutened at my in-laws' house last night. Grrr...

I feel so bad yet so happy that I'm not alone. This is exactly how it feels. Nausea and all. Celiac disease should be some sort of Corporal punishment for hardend criminals.

IveGotEffinCeliac Apprentice
IveGotEffinCeliac
Posted
  • Author

I feel more like my stomach acid is trying to burn its way through my abdominal wall, but I totally hear you. It's awful. I described "pooping that makes you want to cry, 9 times in 24 hours" to some friends and they didn't quite grasp the concept.

That sounds genuinely horrible. I don't have issues with acid, due to nexium. No D either. But constipation imported directly from hell. I'll leave it at that.

Emilushka Contributor
Emilushka
Posted

That sounds genuinely horrible. I don't have issues with acid, due to nexium. No D either. But constipation imported directly from hell. I'll leave it at that.

I get acid and plenty of good, old-fashioned D. SO MUCH. It's incredible. Sometimes I wonder if I actually ate that much.

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IveGotEffinCeliac Apprentice
IveGotEffinCeliac
Posted
  • Author

Then there are times like today, where you're feeling just ever so slightly better. However, you are afraid to eat anything at all. That fear seams to be quite valid. There are certainly times when even eating a celery stick made me regress.

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    • Resada
      Work friends & food

      By Resada · Posted

      Yeah, that one is always hard, especially since life seems to revolve around food. That happened to me 2 weeks ago with hibachi and with Hungarian hot dogs. I used to be more picky, but now I would love to try all the things if I could. On the bright side, my husband is absolutely wonderful with it, and his mom often brings a few certified gluten-free things to family get-togethers just for me (and tries to make sure main dishes are safe too). Having the people closest to you be supportive can make a huge difference. 
    • trents
      Work friends & food

      By trents · Posted

      I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes to eat. So, sometimes I just say, "You guys go ahead without me. I'll find some leftovers." But, still, I admit to feeling a little left out at such times and a little like a 5th wheel.
    • Resada
      Work friends & food

      By Resada · Posted

      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Work friends & food

      By trents · Posted

      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      Work friends & food

      By Resada · Posted

      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
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