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Help! I Got Glutened!


xpaperbackwriterx

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xpaperbackwriterx Newbie

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!


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georgie Enthusiast

Exactly my symptoms and also why I think I am Coeliac and not just Gluten Intolerant. I know some people that are GI and they sneak bits of Gluten and do not get bowel blockages.... Miralax. Get thee some Miralax and use that. I ended up with Diverticulitis, antibiotics and a water diet for a week ... and that is not fun... and all caused by some mis labelled lollies that had wheat starch....so be careful and get to a Dr if worried. My Dr said if this had not worked then it would have been hospital and an IV.. The dose my Dr told me to take for this I should not say here - but it was a 'lot' of Miralax. Try a fluid diet and Miralax. If you go to hospital it will be similar treatment.

glutenfreesavvy Rookie

I am so sorry! I can relate...that's a problem I have to deal with when glutened too. At this point, this is what I'd do.

1. Eat dried fruits, like apricots & prunes

2. Lots of water - at least 1/2 your body weight in ounces - more if you're really active

3. Drink herbal tea that have senna, but be careful it can cause some cramping if you overdo

4. Take some slippery elm - it coats the gi tract & is soothing, as well.

Hope this helps...I feel your pain. :-)

GFinDC Veteran

Milk of magnesia from the drug store can help. I also suggest looking closely at everything you are eating to be sure it is gluten free. That includes all vitamins, meds, sodas, coffee, teas etc. Staying off processed foods for a while might help also. Being gluten free is not easy if you eat food made by other people. You really need to know what the ingredients are in everything you eat. Wash your fruit and veggies before eating or cooking them also, just in case the picked up some gluten in the grocery store during storage.

Kim27 Contributor

Try a combination of the Miralax and Magnesium Oxide pills. You can get those at any pharmacy, even WalMart, it is usually held behind the counter but is not a prescription.

anabananakins Explorer

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

I'm sorry I don't have any tips add but I hope you feel a lot better soon. Getting glutened sucks, whether it's by accident or through something like this. But I would encourage you to try and stay strictly gluten free from now on. Whether or not you have officially diagnosed celiac doesn't make much difference unfortunately to how our bodies react to it. There are people with severly damaged vili who don't have any noticable symptoms... others like me who test negative but feel amazingly better gluten free and who feel sick now at the tiniest crumb. So don't let a lack of a diagnosis downplay how much better you feel gluten free. And I really hope you feel well again soon.

cctaylor01 Newbie

I don't know if anyone has mentioned this yet, because I didn't read the entire thread, but when that happens to me (as constipation is one of my major problems), I use senna. I find that nothing else works to give me relief. You can buy it in tea form (yogi, traditional medicinals and some other brands sell it) or in pill form at the drugstore. For me it takes about 12-24 hours to work but when it works, it works.

I like it because it's a natural laxative. None of the chemical laxative stuff works for me.

I hope you feel better soon!

Claire


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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