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Does Anyone Get Upper Back Spasms When Glutened?

Celiac15

By Celiac15
in Coping with Celiac Disease

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Celiac15 Newbie
Celiac15
Posted

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

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Cypressmyst Explorer
Cypressmyst
Posted

I get all over back spasms. In fact its funny that you should ask because I'm having them now. <_<

Got glutened by soap that was mislabeled at a friends house tonight. Didn't eat anything or touch my mouth afterwards but I've got all the symptoms now, achy back spasms, foggy brain, headaches, cold hands. :( Within minutes of washing them too.

But you know...gluten can't get through the skin or anything... :rolleyes:

I've found that eating an apple sometimes helps alleviate some of the symptoms. Apples are detoxing fruits.

lcarter Contributor
lcarter
Posted

Yes, I get spasms too, but more in the mid back area and usually after the bloating and diarrhea have subsided some. Interesting!

dilettantesteph Collaborator
dilettantesteph
Posted

I get them too. What helps me is to keep my back really strong with exercise. Also to keep it well supported by strong stomach muscles, also exercise, and limber, stretching exercises. I get lazy and stop doing all that and then go back to the back problems when glutened.

cap6 Enthusiast
cap6
Posted

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

Lesx2 Newbie
Lesx2
Posted

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

lower back for me... Massage, lots of water, and heating pad help me

twe0708 Community Regular
twe0708
Posted

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

Not now but I used to before I went gluten-free.

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Nadia2009 Enthusiast
Nadia2009
Posted

I get muscle spasms too and mostly in the back. I used to wonder what it was when I was still eating gluten. My mom has a lot of spasm like that but she isn't excited to go for the test. I think I will end up paying the test for my whole family if I want them tested :)

  • 2 years later...
diva2000 Newbie
diva2000
Posted

I had this happen to me really bad this week. I was getting back spasms for 3 days when I thought about taking an allergy pill. Just store brand chloriphenirine maleate, and it started relieving the spasms. I took it every 4 hours, and it got better and better. When I would forget, the back spasms would start up. After about 3 days of the allergy meds, it is getting to the point where I don't get the spasms when I forget a pill. Saved me big time! I thought I was going to have to go to the hospital.

  • 3 years later...
BeeGfree Newbie
BeeGfree
Posted

I am newly diagnosed as celiac and have gotten mid back spasms 3x in 2 weeks. The 1st time I ingested something I knew was gluten my mid back actually locked.  That was one of the reasons I went to my GP for it in the first place. This week I went to my chiro twice for it.  When I asked him how it could be connected to celiac he told me your duodenum which is right below your esophagus in the front has nerve endings that go to the vertebrae in the middle of your shoulder blades.  That was how I found out that the 2 are connected.  Chiropractic helps with immediate relief every time...

  • 1 year later...
LiseJoy Newbie
LiseJoy
Posted

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Victoria1234 Experienced
Victoria1234
Posted
2 hours ago, LiseJoy said:

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Unless the fried chicken says it's gluten-free and you know they fried it in oil that's only had gluten-free foods in it, you can rest assured your fried chicken had gluten.

welcome to the board!

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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