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Stomach/intestinal Pain....where Is Yours ?

NorthernElf

By NorthernElf
in Coping with Celiac Disease

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NorthernElf Enthusiast
NorthernElf
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

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greeneyes33 Newbie
greeneyes33
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

My pain has always been in the upper ab area. Sometimes over to the right side. I never had low intestional pain. I haven't been glutened in awhile, a good year I think....knock on wood!!!! I cant say whether there is a differece between straight glutening or cross contamination. I would think it would be the same. You are still getting glutened with cross contamination. Hope you feel better soon!

GFinDC Veteran
GFinDC
Posted

I get pain in my left side below the rib cage. That's the sharpest area, plus an all over generalized pain to round things out. I seldom have pain on the right side.

plumbago Experienced
plumbago
Posted

My pain is in the lower left, below the rib cage and just above the hip bone. When it's bad, and it hasn't been in a while, it is so severe that the only way to make the cramp go away is to grab that hunk of flesh. I don't know what that's doing when I do that, maybe some nerve, I don't know, but the pain goes away and then usually I can let go. It's awful, and it usually happens right before a BM (sorry).

I have a diagnosis since May, so I haven't noticed a difference yet between straight out consumption of gluten and CC.

(This to me represents a still unresolved issue of science and/or this forum: is there a difference in the quality and amount of gluten ingested. Some say yes, others say no that gluten is gluten no matter the source or the amount.)

shelly184 Newbie
shelly184
Posted

Just had a colonoscopy to figure some pain issues. Seems all is ok...been great for two weeks but now getting weird pains again. I'm thinking there is some cross contamination happening. I live in a household of 5...mom & the only celiac. So...trying to figure out if these pains are gluten related.

I believe there is a difference between straight out glutening pain and cross contamination pain. Straight glutening is way more involved, painful & longer lasting. Cross contamination is more variable. So the reason I had the scope was some pain in the upper right side and the lower right side. Pretty consistent in the lower right side but the upper right side was new. I had a gallbladder ultrasound and it looked fine...

So..I'm thinking it's celiac pain...anyone else get pain there ?!?!?

Hey Northern Elf,

That is exactly where I was getting pain, in my upper right side almost up under my bottom rib. Had the pain for about 9 years. Had colonoscopies, cat scan, nothing was found. I did not even know what Celiac disease was.

I finally changed doctors and was lucky enough to get a GI doc that actually did a biopsy during an endo for celiac disease and it came back positive. The doc asked me who else in my family has celiac disease and I was totally puzzled. Then I started reading and researching celiac disease and realized that my mother must have had it. She was told ulcerative colitis in the 1960s and she was always complaining about heartburn. Well she ended up dying from pancreatic cancer and 9 months later her first cousin died from the same thing. I truly believe it was undiagnosed celiac disease that killed them.

The pain in my side went away in 5 days and if I get accidentally glutened that knife stabs me in the side again.

Seashell01

MelindaLee Contributor
MelindaLee
Posted

I had the same pain, though more often in the upper right. They did a HIDA scan and during the process, it reproduced my pain. My GI decided I needed my gallbladder out, despite the fact that they said both the ultrasound and the HIDA scan was considered normal, becuase it reproduced this pain. It was during the endoscopy to rule out anything else (Cancer, etc.) before the gallbladder removal, that they found the celiac. I still had the gallbladder out, and feel much better (but also went on the diet at the same time)

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      Accuracy of testing concerns

      By knitty kitty · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

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    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
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      By trents · Posted

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