Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Supplements For Kids


srall

Recommended Posts

srall Contributor

My 7 year old is just now going through testing for Celiac as well as a host of other things. I'm pretty sure she's gluten and dairy (and) intolerant though, because she has responded to a gluten/dairy/corn free diet. For now we (pediatrician and myself) are calling her gluten intolerant while she is undergoing the other tests, which right now only involve blood and poop.

She is very vitamin B deficient and the pediatrician suggested giving her B-12 Energy Now (365) brand which I've been doing a couple of times a day. He didn't love that she was still eating gummy multivitamins as well as gummy calcium but thought that was better than nothing. She turns her nose up at chewables. Anyway, it's been several days with therapeutic doses of vitamin B and she still is looking very depleted, has mouth source and cracks in her lips. I do think her energy level is much higher though. I just can't get those darn mouth sores to clear up or the dark circles to go away.

One thing I did notice when I got home is that the Vitamin B is made is a facility that also produces wheat products. I have been also taking this vitamin B and have been more arthritic this weekend, but I don't know if it's trace amounts of wheat in the vitamin, or perhaps the awful on- the- run diet I've eaten the past week or so, with a few nights of wine thrown in...so I don't know the source of my pain.

Probably conventional wisdom would say I should switch to another B12 supplement. I am so frustrated that my daughter is in such poor health and I can't seem to get her healthy. What kind of vitamin supplements are kids here getting, and how long did it take to see improvements?

My daughter has been gluten free 6 weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

Hi and welcome,

Every persons recovery is different. That being said :-) My 7 yr old DD stopped having severe belly pains within 3-4 days but it took a good 2 months for them to stop completely along with the constipation she had for 1 1/2 years. I stopped all Miralax and Milk of Magnesia immediately and haven't touched it since and she's been gluten-free since April.

When she accidentally gets gluten it shows up within the hour and lasts about 12-24 hrs.

I was really worried at week 4 also, wondering WHY isn't she completely better. But i asked the same question on this forum and found it will take time, some people told me 6 months for their recovery.

Good luck

srall Contributor

Thanks Mizzo. I should have written that her belly pain is so improved and that's why the pediatrician was ready to call her gluten intolerant. It's just the other symptoms. I also am GI and have been gluten free for several months, so I know it's a long process. It's just a heartbreaking one when it comes to a child.

MacieMay Explorer

My 7 year old is just now going through testing for Celiac as well as a host of other things. I'm pretty sure she's gluten and dairy (and) intolerant though, because she has responded to a gluten/dairy/corn free diet. For now we (pediatrician and myself) are calling her gluten intolerant while she is undergoing the other tests, which right now only involve blood and poop.

She is very vitamin B deficient and the pediatrician suggested giving her B-12 Energy Now (365) brand which I've been doing a couple of times a day. He didn't love that she was still eating gummy multivitamins as well as gummy calcium but thought that was better than nothing. She turns her nose up at chewables. Anyway, it's been several days with therapeutic doses of vitamin B and she still is looking very depleted, has mouth source and cracks in her lips. I do think her energy level is much higher though. I just can't get those darn mouth sores to clear up or the dark circles to go away.

One thing I did notice when I got home is that the Vitamin B is made is a facility that also produces wheat products. I have been also taking this vitamin B and have been more arthritic this weekend, but I don't know if it's trace amounts of wheat in the vitamin, or perhaps the awful on- the- run diet I've eaten the past week or so, with a few nights of wine thrown in...so I don't know the source of my pain.

Probably conventional wisdom would say I should switch to another B12 supplement. I am so frustrated that my daughter is in such poor health and I can't seem to get her healthy. What kind of vitamin supplements are kids here getting, and how long did it take to see improvements?

My daughter has been gluten free 6 weeks.

What kind of test is your pedi doing with the poop? Besides the celiac blood panel and the biopsy I don't know of any other test that Dr's will do. Is there something new?

MacieMay Explorer

Have you given any thought to a probiotic or an omega supplement? That could help boost things.

How is her diet? Is she getting enough healthy fats? I think it's important for growing kids to get plenty of healthy fats. Olive and canola oil are great. We pop our own popcorn almost daily in canola oil. We put olive oil instead of butter on our corn pasta and rice. We are gluten and dairy intolerant so we don't get any fat from milk or cheese. I hope this helps.

srall Contributor

We are doing a probiotic but I don't know about omega supplements? I put flax seed oil in smoothies. Does that count?

The poop tests are to rule out parasites. Doc doesn't think that's causing the D but wants to rule it out. I can't remember what he said about the endoscopy. He was only going to do it if the blood test was positive? I don't understand that. Positive blood test to me answers that question.

Anyhow, my daughter was insanely crazy during the appt so it was hard to talk to the pedi. I'll call him back and talk to him on the phone.

srall Contributor

We are doing a probiotic but I don't know about omega supplements? I put flax seed oil in smoothies. Does that count?

The poop tests are to rule out parasites. Doc doesn't think that's causing the D but wants to rule it out. I can't remember what he said about the endoscopy. He was only going to do it if the blood test was positive? I don't understand that. Positive blood test to me answers that question.

Anyhow, my daughter was insanely crazy during the appt so it was hard to talk to the pedi. I'll call him back and talk to him on the phone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

We are doing a probiotic but I don't know about omega supplements? I put flax seed oil in smoothies. Does that count?

The poop tests are to rule out parasites. Doc doesn't think that's causing the D but wants to rule it out. I can't remember what he said about the endoscopy. He was only going to do it if the blood test was positive? I don't understand that. Positive blood test to me answers that question.

Anyhow, my daughter was insanely crazy during the appt so it was hard to talk to the pedi. I'll call him back and talk to him on the phone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,428
    • Most Online (within 30 mins)
      7,748

    thilbert
    Newest Member
    thilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.