Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd And Reflux


anerissara

Recommended Posts

anerissara Enthusiast

Just wondering how many people here also have reflux? It seems like it often goes along with celiac's. I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem. Does anyone else notice reflux increasing when they get glutened? And do you struggle with reflux as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jnkmnky Collaborator

When my son was an infant the reflux was wicked. He was on "baby zantac". Neither of my other children had reflux.

jknnej Collaborator

I have it and Nexium has saved my life.

Guest AmandasMommy

amanda and i both have it. dr said when shes on the dietfor a while it will go away. i hope so. and ive had it most of my life, i wish the drs would have known about celiac disease when i was younger.

rmmadden Contributor

I believe the two are inter-related. It just seems to make common sense when you think about it.

I actually started a topic on this a while back which you san see by going to Open Original Shared Link

Best of Luck!

Cleveland Bob B)

Guest AmandasMommy

yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

terryjean Rookie

Yes I have celiac disease with reflux along with asthma, diabetes, interstisial cystis, IGA deficiency. I take Nexium 40mg twice daily...... & pepcid as needed.

Terry

Dumont, NJ


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

I also have reflux and had surgery for it before Celiac was diagnosed. I am now being tested for Lupus because of all the joint pain and the fatigue.

steve-o Apprentice

I had a big problem with reflux, but since going gluten free, it has totally disappeared.

Officially, I don't have celiac disease (negative biopsy & bloodwork only showed elevated IgA Anti-Gliadin), so I've "challenged" myself a couple times, just to see what happens. As soon as I re-introduce gluten into my diet, the reflux comes back.

jknnej Collaborator

Terry,

Does Pepcid help when your reflux is really bad? The past two days I have had terrible heartburn and I do take Nexium once a day. I"m wondering if I need to up my dosage. I didn't know you could take Pepcid as well. Does it help? I've got to figure something out!

terryjean Rookie

Hi! I already take (2) 40mg Nexium daily .................. and add the pepcis to that when needed................... Yes it does help~

(1) don't eat and lay down

(2) don't eat before bed

(3)easy on spices

You can chck with your doc........... but this is what I was told! I also added 150mg of zantac before I went to the pepcid as per my doctor!

Hope it helps!

Hugs, Terry

Lesliean Apprentice

My presenting symptom was reflux and after 2 years of Pepacid I diagnosed thru Enterolab and the reflux went away within weeks of being gluten and dairy free. Also a congestion in throat and nose and ears went away. Only then did I realize all the gastro problems had not been normal. As well as irregular periods, heart rate...

KAthyB Newbie

My 19 yr old celiac daughter was up to 40mg nexium 2x daily and xtra strength pepcid 2x daily and a 3rd nexium if needed after a ph probe on meds showed that the usual dose was not blocking enough of the acid. She decided on her own to take a "drug holiday"....24 hours off meds...she learned that these "holidays" are often helpful in one of her nursing lectures...(never skip insulin)....she resumed the following day starting at one Nexium one hour before her dinner and the reflux is very much improved. She did this on her own....I would not recommend trying this without a doctor's advice...but she feel so much better...she was looking inot surgeries but was told that they are risky....she agrees that reflux is probably worse if she gets some gluten...this usually only occurs when she eats out and is not assertive enough about the cross contamination issues.

Kathy

  • 1 month later...
griffithkat Newbie
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have been to the hospital twice for reflux nothing seem to help. I went to the health food store and they gave me activated charcoal...It's a miracle.. I never go anywhere without some. It knocks the pain out within 10 minutes

judy05 Apprentice
Just wondering how many people here also have reflux?  It seems like it often goes along with celiac's.  I don't have a problem with it but my son gets reflux that hurts so bad it keeps him up at night whenever he gets wheat, and my daughter had reflux pretty bad as a toddler so I'm wondering if she might have the same problem.  Does anyone else notice reflux increasing when they get glutened?  And do you struggle with reflux as well?

<{POST_SNAPBACK}>

I have it so bad that I was diagnosed in 2003 with Barrett's Ring around the esophagus. I thought all I had was occ. heartburn. I urge all of you who have reflux to be "scoped" (endoscopy). This is nothing to fool around with, it can turn to cancer, especially in men. Just another thing we have to worry about. I take Prevacid every day and I have to be checked for the rest of my life.

judy05 Apprentice
yes i too have celiac disease with lactose intolerancy, acid reflux. although i am thirty somthing, and just found out, when i get back from vacation, im gonna have 13 blood tests, upper gi, sonagram and a colonoscopy.....yay :(

<{POST_SNAPBACK}>

Be sure you have the EGD if you haven't already!

Guest BellyTimber

Yes I get this sort of thing especially a cough that has lingered a couple of months.

Perhaps I need to get it checked alongside my migraines.

:rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,696
    • Most Online (within 30 mins)
      7,748

    Kerrie C
    Newest Member
    Kerrie C
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RDLiberty
      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
    • Gigi2025
      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.