Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Share This Glorious Moment

revenant

Recommended Posts

revenant Enthusiast
revenant
Posted

Hello :)

This morning I caught a show called "The Incurables". It was about a girl retelling her struggles with bipolar disorder, psychotic episodes and major depression. She was very suicidal. In the end, she discovered she was dairy and soy intolerant and was able to go off of all of her meds after removing these foods. Very good show!

I recorded it and watched it with my mom. My mom, who often does not believe that I am gluten, soy or lactose intolerant, or that it has much mental effect. It was too large an idea for her to comprehend. She watched it because my younger sister has bipolar disorder, aggression, depression, and psychotic episodes exactly like the girl in The Incurables. And, at the end of the episode, I took a chance and said "Remember how I used to have crying episodes and hyperactive episodes? Remember how I would overreact to everything you said to me? I haven't done that for months now".. And..she said "You might be onto something here" !!! SHE BELIEVES ME!!

Even better... It just so happens that today she was having a reaction to something (she is... carelessly gluten free, IE eating hamburgers off of the bun type of gluten free) and could relate all too well with the person in the show... And she said, that she wants to try doing this right because she has never felt completely relieved of her symptoms (she is heavily ADD, depressed, anxious, OCD, and her very high dosages of meds are no longer working). She now has high blood pressure, and her mental illnesses are ntot being controlled by the meds anymore.. So she is considering going dairy free!! (Because both her mother and all 3 of her children are lactose/casein? intolerant)

We had a huge talk about how it feels to have a reaction, get glutened or lactosed. And she actually listened to me when I described things like serotonin depletion, and how all of her symptoms are common, and what food intolerances can do, and such! It was also very nice for her to come clean to me about her own thoughts, how she feels in such detail, and I just love to listen and support her. This is a breakthrough! I finally feel understood!

(I can't garuantee that she will still think this way tomorrow, because these kinds of breakthroughs never last through to the next day with her, but it was a moment that I needed to have...)

So for all out there who wish their family would try a gluten or lactose free diet... Be an example. Be healthy and happy, and they will want to follow. Also make sure it is THEIR idea... show them something, an article, or a show...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Oh sweetie, I am so happy for you :D :D This is indeed a major breakthrough moment, a validation of your suffering, and of your self-diagnosis. I do hope she still recalls it tomorrow, and the next day, and the day after that! :) Make sure that show is saved, and if she forgets, show it to her again. :rolleyes:

Be thoughtful and helpful with her, help her to do it right without being reproachful or preachy and you two may be able to once again establish a normal mother/daughter relationship. I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

eatmeat4good Enthusiast
eatmeat4good
Posted

That is wonderful! I am so amazed when young people figure this out! And you really are wise to know how to approach others too. I am trying not to be preachy with my sister but I want her to feel better too. Your perseverence paid off with your mom. I'm gonna take your advice on how to approach this by making it their idea. Brilliant! And I am only 30 years older than you! ;)

kareng Grand Master
kareng
Posted

Yeah!!!!!!!! Happy Dance!!!!

Hope she still feels this way in a say or two. Keep the recorded show. Maybe she would like to re-watch important parts.

txplowgirl Enthusiast
txplowgirl
Posted

I'm happy for you Revenant, :D I pray your mother will be easier on you and your sister now. Keep up the good work and perhaps show that show to your sister too. Maybe it will help her also realize that she can get better. I'm keeping all of you and your family in my prayers.

wheeleezdryver Community Regular
wheeleezdryver
Posted

That IS a glorious moment!! YAY!! hopefully things will continue in such a positive manner!

revenant Enthusiast
revenant
Posted
  • Author

Haha thanks for the replies and support :) You are all so amazing.

Unfortunately it was a one-day kind of thing... I was again taken to see a social worker and again my mother said that I had an eating disorder because I do not eat dairy gluten or soy, she was once again oddly hysterical about it... They partially believed her too. The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gutsy Girl Rookie
Gutsy Girl
Posted

I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

Wow, you're only 17 and you're able to handle this peacefully?! GOOD FOR YOU!!!! I was NOT at this point until I was about 24 or 25 years old (26 now). :) (Don't let me puff up your head, now. LOL.) *HUGS!*

I'm happy for you and hope that over time, things will improve in your relationship with your Mom.

For the first time, my Mom is starting to see that it's not all in my head. My Mom got diagnosed with breast cancer this year and she's been going through a whole heck of a lot with that, including lots of pain now that she's never had before. Living my whole life with chronic pain, I was surprised when my Mom asked me almost a year ago "How do you deal with the pain on a daily basis?" I nearly fell over and knocked my teeth out! Her cancer has brought us closer together as I've been able to support her and show her my love through this struggle. She's grown personally as well. (My personal two cents in my own situation is that God has been changing our hearts and causing us to really LOVE each other more than ourselves, which is a miracle, as three years ago we couldn't stay in the same house for more than three days without killing each other.)

Best wishes!!

Gutsy Girl Rookie
Gutsy Girl
Posted

The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!

I have always hated that stupid phrase "when life gives you a lemon, make lemonade". Seriously...I hate that quote!!

But if you look at the social worker's statement POSITIVELY, you can say, "Yes, my life is out of control, I feel like *fill in the blank* and I want to live more normally. I believe that certain foods cause this discomfort (whatever your symptoms are) and that if I avoid the offending foods, I may feel better and feel more in-control of my life. This is a good thing, as I am taking responsibility for my health and wellbeing unlike many people twice my age, and I choose to see it this way."

I wonder what she'd say to that! :P Hahaha.

HUGS!!

mushroom Proficient
mushroom
Posted

Of course you are trying to control your life through your food - for those who are food intolerant that is the only way that life can be controlled. Can't you give this so-called social worker some references for reading on the foods your are intolerant of which might help her understand why you avoid those foods?? Only a fool eats things which cause them harm - and you can tell her that from me :ph34r::blink:

I am so sorry that you mom's moment of lucidity was only temporary :( Maybe the moment will occur when you can watch the tape together again. Is there any way you can surreptitiously cook her gluten free food so that she can see that she is not confining herself to a life of misery, but lifting herself out of a life of misery?

Or maybe you can take HER to the social worker and say "My mom is making me sick by trying to make me eat things which cause me harm?" :D Not so far out :lol:

However it works out, my ghostly friend, stay strong and know we love and support you. :wub:

plumbago Experienced
plumbago
Posted

Can you tell us more about The Incurables? Is there a web site? How can we access the particular program you reference?

Thanks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.