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New Symptom!

K8ling

By K8ling
in Coping with Celiac Disease

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K8ling Enthusiast
K8ling
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

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Jestgar Rising Star
Jestgar
Posted

My understanding is that pregnancy changes everything. :P

jerseyangel Proficient
jerseyangel
Posted

Could they be caused by the virus (cold) you had?

K8ling Enthusiast
K8ling
Posted
  • Author

Could they be caused by the virus (cold) you had?

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

jerseyangel Proficient
jerseyangel
Posted

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

I've had something like that after a cold--like a cold sore but inside the mouth. It hasn't happened to me in years--I was under a lot of stress when it would happen.

Lisa Mentor
Lisa
Posted

Yes, there is some research that links cold sores or mouth ulsers to Celiac....now, to put my finger on it? :huh:

From PubMED:

Aphthae are seen in patients with hematinic deficiency (iron, folate, or vitamin B12); celiac disease; Crohn's disease; HIV infection, neutropenia, and other immunodeficiencies. The mouth ulcers in Behçet's syndrome are often major aphthae with frequent episodes and long duration to healing

Diagnosis of aphthae is based on the patient's history and clinical features because specific tests are unavailable. A full blood chemistry (hemoglobin level, differential white cell count, and red cell indices), iron levels, and possibly red cell folate and serum vitamin B12 measurements, and other investigations may help exclude systemic disorders. Biopsy is rarely indicated.

srall Contributor
srall
Posted

My daughter and I both had mouth ulcers which going gluten free has cleared up.

Good luck on that gluten free baby btw

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rainer83 Newbie
rainer83
Posted

I used to get those when I used to use lipgloss made with wheat germ. I also used to use shampoo with wheat germ and it would made my scalp so itchy, my teachers used to think I always had lice.

cap6 Enthusiast
cap6
Posted

mouth ulcers were a big deal with me before going gluten-free. I would get 8 or 9 at a time. I still get them once in awhile but since going gluten-free they never ulcerate to the point of total pain. Good luck with your little bun.

SGWhiskers Collaborator
SGWhiskers
Posted

Look into hand foot mouth disease (not hoof and mouth disease). It is a coxsackie virus that causes prolific mouth ulcers along with a cold. I had the type that does not cause hand and foot spots, just mouth ulcers and the cold. I was as sick as ever with that virus. I don't remember if it caused GI problems as well, but I do remember a really bad GI issue sometime that year. It was 7 years ago now. If I didn't have mild celiac symptoms all growing up, then that virus was certainly the triggering event for my celiac. And if you google it, remember I was a school employee at the time working with kindergarteners and elementary kids. When I went into the doctor, he called his student in to see because the spots on my tonsils looked like strep, but then I had ulcers on the roof of my mouth as well which we learned was a hallmark of coxsackie vs. strep.

Skylark Collaborator
Skylark
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Eilidh Newbie
Eilidh
Posted

Hey,

So I get mouth ulcers...but really badly. I only get one or two at a time and they last for up to 2 1/2 weeks! They are EXTREMELY painful and I end up eating very little food when I have them. The form that I have is called Aphthous ulcers. They are an auto-immune infection that often occurs when you have a low immune system. SO, when you get sick, or get cross-contamination, or eat gluten, your immune system has to work a lot harder to deal with the gluten and leads to low levels of immunoglobulin in the oral mucous membranes. Then if you end up injuring the inside of your cheek, your body has a very hard time replenishing your oral mucous membrane....leading to a canker sore or mouth ulcer.

Thats at least as much as I could find out. They are not contagious, and so you didn't contract it from the kid with the cold.

As for the pregnancy... celiac has been known to effect women getting pregnant, because the body takes such a long time to heal. When my mom was trying to get pregnant with me (before she knew she was celiac)she went to the doctor and he said that she wasn't absorbing nutrients, and to eat a lot of ice cream...and it worked. It might not be it...but it is all I can suggest.

I hope this helps a bit.

Good luck with the baby,

Eilidh

Danig5 Newbie
Danig5
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

I am new to this blog thing but I have Celiac and in the past I have had horrid ulcers that required medical attention they have since disappeared now that I know what is wrong with me. :) best of luck

Marz Enthusiast
Marz
Posted

Heya,

I don't think I got full on ulcers, but I did have problems with biting my cheeks, and having the sore stay around for several days. Nowadays I have a sore spot for an hour and then I'm all better :)

K8ling Enthusiast
K8ling
Posted
  • Author

Thanks guys! This hung out for about 2 weeks and then FINALLY went away. It was quite difficult to eat!

I went to the doctor again yesterday and I am showing physical symptoms of being pregnant so they gave me a blood panel and a hormone shot (getting pregnant isn't an issue but staying pregnant is) so I am at home on partial bed rest.

Thanks for all the help guys! I'll keep you posted!

cyberprof Enthusiast
cyberprof
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Ditto.

I eat lots of extra garlic (raw preferred) which stings a bit but helps them heal faster.

Good luck! I hope you have good news on the baby soon.

SoyBoy Rookie
SoyBoy
Posted

B-complex deficiency can cause mouth ulcers, and of course is common with Celiac. Since you are working on getting pregnant, do you happen to be taking folic acid supplements? I think I remember reading somewhere that folic acid may mask some B12 deficiency symptoms, and may even lower B12 levels. I

K8ling Enthusiast
K8ling
Posted
  • Author

Yep! Def taking B6 and a prenatal (gluten-free of course).

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    • Jmartes71
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      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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