Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mythbusters Gluten Submission Campaign

domesticactivist

Recommended Posts

domesticactivist Collaborator
domesticactivist
Posted

Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CrunchyChristianMama Newbie
CrunchyChristianMama
Posted

Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: Open Original Shared Link

The person who responded to your thread on there needs some serious Celiac education!

domesticactivist Collaborator
domesticactivist
Posted
  • Author

The person who responded to your thread on there needs some serious Celiac education!

Yeah. I wrote this back:

domesticactivist

Junior Member

Registered: 01-10-11

Posted 01-10-11 05:31 PM

Wolicki Enthusiast
Wolicki
Posted

That guy's post really irritated me. Made me (just for a moment) wish that he was a very sensitive celiac being told that his actions seem extreme. Butthead :angry:

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

domesticactivist Collaborator
domesticactivist
Posted
  • Author

Here is another related thread: Open Original Shared Link

kareng Grand Master
kareng
Posted

I registered as gfKaren. He just wants to argue. It had nothing to do with the question really.

"Why are you being so argumentative? Questioning the ladies illness? All she and her kids wanted to know was at what temperature a wheat gluten protein incinerates. We have heard that it is a big sturdy molecule that can withstand temperatures that would destroy other proteins. Debating with us whether 1 molecule can make us sick has nothing to do with the topic and request."

FooGirlsMom Rookie
FooGirlsMom
Posted

Yeah I noticed that response or two you got was pretty grouchy. I have never heard anyone bicker with someone about a diagnosed medical condition - let alone completely miss the point of the post. All you wanted to know is how hot does the water have to get to destroy gluten and can it hang around with normal washing & still contaminate someone.

Brother!

FooGirlsMom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

No...none of us here are ever butt heads! :P

I think everyone should go on there and back her up! C.com against Buttheads!

domesticactivist Collaborator
domesticactivist
Posted
  • Author
:) don't forget to maintain the high ground. Buttheads usually just end up making themselves look bad, anyway.
gary'sgirl Explorer
gary'sgirl
Posted

I just posted a comment under the name gfSarah. I'm afraid after I posted I saw that I was a little long winded and preachy, but, oh well. :rolleyes:

I wish people would be more understanding and encouraging about what we have to do to stay healthy. It's not like it's easy or something we do just cause we want to.

BeHappy Apprentice
BeHappy
Posted

Wow. What's his problem? Does he even know what Celiac is?? Some people need to find a hobby... Just ignore him. Don't even give him the negative attention. He doesn't deserve it. Let's all just keep writing that we have seen some serious regression. Some people.... Sheesh.

modiddly16 Enthusiast
modiddly16
Posted

That guy is a total creep. I had to stop reading because I was getting ready to post something pretty fierce.

kareng Grand Master
kareng
Posted

I looked around. The guy is an "expert" on everything. He gets his info from Wikipedia which is not always accurate. He must be pretty old because he said "wet hen party". I'm not sure anyone under 80 would use that term.

Anyway, ignoring him will probably frustrate him the most.

domesticactivist Collaborator
domesticactivist
Posted
  • Author

You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!

kareng Grand Master
kareng
Posted

You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!

Don't you get a really big Billy Goat to head butt him off the bridge? :P

Dixiebell Contributor
Dixiebell
Posted

A quote from lynnelise that speaks volumes to me:

"I think one reason that people like to think that stuff like this only exists in our mind because to admit that it's real would be admitting it could happen to them."

It irritated me. My son and I are not 'offically diagnosed' but we know we can't eat it.

This may be this guys hobby. Maybe he likes to stir up $h#t.

kareng Grand Master
kareng
Posted

I thought about saying this but decided not to engage him anymore.

Do you have a food, like green peppers (for example) that you have figured out disagrees with you. Everytime you have an omlette with gps, you have gas and belch all day? If you have the omlette without the gps, you do fine. You have figured out GPs are bad for you and you try to avoid them.

Some people try no gluten for a couple of weeks and feel much better. They donot want to make themselves or thier child feel sick again by eating gluten to get a blood test.

An endoscopy done right away might be informative. The main problem with that procedure is that it isn't a good diagnostic tool for someone in the early stages unless they are lucky. According to your beloved Wikipedia, the average adult small intestine is 16 feet. If 20% is damaged and most GIs take 3-6 biopsies, what are the odds that the GI might miss and only biopsy healthy tissue? I don't know. Someone can do the math. (Never heard of a decent GI doc, musch less a pediatric one, that can get you in in less than 1 month, just my observation)

The problem with the "little bit won't hurt you theory" is that little bits add up. Wikipedia says we can consume 500 units(?) per day and not cause any immune rsponse. Great! That becomes the standard for gluten free. Now we have food labelled gluten-free at 400 units per serving, below the Govt standard. I eat a sandwich of gluten-free bread for lunch - each 1 slice serving is 400 units. Silly me, I use 2 pieces to make my sandwich. I am already over the limit for my day. I didn't even eat 2 gluten-free cookies (2 cookies = 1 serving, gluten 300 units) for dessert yet or figure in the accidental crumb from my kids whole wheat sandwich. This is why it is so important to eliminate every crumb you can, because they add up. This is also why a much lower standard of gluten-free is important.

That's all I'm going to say.

modiddly16 Enthusiast
modiddly16
Posted

Using the term "wet hen party" just made me laugh. :D

GFinDC Veteran
GFinDC
Posted

Well, here's my MB show suggestion. A little sexiness should help get people interested in the topic.

****************************************************

Ok, here is one I'd like to see MB test. Can a person be exposed to enough gluten to get sick from kissing a gluten eater who hasn't brushed their teeth? Say your significant other just drank a heavy German beer and wants to smooch you up. Can a celiac get sick from kissing them? Celiac sites I have read suggest the answer could be yes, if the beer drinker hasn't brushed and rinsed/gargled first. But is there enough residual gluten transferred from a kiss to make a celiac sick?

The US FDA is still considering their rules for labeling foods gluten free although by law they were supposed to be final years ago. Their proposed standard is less than 20 ppm to label a food gluten free. So, does a gluten kisser transfer 20 ppm or more to another person? Of course this test doesn't have to be done with real celiacs. If a method of collecting the gluten from the kissee's mouth and measuring it is used, it doesn't matter if the person is celiac or not. The amount of gluten transferred is the question.

We all know lipstick can get transferred during a kiss, why not gluten (gliaden)?

****************************************************

domesticactivist Collaborator
domesticactivist
Posted
  • Author

I love it :)

kayo Explorer
kayo
Posted

Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

irish daveyboy Community Regular
irish daveyboy
Posted

Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

Personally Myth Busters only want things you can crash, drop, burn, make explode, float, fly and gluten doesn't fit into any of those catergories.

There are 2 Hopes of getting anything to do with Gluten featured.

1. Bob Hope

2. No Hope

David

domesticactivist Collaborator
domesticactivist
Posted
  • Author

It's a long shot but I have seen episodes where they had segments that didn't involve crashes or explosions. The tight jeans come to mind. I imagine they could incinerate stuff for this one. That could be fun. The thread I started has well over 1000 views and three checks for ratings. Which is way more than most threads. That plus a troll test indicate controversy around the subject. Seems there is interest.

GFinDC Veteran
GFinDC
Posted

I agree, explosions are something MB always find a way to fit in. Big kids get big explosions! They could blowup a truckload of wheat and test the remains for gluten. I wouldn't cry over some destroyed wheat. :)

modiddly16 Enthusiast
modiddly16
Posted

I do love Bob Hope...maybe we should try him :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.