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Has Anyone Used The Myceliacid Kit

jsmjboertlein

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jsmjboertlein Rookie
jsmjboertlein
Posted

I would like to eventually test my whole family. Has anyone used it and wss it accurate?

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domesticactivist Collaborator
domesticactivist
Posted

I considered it but decided to go with Kimball since they return more information and the kids' insurance will pay since the tax ID they bill with is Labcorp's. My insurance won't pay so I'm leaning toward enterolab and getting the stool sample tests for myself through them as well (package deal for lower cost)

jsmjboertlein Rookie
jsmjboertlein
Posted
  • Author

great thanks!

Skylark Collaborator
Skylark
Posted

I would like to eventually test my whole family. Has anyone used it and wss it accurate?

It is only a genetic test, not a celiac test. All it does is gives an idea of risk. Have you considered asking your Dr. to celiac screen your family or do folks not tend to have antibodies? Anti-TTG is a really common screening test and while it can be false negative, a positive indicates celiac. A positive genetic test only indicates risk.

Prometheus is a very good genetic lab and the testing is nice because they look at both alpha and beta chains. Unfortunately, they only tell you whether or not you have the "celiac" DQ2 or DQ8 sequences, or "no celiac genes" rather than telling you which non-celiac genes they found.

The other commonly used lab is Enterolab, who genetic tests through Red Cross. Enterolab does not test alpha chains but they do tell you all your beta chain results. The problem with not testing alpha is it's hard to identify people who are DQ2.5 trans (a celiac gene where alpha comes from one parent and beta from the other).

domesticactivist Collaborator
domesticactivist
Posted

I don't know about the others but I want to mention that Kimball Genetics (Labcorp) has free genetic counseling for customers. I talked with a woman there yesterday about Turner's Syndrome and she was very helpful. I plan to call back when I get our celiac screening results (maybe today!) for the kids.

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