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Diagnosed Celiac For Almost A Year. Now Is This Ibs? Parasite? Complete Gi Failure?


CantWeight

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CantWeight Rookie

I am feeling desperate tonight. celiac disease diagnosis about 10 months ago, been gluten-free/CF since. Tested intolerant to cow and goat dairy, eggs and whites, corn and a few others over the last few months. Around the holidays I ate some treats with dairy or egg as ingredients. Didn't bother me in an obvious way but I know I am intolerant and suffer from chronic sinusitis so generally don't touch the stuff to try to keep well (although cravings have been oddly intense).

Last few weeks noticed big increase in fatigue, more constipation, burping gas, lower left abdominal pain just below bottom of rib. Last week several days of serious nausea, thought hormones/PMS. Pain in abdomen became somewhat worse after the weekend, realized it wasn't from exercise. Monday, about an hour after exercise I suddenly felt awful and started throwing up so I just went to the ER. They did contrast CT scan and saw spasms and several blockages of waste. Prescribed some super powerful muscle relaxer and to take a load of over-counter fiber. Next day I felt a bit better, yesterday was more normal. Today (Thursday) drank my AM protein drink, did moderate exercise, an hour later vomit then whole day serious nausea and some vomit. I'm seeing my GI tomorrow but I'm hoping for an idea on how to feel better now. And, any ideas on what to investigate?

I hate the muscle relaxer elixir (contains belladonna, phenobarbital, etc) so I haven't used it since yesterday afternoon.

I wonder if the vegetable and rice protein drink is off? Or the almond milk I used? This protein drink is new to me, made by Jarrow, I've used it for about 3 weeks, never noticed any odd sickness until this week but maybe it has been building up. I used to drink Biochem Vegan protein drink and always would have to eliminate pretty quickly after exercise, maybe I am intolerant to pea protein? Would that make me sooooo ill like this?


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GFinDC Veteran

You can develop an intolerance to any food, doesn't matter what it is called. I can't do carrots or turnips myself. Which I find a bit odd cause I don't see many people having those a problems. Ah well, that's how the cookie crumbles.

If you suspect the protein drink, take it out. It's that simple.

But make a list of all the ingredients too so you can investigate each of them individually later if you want too. All the ingredients are possible suspects if removing it solves the problem. Don't assume it is just one ingredient either, it could be two. If I were you I wouldn't replace it with another protein drink until things have cleared up. Say a couple weeks or a month later try another one if you really want to. There are other ways to get protein after all, like eating real food. I hope things work out for you. :D

mushroom Proficient

maybe I am intolerant to pea protein? Would that make me sooooo ill like this?

I became intolerant to legumes long after I went gluten free. Probably because I gave up nightshades and was eating too many beans and peas instead :(

CantWeight Rookie

thanks for your feedback. I've searched the forum a few times for others with similar experiences but there are so many posts that contain "nausea" and they are submitted by undiagnosed people/newbies asking if it is a symptom of Celiac Disease :blink: so your help is appreciated! :)

yeah, I'm starting to suspect that I've developed another intolerance. not sure to what food but I'm going to go back to basic homecooked red meat/chicken/pork/fish and green vegetables to see how I feel after a few days. I'll eat smaller meals with more veg than meat. less nausea today and no vomiting. GI doc ordered a barium test of esophagus and stomach for next week. I still have mild pain in my lower left abdomen that is probably due to some blockage in my colon so doc prescribed over the counter mild lax to help clear out. she also prescribed anti-nausea med but I'll try to do without over the weekend while I figure out what to eat.

dilettantesteph Collaborator

I'd check new things in your diet. Something might be cc'ed.

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    • trents
      @pilber309, as knittykitty pointed out, lactose intolerance is not the only issue with dairy in celiac community. Lactose intolerance has to do with the sugar component of dairy, lactose. However, some celiacs react to a protein fraction in dairy, namely, casein, like they do gluten.
    • pilber309
      Stop eating oats as it did give me irritation.The only diffrent thing i have been consuming are a new probitics which seem to have a fruit ive never heard of as a prebiotic
    • cristiana
      It could well be a new intolerance developing.  Does your diet incorporate pure oats i.e. those safe for coeliac consumption?  I find I can only tolerate a certain amount, same goes for dairy in fact, then I start to get gastric symptoms.   Or have you started consuming a new type of gluten-free bread, or more gluten-free bread than normal, that might contain oats?  I remember reading a post on this forum from a woman who had started to eat a lot of loaves made with oat flour and her coeliac symptoms kicked off again.  I am sure you know this, but some coeliacs cannot tolerate pure oats.
    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
    • pilber309
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