Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Head Aches ,migranes


davidsmomceliac12

Recommended Posts

davidsmomceliac12 Newbie

My son David has celiac disease and suffers from head aches/migraines we are having a very hard time controlling these head aches and have been on many meds now we are on a anti depressant that is meant to do both migraines and depression so far it has worked and but he is still getting head aches and very pail looking sooo i was hoping someone out there has a more natural approach to this and can give me some in site.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cypressmyst Explorer

I read on another post you made that he is sensitive to airborne gluten. If you want his headaches and depression to get better I would suggest taking the whole house gluten free. No way a hyper can live in a gluten environment without feeling it.

School is a whole different animal. I feel for you here because what can you do? Take him out? Homeschool him? Or work to educate the world that gluten is poison for not just people with Celiac but for almost everyone.

I'm working on the latter. Let's get this poison out of our food supply already! B)

T.H. Community Regular

I'd put him on an elimination diet - my daughter and son both had trouble with other foods on top of the gluten, and they turned out to be more sensitive to gluten than most of the gluten free foods were (my daughter reacts to <10ppm of gluten, and most gluten-free food has <20ppm). The depression along with the migraines makes me think undiscovered gluten may still be the cause.

Has his thyroid been checked? It's often a problem for celiacs, and can also cause depression.

You might try to google 'migraine diet' for him - it suggests foods that are more likely to trigger migraines (and if your doctor has not suggested this? I'd get a new one. Food triggered migraines are very common, and, obviously, easily fixed by diet).

Also, a rather odd one - do you have a water softener? there are some people who react to higher levels of sodium in their diet with migraines. You could try him on distilled water for a while and see if that helped.

weluvgators Explorer

Have you checked all of his medicines to ensure they are gluten free?

We also have to live gluten, dairy, and soy free, as we found other foods that cause us reactions too. We also have to live very gluten free - a gluten free household, cleaning protocols for anyone that enters our home, modifications at school to reduce environmental gluten exposure, and careful sourcing of ALL of our foods.

We have not noticed any problems with paper at school, but one of our children cannot eat in the cafeteria and cannot be in the gymnasium on a daily basis - especially during that recess after lunch. Both of my children require a gluten free classroom, but the actual practice of that is a bit different for both . . . and one of them doesn't truly have a gluten free classroom, as it is logistically challenging. We manage their school based on symptoms, have tried several things, and keep the things that work.

Do you have any pets in the home? How about farm animals? Those are other potential sources of problems.

And while it may not be a problem for him yet, he will need to evaluate the risks of kissing anyone else as he gets older. And actually, that may be a problem now if other family members are gluten eaters (thinking pecks on the cheek there). I would also go through and review all toiletries and cleaning agents as well.

Our daughter's daily headaches seemed to be function of ingesting trace gluten (all in "gluten free" products). This is such a long, exhausting journey. Hopefully, we are able to help you through it all.

And if you are resistant to Mayo, have you called the Chicago Celiac Center? I have called all of the research centers trying to figure out which one would work well for us. So please don't hesitate to call these places for interviews before making a trip there!

Good luck! And I hope your son is feeling better soon.

frieze Community Regular

If this were a 12 yr old female, we would be right on top of suggesting hormones being a potential problem....might they not be in a 12 yr old male as well?

twe0708 Community Regular

My son David has celiac disease and suffers from head aches/migraines we are having a very hard time controlling these head aches and have been on many meds now we are on a anti depressant that is meant to do both migraines and depression so far it has worked and but he is still getting head aches and very pail looking sooo i was hoping someone out there has a more natural approach to this and can give me some in site.

My daughter was the same way around that age and we found out she had a problem with her thyroid.

ryebaby0 Enthusiast

My 17 y.o. had horrible migraines (aura, blind in one side of his face, 2 -3x/month) but his doctor prescribed magnesium and he has not had one since. He takes 400mg two times a day. Migraines are not uncommon in adolescents, it turns out. More than other conditions, what works for one person might not work at all for another, so keep trying stuff.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

My daughter diagnosed with Celiac and Eosinophilic Esophagitus was being reffered to a nuerologist for the possibility of abdominal migraines. I'm not sure how I feel about the diagnostic process of abdominal migraines and we are stuck in the middle of an insurance change too. I do think an elimination diet might help determine if there are any "trigger" foods to avoid.

Keeping my daughter out of the brick and mortar school building has helped a lot. You can still do "public" school as a "homebound student" or public cyber school. (Both of these options are free and accredited.)

GreennGlutenFree Newbie

When I hit puberty I started getting migraines as well... I wasn't diagnosed until I was 23 with celiac disease but to this day if I have caffeine or sugar substitutes (ie "the blue stuff" or "the pink stuff") I get a migraine. There are a million and one things that could be triggering the migraines so elimination diet is probably the key even though they are hard. Good luck!

Cypressmyst Explorer

Sugar and gluten are your most likely culprits. Sugar messes with magnesium uptake, among other things, if I recall (Been a while since I read up on sugar) and of course gluten is the Devil and messes with everything. :blink:

Could be as simple as adding some almonds to your diet! ;)

Elimination diet is a good plan.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,611
    • Most Online (within 30 mins)
      7,748

    Rotary
    Newest Member
    Rotary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.