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Lab Results Interpretation


mariefnp

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mariefnp Newbie

Like others who have posted their results, I would like to ask a question on mine.

My GI only tested tTg iga which mine was normal (<2) or negative.

Quantitative serum IgA (again mine was in normal range)

and he did the gene test - forgot the exact name but DQ2 was negative, and DQ8 positive.

Please can anyone tell me whether I should pursue this further? (I would go to a different GI guy). My GI guy reluctantly did the tests saying - your symptoms are all IBS...and brushed me off. I can't stand doctors like that.

I haven't gone gluten free yet; but with one positive gene, do you think my husband and children (all grown) should get tested? My husband is having an upper endoscopy in a few weeks for new onset heartburn (He has same GI guy - great!!) My GI guy said when he scoped me 3 years ago (to rule out an occult GI bleed) he biopsied for celiac and it was negative - I didn't think to ask him HOW MANY samples he took!!

I'm not sure where to go - pursue further labs, or seek another GI doc, and have him/her do endoscopy.

I have the advantage to be located near the Beth Israel Hospital in Boston, which has its very own Celiac Center/Unit! I'd probably go there.


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ravenwoodglass Mentor

If your present GI thinks he can rule out celiac based on a 3 year old endoscopy then it would be a good idea to find a different doctor. Just because a test was negative 3 years ago does not mean it would be negative today. If you want a doctor derived diagnosis do keep eating gluten and go to someone else. After all testing is done do give the family a good strict try on the diet no matter what the test results. Sometimes the body can clearly tell us what tests cannot.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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