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Lab Results Interpretation

mariefnp

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mariefnp Newbie
mariefnp
Posted

Like others who have posted their results, I would like to ask a question on mine.

My GI only tested tTg iga which mine was normal (<2) or negative.

Quantitative serum IgA (again mine was in normal range)

and he did the gene test - forgot the exact name but DQ2 was negative, and DQ8 positive.

Please can anyone tell me whether I should pursue this further? (I would go to a different GI guy). My GI guy reluctantly did the tests saying - your symptoms are all IBS...and brushed me off. I can't stand doctors like that.

I haven't gone gluten free yet; but with one positive gene, do you think my husband and children (all grown) should get tested? My husband is having an upper endoscopy in a few weeks for new onset heartburn (He has same GI guy - great!!) My GI guy said when he scoped me 3 years ago (to rule out an occult GI bleed) he biopsied for celiac and it was negative - I didn't think to ask him HOW MANY samples he took!!

I'm not sure where to go - pursue further labs, or seek another GI doc, and have him/her do endoscopy.

I have the advantage to be located near the Beth Israel Hospital in Boston, which has its very own Celiac Center/Unit! I'd probably go there.

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ravenwoodglass Mentor
ravenwoodglass
Posted

If your present GI thinks he can rule out celiac based on a 3 year old endoscopy then it would be a good idea to find a different doctor. Just because a test was negative 3 years ago does not mean it would be negative today. If you want a doctor derived diagnosis do keep eating gluten and go to someone else. After all testing is done do give the family a good strict try on the diet no matter what the test results. Sometimes the body can clearly tell us what tests cannot.

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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