Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

B12, Pre-Mature Grey, Celiac?


Emma-Lee

Recommended Posts

Emma-Lee Rookie

Hello. I was only recently diagnosed with Celiac. As I have been reading many articles here and online I am curious about the relationship between Celiac and grey hair. I have not been tested for vitamin deficiency levels yet, as I was literally just diagnosed. I am meeting with my doctor again in 2 weeks so we can see how I am doing with my new gluten-free diet.

I have had pre-mature grey hair since I was 12, I am 28 now. I have never been tested for vit B-12, and this may very well be hereditary as my father started to grey at around 25. I have read some articles about a link between grey hair and B12. Similarly I have read some on Ceilac and B12 issues. This may not be a mathematical equation "if a=b, and b=c then a=c," but I am curious if anyone can give me feedback about links btwn grey hair and Celiac.

I may be throwing in something off the wall, but am curious as well. I probably will request a B12 test in 2 weeks.

Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
Smith & Truslow



Celiac.com Sponsor (A8-M):
Daura Damm


mommida Enthusiast

There is a link between Celiac and Pernicious anemia (a lack of the intinsic factor in the gut lining to properly absorb vitamin B12).

Emma-Lee Rookie

There is a link between Celiac and Pernicious anemia (a lack of the intinsic factor in the gut lining to properly absorb vitamin B12).

Do I ask my doctor for B12 test or a pernicious anemia test? I am very new to this and have not had 1 test beyond Celiac yet. I am making a list for my doctor. Thanks for the info!

Fire Fairy Enthusiast

I started noticing gray hair at 17. Now at 36 I have a lot silver threads, people think I get my highlights done. :D I used to be upset about it and started dying it at 17 but since I don't know of any gluten free hair dye and I can't afford to have it done in a salon, I'm calling my hair color "recession gray".

Good for you making a list for the Dr. Very good idea.

shopgirl Contributor

I've had little streaks of white hair since I was a teenager too — I'm 27 now. I actually love it and can't wait to have more. I think gray and white hair is gorgeous. But I don't think it has anything to do with Celiac.

But definitely ask your doctor for a complete vitamin panel including the usual suspects like iron, B, and D.

Edited to add: All of my vitamin levels checked out after my diagnosis. My B12 numbers were well within normal range and I still have the silvers. :)

cassP Contributor

i think grey hair is part genetics, part disease link, and possibly diet related too.

i hate to sound like a broken record- but you should get fairly routine Thyroid panels done-> as Thyroid disorders can be common with Gluten Intolerance AND-> can cause premature greying.

ive never heard of B12 def. contributing to grey hair- but i dont know everything.

imho: as a Celiac or Gluten Intolerant: your basic tests you need to be getting are: B12, vit. D, Iron, & Thyroid. these issues seem to be the most common with gluten intolerance. definitely get these done.

im not sure if there's a pernicious anemia test-> or if the doc can just tell by the B12 levels???

rosetapper23 Explorer

See my next post....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
NutHouse! Granola Co.
Food for Life



Celiac.com Sponsor (A8-M):
Smith & Truslow


rosetapper23 Explorer

From my past research, I learned that graying of the hair is caused by the depletion of catalase. Unfortunately, simply taking catalase supplements may not do the trick (don't be fooled by the many products on the market that state that taking their catalase supplement will stop the graying process). Depletion of catalase occurs naturally throughout our lifetimes. However, its levels are maintained by specific minerals, and it has been conjectured that if the levels of those minerals are maintained, catalase will also remain high. Those minerals are zinc, manganese, copper and selenium. I can attest to the fact that when I was accidentally glutened last April, one of the symptoms that appeared soon after was hairloss and the sudden growth of many gray hairs. I also appeared to have other symptoms of being deficient in zinc, manganese, and selenium. I supplemented with chelated amino acids forms of zinc and manganese (and I took copper, too, since it's needed if you take zinc supplements), and all of my symptoms improved except the graying. I tried taking selenium from various manufacturers, but couldn't tolerate it at all. I suspect that I'm very low in selenium....but what can I do?

Anyway, perhaps you're able to tolerate all of these minerals--good luck to you! And if fewer gray hairs appear, please share that fact with us here on the Forum.

cassP Contributor

From my past research, I learned that graying of the hair is caused by the depletion of catalase. Unfortunately, simply taking catalase supplements may not do the trick (don't be fooled by the many products on the market that state that taking their catalase supplement will stop the graying process). Depletion of catalase occurs naturally throughout our lifetimes. However, its levels are maintained by specific minerals, and it has been conjectured that if the levels of those minerals are maintained, catalase will also remain high. Those minerals are zinc, manganese, copper and selenium. I can attest to the fact that when I was accidentally glutened last April, one of the symptoms that appeared soon after was hairloss and the sudden growth of many gray hairs. I also appeared to have other symptoms of being deficient in zinc, manganese, and selenium. I supplemented with chelated amino acids forms of zinc and manganese (and I took copper, too, since it's needed if you take zinc supplements), and all of my symptoms improved except the graying. I tried taking selenium from various manufacturers, but couldn't tolerate it at all. I suspect that I'm very low in selenium....but what can I do?

Anyway, perhaps you're able to tolerate all of these minerals--good luck to you! And if fewer gray hairs appear, please share that fact with us here on the Forum.

interesting about the Selenium... as Selenium deficiency often occurs in those with thyroid disorders. i did a ton of research after my Hashi & Grave's dx... and Selenium is the number 1 thing to take to help. instead of taking the supplement- i opted for eating 3 Brazil nuts a day. or 2. its been stressed that you can overdose on selenium very easily and that it can be very dangerous- that is why i only eat 3 maximum a day.

IrishHeart Veteran

Hello. I was only recently diagnosed with Celiac. As I have been reading many articles here and online I am curious about the relationship between Celiac and grey hair. I have not been tested for vitamin deficiency levels yet, as I was literally just diagnosed. I am meeting with my doctor again in 2 weeks so we can see how I am doing with my new gluten-free diet.

I have had pre-mature grey hair since I was 12, I am 28 now. I have never been tested for vit B-12, and this may very well be hereditary as my father started to grey at around 25. I have read some articles about a link between grey hair and B12. Similarly I have read some on Ceilac and B12 issues. This may not be a mathematical equation "if a=b, and b=c then a=c," but I am curious if anyone can give me feedback about links btwn grey hair and Celiac.

I may be throwing in something off the wall, but am curious as well. I probably will request a B12 test in 2 weeks.

Thanks in advance.

My B-12 was tanked and I was going grey by 28. I did not think anything about either of these factors until I got very ill in 2008 (when I was 51) and went downhill for 3 years until I read about the many symptoms of celiac. Now, I can tie a whole slew of health issues/symptoms to celiac disease.

My Dad suffered from anemia his whole life and now, we can tie his other health problems to this disease as well.

You definitely want to have your B-12 level checked and your thyroid levels. But I think we drove that one home to you on your another post about having babies!! :)

Taking a list of questions to your doctor is a great idea!! Being pro-active is the thing that saved me from further decline (meaning I was persistent and wouldn't take being dismissed ) :D and it will serve you well too! Good luck.

rosetapper23 Explorer

Good information on the selenium--thanks! I have Hashimoto's, which I've treated with Armour Thyroid for the past three years. I'll try eating the brazil nuts--as I recall, they're not too hard (have extremely brittle teeth).

cassP Contributor

Good information on the selenium--thanks! I have Hashimoto's, which I've treated with Armour Thyroid for the past three years. I'll try eating the brazil nuts--as I recall, they're not too hard (have extremely brittle teeth).

i only eat up to 3 a day... it's supposed to help lower Hashi & Grave's antibodies. it's also supposed to help you convert your T4 to T3 easier. so far, they have not bothered my teeth.. they're kind of fatty.. i still indulge on Almond M&Ms.. and those almost crack my teeth :huh:

Emma-Lee Rookie

Wow! This information is amazing and has truly sparked an investigation! I will be talking to my doctor about all these issues and requesting labs. I will keep everyone updated. Thanks, thanks, thanks =)

mommida Enthusiast

vitamin and mineral deficiency is commonly overlooked by the medical community. If it weren't for your post I wouldn't have searched for any links to B12 defiency with premature greying.

The link for pernicious anemia seems to be from damaged gut lining for Celiacs. I don't know if many doctors feel comfortable ordering the proper testing to diagnose it. Ordering the test for your B12 levels should be simple enough. A B12 causes nuerological problems if left untreated and it seems more of the general population are shown to be lacking.

IrishHeart Veteran

Good information on the selenium--thanks! I have Hashimoto's, which I've treated with Armour Thyroid for the past three years. I'll try eating the brazil nuts--as I recall, they're not too hard (have extremely brittle teeth).

I soak almonds for an hour before eating them...less rough on the teeth!! just a thought?!

Emma-Lee Rookie

vitamin and mineral deficiency is commonly overlooked by the medical community. If it weren't for your post I wouldn't have searched for any links to B12 defiency with premature greying.

The link for pernicious anemia seems to be from damaged gut lining for Celiacs. I don't know if many doctors feel comfortable ordering the proper testing to diagnose it. Ordering the test for your B12 levels should be simple enough. A B12 causes nuerological problems if left untreated and it seems more of the general population are shown to be lacking.

thank you! This info is really helpful and I appreciate the info to. I will ask for a B12

cO-ol Explorer

One thing that should be added is that you can have "normal" blood b12 levels and still be deficient (well, that's true of plenty of things, not just b12...). The first time I got mine checked I was 300; thankfully the doc saw that was too low despite the lab reference range low being 200. The second time I got my b12 checked I was 800 something, and the doc (a different one) condescendingly told me I didn't need to be taking the b12, but frankly, I feel much better taking it. See if you can get the MMA and homocysteine tests in addition to b12, because those tests usually can indicate a b12 issue even if the b12 blood test doesn't.

cassP Contributor

One thing that should be added is that you can have "normal" blood b12 levels and still be deficient (well, that's true of plenty of things, not just b12...). The first time I got mine checked I was 300; thankfully the doc saw that was too low despite the lab reference range low being 200. The second time I got my b12 checked I was 800 something, and the doc (a different one) condescendingly told me I didn't need to be taking the b12, but frankly, I feel much better taking it. See if you can get the MMA and homocysteine tests in addition to b12, because those tests usually can indicate a b12 issue even if the b12 blood test doesn't.

what's an MMA??

rosetapper23 Explorer

IrishHeart,

GREAT suggestion! I love almonds, but I stopped eating them some time ago because of the fragility of my teeth (broke three molars at one sitting last year). I'll definitely trying soaking some to see what happens.

Also, does anyone know a good source of Brazil nuts?? I can't seem to find any...

cassP Contributor

IrishHeart,

GREAT suggestion! I love almonds, but I stopped eating them some time ago because of the fragility of my teeth (broke three molars at one sitting last year). I'll definitely trying soaking some to see what happens.

Also, does anyone know a good source of Brazil nuts?? I can't seem to find any...

i bought mine in the refridgerated section at Chamberlains. ive also seen them at a local organic market/shop/cafe.

i havent looked at whole foods yet

good luck

  • 5 months later...
rogue Rookie

No one has replied to this thread for a while, so I'm not sure if anyone is still checking it. But I was searching for something else and came across this thread. Here are my two cents:

Yes, there could be a connection to premature graying of the hair and B12 deficiency. But the likely connection may lie in a hidden folic acid deficiency, which can cause graying of the hair. B12 issues can often mask a folic acid deficiency, so make sure that you get that tested right along with the B12. I actually have had a B12 deficiency for years, on and off, and only recently discovered the folic acid deficiency through my smart GI doc who knew to keep looking. Despite the fact that my dad and mom both grayed much later in life (in their late 40s/early 50s) I had found a few silvers on my own head (I'm in my early 30s), which was really shocking for me- I plucked them out! :lol: Now that I'm on folic acid supplements, hopefully my normal color will return. And hopefully yours too!

AVR1962 Collaborator

Once you have your blood work-up done make sure you ask for a copy of the results. I did not and doc did not share with me my deficencies. When I requested a copy from my records I was shocked, I had all these low marks. Rather than taking this to my doc I looked up each medical code online, you can find them by just googling. Started taking the various supplements for what I was low in and while it was a cure overnight I am feeling a ton better now.

I take B12 for my memory issues. I have had hair loss and had a bone scan that showed loss in both my spine and legs, my issues was pretty progressed before it was figured out what was causing the problem. I thought from my reading I saw that gray hair was due to low levels of minerals like copper that the body loses wiuth age.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      129,890
    • Most Online (within 30 mins)
      7,748

    Kathryn sealey
    Newest Member
    Kathryn sealey
    Joined

  • Celiac.com Sponsor (A20):
    Authentic Foods


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Tierra Farm



  • Upcoming Events

  • Posts

    • trents
      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
    • trents
      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
×
×
  • Create New...