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Gluten Free And Still Loose Bowels

Nicole88

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Nicole88 Newbie
Nicole88
Posted

My daughter is 8 and has Spina Bifida we recently went Gluten free maybe about 3 weeks now she has had the blood work done and it came back Negative for Celiac and other gastro disease. i started her on the gluten free after talking with my ex in laws and discovering that many of them in the family have Celiac so i looked into it and found it is a genetic i thought all of the symptoms seem to be pointing to it as well. At first the loose bowels stop then a week in she slipped up at school and had a hoagie and some cake and the next two days after that she had green stool. i spoke to a good friend who was Celiac and said that is common when they eat something with gluten in it. then it cleared up and she slipped up again at school on 2/14/11 and had donuts. then the loose bowel again not green this time just pasty and loose.i sat my daughter down and told her how serious this is and that she can not have these things sent in a note to school stating she is not to have gluten products. now sunday it did it again now she hasnt had any slip since that monday so why the loose bowel again. is it possible she is not Celiac and something else. i am getting so frustrated and i feel so bad for her that this is not stopping. does it take long for the loose bowel to clear?

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kareng Grand Master
kareng
Posted

I still get this if I don't get enough fiber to firm things up! :ph34r:

Nicole88 Newbie
Nicole88
Posted
  • Author

I still get this if I don't get enough fiber to firm things up! :ph34r:

hmmm i wonder if i am giving her enough fiber. I always think fiber equals more bathroom trips but i guess it could go both ways. i wonder what i can give her to be sure she is getting enough fiber in her diet. and i wonder how much is enough?

kareng Grand Master
kareng
Posted

hmmm i wonder if i am giving her enough fiber. I always think fiber equals more bathroom trips but i guess it could go both ways. i wonder what i can give her to be sure she is getting enough fiber in her diet. and i wonder how much is enough?

This is something I am trying to figure out. I like the Bobs Red Mill Mighty tasty cereal (a hot cereal).

It may take a while for her to heal and get things evened out, too.

MacieMay Explorer
MacieMay
Posted

I felt like that when we first went gluten-free. I did notice a good change in BM pretty quickly but we still had the occasional loose stool and I couldn't figure it out. I've now blamed it on me, I was accidently giving her gluten. One time was in lipton onion soup mix and then some other mix seasonings. I didn't realize that natural flavoring can have gluten, by law if there is wheat in it then it has to be listed but not malt or barley. It takes a long time to get the diet down. I wish I had a smartphone, I would download that app that tells you whether or not something is gluten-free.

I hope this helps!!

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

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      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
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      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
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    • marion wheaton
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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