Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Shes In Denial


JustForJen

Recommended Posts

JustForJen Newbie

I wanted to start another thread as my one about why can't have it in moderation seems somewhat irrelevant as it is clear why. I think she is in Denial. She looking for me to give her the go ahead for example: that we could order pizza tonight and just forget about the Gluten for a night. But won't do it unless I say its okay. I understand what she is doing, looking for my approval to be bad!! But it puts me in a difficult situation. Because when I say no way, I become a controlling jerk in her mind(at least outwardly and I obviously can't condone eating pizza either. I don't want to force her to come to the message boards as that would do more harm than good. She just doesn't wan't to deal with it and doesn't seem like there is a whole lot of support I can give. Seems like she wants me to just let her go ahead a Glute??? herself and leave her alone about it. I know I can't fix this and its her life and if she wants to destroy it by eating things she is allergic to, I shouldn't prevent her as then she would just hide it, but what should I do? Where is the line of being supportive vs. being controlling?

BTW tried Gluten free pizza. We live in NY. Wasn't impressed


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Refusing to participate in harm is not controlling.

It's true that her health is up to her, but it's also true that she needs to get through this at her own pace. Tell her that you can't help her hurt herself, and you will leave the room if she chooses to eat something harmful rather than rip it out of her hands (if that's what it takes).

Continue to be supportive, but not enabling.

jerseyangel Proficient

Refusing to participate in harm is not controlling.

It's true that her health is up to her, but it's also true that she needs to get through this at her own pace. Tell her that you can't help her hurt herself, and you will leave the room if she chooses to eat something harmful rather than rip it out of her hands (if that's what it takes).

Continue to be supportive, but not enabling.

I agree with this. I remember when I first went gluten-free--I was literally flying by the seat of my pants. My doctor sent me home with an ancient piece of paper that was typed on a typewriter with a list of foods to avoid and instructions to come back in 2 months. I had no idea about this forum, and had only just heard of Celiac.

I learned on my own that I had to watch the cross contamination and that "just a little" does hurt. At that time, I used personal care products with wheat, and only cut out the obvious gluten like bread and pasta.

What happened with me--and quite quickly--is that I became more and more sensitive to smaller and smaller amounts of gluten. This caused me to look at my diet much more carefully and certainly never cheat.

When I found this board, I learned about things like the possibility of a reaction using personal care products with gluten and to read labels every time. I have pretty strong reactions, and maybe that is a good thing because it kept me on the straight and narrow. What I am thinking is that as Jen cuts out the gluten, she may experience the phenomenon of becoming more sensitive (as many do) and will adjust accordingly.

We are here for her (and you) any time. :)

tarnalberry Community Regular

I think you say what you said here "You're looking for me to approve or disapprove your choices on the diet you know you need to do but don't want to. I'm not going to do that." And then don't give her an answer - make your own meal separately if you have to. But I would be VERY clear to her that you know what she's doing (even if she doesn't) and you won't play along. And be very consistent in not playing.

GlutenFreeManna Rising Star

As others have said don't enable her but don't belittle her or rip the gluten away from her. I think we all here went through a period of denial or "testing" it to see if we really need to stay gluten free. Let her run through her emotions on this at her own pace. DON'T buy gluten food and bring it to her but don't criticize her if she chooses to eat gluten on her own and then is sick. Don't be the one to say anything like "I told you so..." when gltuen makes her sick. That will just make her distant and more angry and hurt. I know when I was going through a denial stage it helped the most to hear my husband say "I'm not going to help make you sick but I'm not goign to stop you if that's really what you want to do. You're an adult and you can make your own choices, but I love you and I want to help you through this when you're ready..."

Jenn624 Rookie

How long has she been gluten free now? I will tell you, about 2 weeks into it, I decided to cheat. I wanted pizza and I was going to have it. I ate a couple slices, threw up and spent the evening running to the bathroom. I got a painful rash on my backside. The symptoms lasted a couple days. That was my wake up call. I will never knowingly do that to myself again.

So while I don't think she should eat gluten, maybe it would be a wake up call for her as well.

Then again, that could really backfire!!! Sorry I am not really of help. She's got to want to get well herself, but you can definitely not be an active partner in her cheating on the gluten-free lifestyle!

GOOD LUCK!

Jenn

IrishHeart Veteran

well, denial is part of the mourning phase of loss....there's anger and bargaining, depression and eventually, acceptance...she'll get there, eventually.... sorry, hubby....just hang on.

Some gluten-free food is better than others. You two will have to try a few places to see what's good.

Are you in NYC or upstate?...I may have some tips for you

if you want.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

No, you definitely cannot force someone to do what they are unwilling to do. It has to be her decision that she is not going to eat gluten. I agree with the others about not being an enabler, Let everything you buy and cook be gluten free so that the eating of gluten has to be a conscious choice on her part - that way she is not dragging you into her guilt about doing it. Remember the five stages of grief: Denial; Anger; Bargaining; Depression; Acceptance. It sounds like she is doing a bit of bargaining right now. This is a perfectly normal grieving process and I hope you can help her through it. You will find several threads on here like What Do You Miss the Most?, etc., and we all go through this grieving process. And we all seem to eventually come out the other side when our reasoning rather than our emotions control.

Waverlywoods Rookie

unfortunately she's just going to have to make herself sick. There's nothing you can do but remind her why she feels bad. I don't mean to be a downer, but for a person to maintain 100% gluten free they have to want it really bad. The motivation for that will come from being quite ill and knowing that the cause is gluten, even trace gluten. This is what it took to motivate me. In time the desire for harmful foods went away for me, but it took quite some time for me. Best of luck to both of you.

K8ling Enthusiast

Maybe it's just me but I was SO HAPPY to start feeling better. Does she LIKE being sick? I mean yeah it's hard but... once you start feeling like a human it is SO MUCH MORE WORTH IT!

Once she feels better it's going to be amazing to her. You just gotta get her to realize that being sick is not life. Being well is life.

ciavyn Contributor

Maybe it's just me but I was SO HAPPY to start feeling better. Does she LIKE being sick? I mean yeah it's hard but... once you start feeling like a human it is SO MUCH MORE WORTH IT!

Once she feels better it's going to be amazing to her. You just gotta get her to realize that being sick is not life. Being well is life.

K8ling is right -- but she may not know what it even feels like to feel good yet. I had no clue that people didn't feel like I always did. So she doesn't even know she is headed for yet. If only there was a way to let her have the experience of feeling decent so she knew what she was working towards....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      24

      Headaches / Migraines and Hypoglycaemia

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    3. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,150
    • Most Online (within 30 mins)
      7,748

    TheaBr
    Newest Member
    TheaBr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.