Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Gluten Withdrawal?


shayre

Recommended Posts

shayre Enthusiast

Hi. I saw you all talking about gluten withdrawal. What is it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi shayre.

Withdrawal

Consumption of gluten triggers production of exorphins, which are opiate chemicals with similar results as endorphins---promoting feelings of calm.

-in some people, gluten and/or casein can mimic opiates, such as morphine and heroin. When these foods are removed, intense cravings and even drug withdrawal-like symptoms can result.

Read more: Open Original Shared Link

luvs2eat Collaborator

Well then... almost 10 years after going gluten free, I'm still having withdrawal. Awesome husband is so good about hearing me WHINE about wishing I could have a sausage egg Mcmuffin or a Pizza Hut pizza or a Big Mac or a myriad of other things!!

mushroom Proficient

I think wanting and physically craving are separate things :P:lol:

  • 3 weeks later...
confusedwife Newbie

my husband went gluten free six weeks ago and was complaining he was feeling like he was going thru withdrewls or the flu...are you saying that this is a true symptom of the celiac as hes going thru this transition?

mushroom Proficient

Yes indeedy, we are. It is a very real physical reaction when gluten is removed. Generally doesn't last beyond a couple of months at very most. Gluten acts like an opioid :o

  • 3 weeks later...
Kquad Apprentice

I went through 6 weeks of terrible withdrawal. I had weakness, fatigue, depression, nausea, dizziness, and achiness. I have only come out of it this past week. It is finally looking worth it. My so called IBS is gone. Months on Nausea gone. Still have a little fatigue, but there is light at the end of the tunnel. If only they have given me the celiac panel 8 years ago, when they first told me I had IBS. I have very little craving for gluten now, as I associate it with the past 6 weeks. I will see if the craving returns!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

The withdraw when I went gluten free was HORRIBLE but it passed in about 6 weeks. The cravings only seem to happen on the rare occasion that a bit of gluten sneaks in to my diet and are a signal to double check my food sources for gluten. Gluten is a VERY sneaky thing.

navigator Apprentice

This is interesting; - I've been gluten free for five days and have a dreadful headache for two days. The only time I've experienced this is before is when I gave up coffee. Never considered that it may be gluten withdrawal.

  • 3 months later...
pricklypear1971 Community Regular

I guess I'm lucky because mine lasted a week. I was pretty much a raging lunatic, though. Dangerous because my brain was working again for the first time in forever...:).

I was obsessed for about 6 weeks with trying every gluten-free processed food. Got over that when I glutened myself.

  • 1 year later...
RedRockChicka Newbie

Hi, everyone. I'm newly diagnosed, and on my second day of gluten free. I know this thread is over a year old, but it's still giving me hope. I was about ready to think I was going freaking crazy. 

 

The first day of no gluten was great. I had energy, I felt better. I wasn't all bloated (well, not as much) and looking like I should be the poster child for UNICEF. 

 

Today, however, I feel like I'm going nuts. Certifiably so. My stomach has been a wreck all day, from bloated and constipated in the morning to a veritable fountain now (sorry to be gross). I have zero energy, and I feel like ripping the head off anyone who asks me even the most innocuous request (like, "Tell me how your day was?"). I also feel seriously out of it. I was driving earlier, and luckily, made it home without driving into a telephone pole (that would have been interesting. Officer: "Ma'am, have you been drinking?" Me: "No, just going through some major gluten withdrawal."). 

 

Thanks for this thread, old as it is. I feel a bit less nuts just knowing I'm not certifiable (at least not completely). Oh, how I hope this doesn't last for months, though! 

nvsmom Community Regular

For most, withdrawal only lasts a week or so. I hope you are well soon.

 

Welcome to the board.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.