Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reacting To Small Amounts - Article At Celiac.com

RollingAlong

Recommended Posts

RollingAlong Explorer
RollingAlong
Posted

Open Original Shared Link

I don't remember seeing any discussion of this article here, but there's been so much celiac related press lately.

I was wondering if you'd read it and what you thought about it, particularly in light of the non-action by the FDA to define the phrase "gluten free."

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Even if you are not "super-sensitive" the gluten free gluten content can add up. Let's say I eat 4 cookies. Per serving they have 10 ppm. A serving is 2 cookies, but rarely do people eat only 2. Now I have just eaten 20 "parts" I also have 2 slices of gluten-free bread and a banana. The bread might have another 10 parts. It can add up.

I know that my addition isn't exactly correct but I hope it illustrates the point that it adds up. Even if we aren't supersentitive, it can still affect us.

dilettantesteph Collaborator
dilettantesteph
Posted

That writer seems to have a good understanding of super sensitivity in celiac disease/gluten intolerance.

T.H. Community Regular
T.H.
Posted

That writer seems to have a good understanding of super sensitivity in celiac disease/gluten intolerance.

I wrote to her to thank her for the article a while back, and she's a super-sensitive herself. Nice to have someone who understands so that others can get information other than 'it's all in your head,' you know? :-)

shauna

  • 2 weeks later...
rdunbar Explorer
rdunbar
Posted

I'm good to know i'm not alone, though I wouldn't wish being super sensative on anyone.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,350
    • Most Online (within 30 mins)
      7,748
    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      Trip to Anaheim/Disney

      By Seaperky · Posted

      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.