I Want A Cup Of Coffee So Bad Right Now

[Poppi]

I can't seem to tolerate coffee. It makes me feel exactly like I've been glutened for about 4-5 hours. I have been drinking coffee all my life. We lived on a coffee farm in Jamaica when I was 8 and I started drinking a cup of day back then and continued that habit (and then some) for the next 26 years. I've had 2 cups in the past 3 months (dropped coffee a month before I dropped gluten in an attempt to figure out what was giving me headaches) and felt terrible both times.

This morning I'm tired, it's cloudy and cold, the kids are playing quietly and all I want right now is a piping hot double double to go with my gluten-free cinnamon bun.

I don't have many moments of self pity because 99% of the time I feel phenomenal and I am so thankful I was finally diagnosed with celiac. For the first time in my life I feel great!

But I want some coffee. ::Pout::

ETA: I just remembered, it's been 3 months without coffee, not 2 ... ::cries::

[jackay]

  On 6/13/2011 at 2:38 PM, Poppi said:

I can't seem to tolerate coffee. It makes me feel exactly like I've been glutened for about 4-5 hours. I have been drinking coffee all my life. We lived on a coffee farm in Jamaica when I was 8 and I started drinking a cup of day back then and continued that habit (and then some) for the next 26 years. I've had 2 cups in the past 2 months (dropped coffee when I dropped gluten) and felt terrible both times.

This morning I'm tired, it's cloudy and cold, the kids are playing quietly and all I want right now is a piping hot double double to go with my gluten-free cinnamon bun.

I don't have many moments of self pity because 99% of the time I feel phenomenal and I am so thankful I was finally diagnosed with celiac. For the first time in my life I feel great!

But I want some coffee. ::Pout::

I've been wanting coffee, too, but have been afraid to try it.

[thegreatkatsby]

I stopped being able to drink regular coffee years ago... way before I was diagnosed as a celiac in January of this year. I don't know why I can't tolerate it, but it is upsetting.

For some reason though, I can usually tolerate coffee drinks made with a lot of milk (i.e. lattes, frappacinos, etc). I don't know if the milk helps coat the stomach, or prevent against harm done by the coffee, but it is the exception to the "no coffee" rule for me.

The two things I suspect may be part of the problem are the caffeine and the oil (from the coffee beans--I'm not sure what else to call it? extract?).

[lynnelise]

I started having trouble with coffee after going gluten free. At first I thought there was gluten in the coffee itself and tried dozens of different brands. Then I kept having issues plus I started having my mouth go all tingly when I drank it which does not happen with gluten for me. I had some allergy tests ran that showed a mild allergy to the coffee itself. I quit coffee all together for months and now I have it once or twice a weeek.

It's weird though, I can drink hot coffee with heavy cream, half and half, non-dairy creamer, or soy and be ok but if I use regular milk I have a reaction. Cold coffee I can tolerate with soy only or I will have a reaction.

[kareng]

I have heard that a little milk cuts the acid in the coffee. I couldn't drink it black it would give me an immediate pain in my stomach, even with food (probably didn't have any dairy in the meal). Went to awards banquet catered thing & they brought out little chocolate pots filled with flavored whipped creams. I though I would suffer for that treat. Didn't. I do OK now with milk in it.

Can you drink tea? Maybe a strong one like Earl Grey or that Chinese Dynamite tea.

[Poppi]

I drink lots of tea. There is a great tea shop a few block away from me owned by a woman and her daughter who is celiac. They have promised me that all the teas are safe as they shop carefully and the celiac daughter has drunk them all.

My morning drink now is half hot milk, half strong brewed loose leaf chai and a bit of sugar.

I always drink my coffee with 18% coffee cream and I've tried a few brands (Tim Horton's, Starbucks and something else). I would like to try getting beans, rinsing them and then grinding them myself but I don't have a grinder and don't want to spend money on one if it turns out to make me sick anyway.

I guess I'll stick with my tea.

[domesticactivist]

I feel ya. Hang in there. Tea is not the same, though good in its own right.

[Strawberry-Jam]

back when I started having trouble with caffeine I switched to roasted barley tea... which, haha, bad idea, but it tasted like coffee kinda without a lick of caffeine. There is a such thing as roasted buckwheat tea... try it maybe? If it's the roasted flavor that you like, it might be nice.

[Jestgar]

  On 6/13/2011 at 4:38 PM, Poppi said:

I would like to try getting beans, rinsing them and then grinding them myself but I don't have a grinder and don't want to spend money on one if it turns out to make me sick anyway.

You could use the grinder for spices or nuts if the coffee didn't work for you.

[dilettantesteph]

  On 6/13/2011 at 4:38 PM, Poppi said:

I would like to try getting beans, rinsing them and then grinding them myself but I don't have a grinder and don't want to spend money on one if it turns out to make me sick anyway.

That's what I do, maybe you've seen that before. I get organic beans. You can get a cheap grinder for $15 - $20. Might be worth a try.

[luvs2eat]

My daughter was having trouble w/ coffee when she first went gluten-free. She switched to decaf and it helped tremendously. A few months later, she's back to regular coffee.

I would die w/o coffee. When dairy decided it didn't like me anymore, I had to drink coffee in a travel cup w/ a lid for a few weeks so I couldn't SEE it w/o milk. Now I love it black.

[Monklady123]

I am serious when I say that this entire diet is a piece of cake compared to what I think it would be like to have to give up coffee!

Now of course, if there was a true medical reason why I had to give it up I would. But... omg.

I feel for you. I'm glad you can still drink tea, but no it isn't quite the same thing.

[cahill]

I gave up coffee back in December, just before I started an elimination diet. During the elimination diet I did try to reintroduce coffee but had a strong reaction to it.

Now that I eliminated my intolerances and allgerys my gut has healed a bit and I can drink a small cup of coffee once or twice a week with no problem.

Sunday night I decided to push this a bit and had two cups,, not good ,, I will stick to my 1 cup at a time once or twice a week.

[love2travel]

Coffee is one of the few things on this planet that holds no appeal to me whatsoever. But then I prefer vanilla (bean) over chocolate any time, too!

[Monklady123]

  On 6/14/2011 at 9:15 PM, love2travel said:

Coffee is one of the few things on this planet that holds no appeal to me whatsoever. But then I prefer vanilla (bean) over chocolate any time, too!

Well... everyone has their faults.

;)

[love2travel]

  On 6/14/2011 at 9:18 PM, Monklady123 said:

Well... everyone has their faults.

;)

So very, very true.

[thegreatkatsby]

Something I just learned today that made me think of this topic again... apparently there is a new test out from Cyrex Labs that looks for cross-reactive foods in celiac and gluten intolerance people (in cross-reactivity the body mistakes another food for gluten and reacts accordingly.). Coffee is one of the top offenders for this.

I first read about it in a forum, but I googled around and found a page with this on it:

"Coffee is surprisingly cross-reactive with gluten

However Cyrex researchers were surprised to find coffee has the highest rate of cross-reaction with gluten. In other words, some people

[Poppi]

I read something like that at one point too. In some celiacs coffee hits the same receptors as gluten and triggers a reaction. It's a bummer for sure but life goes on, right?

[thegreatkatsby]

  On 6/16/2011 at 5:09 PM, Poppi said:

I read something like that at one point too. In some celiacs coffee hits the same receptors as gluten and triggers a reaction. It's a bummer for sure but life goes on, right?

Sort of... once you finally figure out what all the problems are/were.

[Skylark]

I saw that Cyrex thing on coffee too. I would be so sad if I started cross-reacting with coffee.

[Harpgirl]

I was wondering for those others who have issues with coffee, do you mean any coffee, or can you drink decaf? I haven't had regular coffee for almost 4 years because I've been either pregnant or breastfeeding. I would really hate to find out later that I'd have to give up decaf too! I love putting cinnamon in the brew basket, mmm...

[Poppi]

  On 6/17/2011 at 3:14 AM, Harpgirl said:

I was wondering for those others who have issues with coffee, do you mean any coffee, or can you drink decaf? I haven't had regular coffee for almost 4 years because I've been either pregnant or breastfeeding. I would really hate to find out later that I'd have to give up decaf too! I love putting cinnamon in the brew basket, mmm...

I don't think it's the caffiene for me. I drink lots of black tea and I'll have a Coke once in a while. Sadly, it's the coffee.

[Harpgirl]

  On 6/17/2011 at 2:10 PM, Poppi said:

I don't think it's the caffiene for me. I drink lots of black tea and I'll have a Coke once in a while. Sadly, it's the coffee.

*sighs* What a bummer! At least you're good with chai. I think if I had to give up both, I'd have a outright fit!

[thegreatkatsby]

It's definitely the coffee for me... decaf or not. The only kinds of coffee I can drink now and then are the fluffy ones with lots of milk/cream... and they have to be espresso drinks, not drip brewed. I don't know why the espresso is usually ok when the regular kind of coffee isn't... maybe it's the way it's extracted? Perhaps the high pressure has some kind of effect? That doesn't seem to make sense, because espresso is more highly concentrated than regular coffee... but I have had regular coffee in a mug 50/50 with milk, and it gave me gastro problems whereas the espresso drinks typically don't, so it's hard to imagine it's just the milk protecting me. (Note: sometimes the espresso drinks do make me feel sick, but not like regular coffee, which is guaranteed to make me feel sick).

I think my tolerance of espresso is decreasing though. :/

[Harpgirl]

  On 6/17/2011 at 4:43 PM, thegreatkatsby said:

It's definitely the coffee for me... decaf or not. The only kinds of coffee I can drink now and then are the fluffy ones with lots of milk/cream... and they have to be espresso drinks, not drip brewed. I don't know why the espresso is usually ok when the regular kind of coffee isn't... maybe it's the way it's extracted? Perhaps the high pressure has some kind of effect? That doesn't seem to make sense, because espresso is more highly concentrated than regular coffee... but I have had regular coffee in a mug 50/50 with milk, and it gave me gastro problems whereas the espresso drinks typically don't, so it's hard to imagine it's just the milk protecting me. (Note: sometimes the espresso drinks do make me feel sick, but not like regular coffee, which is guaranteed to make me feel sick).

I think my tolerance of espresso is decreasing though. :/

You know, I actually get that. Especially when it comes to certain brands of coffee. I can't handle Starbuck's drip brewed coffee no matter how much milk I put in it, but I have no trouble with the lattes.