Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Book To Teach Family About Cc?


Newtoitall

Recommended Posts

Newtoitall Enthusiast

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I've never seen one, but I think we should start compiling one here of all the ways we have glutened ourselves accidentally or where we have found trace gluten. Good idea.

domesticactivist Collaborator

My son wanted to write a book when we first figured this all out. We should do it!

domesticactivist Collaborator

I like the idea of compiled examples. Going to put out a call for submissions?

Stormy Rookie

This idea is fantastic! Has anyone started it yet?

txplowgirl Enthusiast

I would love to be able to write one but have no idea how to get started.

domesticactivist Collaborator

Let's do it! What should the format be? 500 word essays? An intro explaining cc? Tips following each story with how to have avoided that particular problem?

I have a friend who edits novels and another who got gluten-free recipes published, maybe they can help us get it out there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Stormy Rookie

There should definitely be an intro explaining Celiac Disease. I'm not sure if we should put a number on how many words the person has to write, but maybe put a cap on how many they CAN write, just so one story doesn't become a book. :) Maybe have a section in there on different ways to get the point across without embarrassing yourself or others? Different ways to say that we can't eat gluten or have something with gluten touch our food.

txplowgirl Enthusiast

I'm in, of somebody can come up with how to get it started I'll definitly contribute. That is if I ever remember how to spell corectly. Lol. Oh brother, this may be even harder than I thought.

domesticactivist Collaborator

OK, this'll be fun! I'd be happy to take the lead on the project.

I think the ideal submission would be about 250-500 words. If we got lots of submissions, maybe they could be categorized by the type of cross-contamination, with a little tips section for each. Some ideas for the categories are eating out, holidays, potlucks, pots and pans, and school.

We could have an editorial team of people to choose the stories selected for the book. Oh, and we'd need somebody to figure out the cover art, too. I could write the tips sections and intro about celiac, and have you all review it, of course!

What do you all think?

love2travel Mentor

Perhaps I could also contribute. I have had complex recipes of my own creation published in national magazines. I have also worked as an editor. I am fanatical about correct spelling, grammar, punctuation and so on. You could call me a geek I suppose! :P

IrishHeart Veteran

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?

Danna Korn's book Living gluten-free for Dummies is pretty good for introductory info on gluten intolerance/celiac and why we have to avoid gluten and CC. You could always photocopy the sections on CC .

OR --this link has a very good explanation about CC and what to do to avoid it--in products, at home, and at people's houses.

Open Original Shared Link

That will give you something to start with. I know my extended family does not get the CC issues just yet, but they are learning. I sent them info to try and get them to understand it better.

Hope that helps--while we await our book coming out, of course!! ;)

rosetapper23 Explorer

I'd love to help with a book, too! What a great idea! I've worked as an editor and have taught grammar, punctuation, spelling, and writing.....so feel free to call on me if you need any help.

It would be great if you could have separate chapters on cross-contamination at friends' homes, potlucks, restaurants, and one's own home. Also, it would be tremendously helpful to have a chapter with personal stories from DH sufferers' relating their experiences with simply touching gluten. Doctors need to see something in writing in order to understand how very sensitive people with celiac and DH can be.

I hope you run with this story!

domesticactivist Collaborator

OK, I'm going to start working on this project as a part of my business (linked from my profile). The goal will be a book about gluten cross-contamination and how to avoid it. If you want to be on the editing/publishing team, PM me with your email by Friday, July 15th.

Here is the call for submissions - feel free to send it on to your friends, family, and other lists and forums you are on!

*************************************************

The Liberated Kitchen, LLC, is now accepting submissions for a book explaining cross-contamination for friends and family of people with celiac disease or severe gluten sensitivity.

Submission Guidelines

Length: Between 300 and 600 words

Subject: Ideal submissions are true stories about personal experiences with cross-contamination from gluten. They may include (but are not limited to) physical symptoms, unexpected causes of cross-contamination, or the impact gluten has had on your family and friendships. The book will be divided into sections based on categories such as Home Cooking, Travel, Potlucks, School, and Eating Out, so each submission should focus on one type of cross-contamination.

Number of Submissions: You may submit up to 5 essays.

Compensation: There is no guarantee of compensation for your essay. If your essay is used in the book and you provide your mailing address, you will receive a free copy of the book.

Terms: By submitting your essay(s), you agree that

a) it may be published by The Liberated Kitchen, LLC, as part of a book, blog entry, or other publication.

B) you will be given credit for your work with your full name, unless you specify a pseudonym to be used.

c) your submission is true and accurate.

d) The Liberated Kitchen, LLC, may edit your submission prior to publishing it for spelling, grammar, clarity, or length.

Due Date: August 30, 2011

Email submissions to joy at theliberatedkitchenpdx dot com with "Gluten CC Book" in the subject line. Include your full name, best contact information, and a short bio. Pictures may be included.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,127
    • Most Online (within 30 mins)
      7,748

    Steve715
    Newest Member
    Steve715
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.