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Is There A Book To Teach Family About Cc?

Newtoitall

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Newtoitall Enthusiast
Newtoitall
Posted

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?

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eatmeat4good Enthusiast
eatmeat4good
Posted

I've never seen one, but I think we should start compiling one here of all the ways we have glutened ourselves accidentally or where we have found trace gluten. Good idea.

domesticactivist Collaborator
domesticactivist
Posted

My son wanted to write a book when we first figured this all out. We should do it!

domesticactivist Collaborator
domesticactivist
Posted

I like the idea of compiled examples. Going to put out a call for submissions?

Stormy Rookie
Stormy
Posted

This idea is fantastic! Has anyone started it yet?

txplowgirl Enthusiast
txplowgirl
Posted

I would love to be able to write one but have no idea how to get started.

domesticactivist Collaborator
domesticactivist
Posted

Let's do it! What should the format be? 500 word essays? An intro explaining cc? Tips following each story with how to have avoided that particular problem?

I have a friend who edits novels and another who got gluten-free recipes published, maybe they can help us get it out there.

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Stormy Rookie
Stormy
Posted

There should definitely be an intro explaining Celiac Disease. I'm not sure if we should put a number on how many words the person has to write, but maybe put a cap on how many they CAN write, just so one story doesn't become a book. :) Maybe have a section in there on different ways to get the point across without embarrassing yourself or others? Different ways to say that we can't eat gluten or have something with gluten touch our food.

txplowgirl Enthusiast
txplowgirl
Posted

I'm in, of somebody can come up with how to get it started I'll definitly contribute. That is if I ever remember how to spell corectly. Lol. Oh brother, this may be even harder than I thought.

domesticactivist Collaborator
domesticactivist
Posted

OK, this'll be fun! I'd be happy to take the lead on the project.

I think the ideal submission would be about 250-500 words. If we got lots of submissions, maybe they could be categorized by the type of cross-contamination, with a little tips section for each. Some ideas for the categories are eating out, holidays, potlucks, pots and pans, and school.

We could have an editorial team of people to choose the stories selected for the book. Oh, and we'd need somebody to figure out the cover art, too. I could write the tips sections and intro about celiac, and have you all review it, of course!

What do you all think?

love2travel Mentor
love2travel
Posted

Perhaps I could also contribute. I have had complex recipes of my own creation published in national magazines. I have also worked as an editor. I am fanatical about correct spelling, grammar, punctuation and so on. You could call me a geek I suppose! :P

IrishHeart Veteran
IrishHeart
Posted

Is there a good book, that's good at explaining CC to someone without Celiac disease?

something that would be good to take with me now and then in case I run into someone stubborn or curious?

Danna Korn's book Living gluten-free for Dummies is pretty good for introductory info on gluten intolerance/celiac and why we have to avoid gluten and CC. You could always photocopy the sections on CC .

OR --this link has a very good explanation about CC and what to do to avoid it--in products, at home, and at people's houses.

Open Original Shared Link

That will give you something to start with. I know my extended family does not get the CC issues just yet, but they are learning. I sent them info to try and get them to understand it better.

Hope that helps--while we await our book coming out, of course!! ;)

rosetapper23 Explorer
rosetapper23
Posted

I'd love to help with a book, too! What a great idea! I've worked as an editor and have taught grammar, punctuation, spelling, and writing.....so feel free to call on me if you need any help.

It would be great if you could have separate chapters on cross-contamination at friends' homes, potlucks, restaurants, and one's own home. Also, it would be tremendously helpful to have a chapter with personal stories from DH sufferers' relating their experiences with simply touching gluten. Doctors need to see something in writing in order to understand how very sensitive people with celiac and DH can be.

I hope you run with this story!

domesticactivist Collaborator
domesticactivist
Posted

OK, I'm going to start working on this project as a part of my business (linked from my profile). The goal will be a book about gluten cross-contamination and how to avoid it. If you want to be on the editing/publishing team, PM me with your email by Friday, July 15th.

Here is the call for submissions - feel free to send it on to your friends, family, and other lists and forums you are on!

*************************************************

The Liberated Kitchen, LLC, is now accepting submissions for a book explaining cross-contamination for friends and family of people with celiac disease or severe gluten sensitivity.

Submission Guidelines

Length: Between 300 and 600 words

Subject: Ideal submissions are true stories about personal experiences with cross-contamination from gluten. They may include (but are not limited to) physical symptoms, unexpected causes of cross-contamination, or the impact gluten has had on your family and friendships. The book will be divided into sections based on categories such as Home Cooking, Travel, Potlucks, School, and Eating Out, so each submission should focus on one type of cross-contamination.

Number of Submissions: You may submit up to 5 essays.

Compensation: There is no guarantee of compensation for your essay. If your essay is used in the book and you provide your mailing address, you will receive a free copy of the book.

Terms: By submitting your essay(s), you agree that

a) it may be published by The Liberated Kitchen, LLC, as part of a book, blog entry, or other publication.

B) you will be given credit for your work with your full name, unless you specify a pseudonym to be used.

c) your submission is true and accurate.

d) The Liberated Kitchen, LLC, may edit your submission prior to publishing it for spelling, grammar, clarity, or length.

Due Date: August 30, 2011

Email submissions to joy at theliberatedkitchenpdx dot com with "Gluten CC Book" in the subject line. Include your full name, best contact information, and a short bio. Pictures may be included.

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    • Mari
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    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
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