Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sibo & Gluten Free Diet

redheadsmom

Recommended Posts

redheadsmom Rookie
redheadsmom
Posted

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica

I don't know anything about "SIBO", but I can tell you that my daughter-in-law has been struggling with intestinal health for a while and it turns out she has a clostridium difficile infection. She has had a hard time getting rid of it, and is now on the Open Original Shared Link. She is improving greatly. The principle of the diet is to starve the bad bacteria by not providing the sugars that they eat. The antibiotics will disrupt your intestinal flora even more, you might look into some good probiotics.

Have they ruled out Crohn's? Crohn's and celiac can both cause a positive hydrogen breath test.

Probably a good bet to go gluten free if not completely free of things that feed the bacteria. Much cheaper than doctors, tests, and pills!

redheadsmom Rookie
redheadsmom
Posted
  • Author

I don't know anything about "SIBO", but I can tell you that my daughter-in-law has been struggling with intestinal health for a while and it turns out she has a clostridium difficile infection. She has had a hard time getting rid of it, and is now on the Open Original Shared Link. She is improving greatly. The principle of the diet is to starve the bad bacteria by not providing the sugars that they eat. The antibiotics will disrupt your intestinal flora even more, you might look into some good probiotics.

Have they ruled out Crohn's? Crohn's and celiac can both cause a positive hydrogen breath test.

Probably a good bet to go gluten free if not completely free of things that feed the bacteria. Much cheaper than doctors, tests, and pills!

Thank you for your reply! No, Crohns has not been ruled out but my GI doesn't think that's what I have.

mushroom Proficient
mushroom
Posted

Antibiotics can wreak havoc with your GI tract by destroying all the natural good bacteria (as well as the bad ones you are trying to get rid of), and allowing other evils like c. diff to take over. Then you have to take (sometimes) an antibiotic to get rid of the c. diff and it becomes a vicious circle. As the pp said, your first line of defense against antibiotics is to take a good probiotic at the same time to attempt to head off the bad guys. Also, if you are not lactose intolerant, eat lots of yogurt (or the SCD 24-hour yogurt which digests the lactose for you).

I am currently having to take an antibiotic which has on the warning label that I could end up with c. diff up to six months later :unsure: This is the third such antibiotic that I have started (for cellulitis) since I did not tolerate either of the first two. I had to call my doctor again and ask if there weren't something else that would kill the bacteria without killing the patient in the process :lol: I end up like this because I suppress my immune system with Humira to treat my psoriatic arthritis. :blink:And even though I am taking the best probiotics I can find, I will almost certainly end up with a UTI (happens 9 out of 10 times for me) and then end up having to take another antibiotic for that. :rolleyes:

It is ironic that I end up taking so many antibiotics since I believe they should be avoided if possible and taken only when necessary.

I treated a previous c. diff infection with an alternative medicine MD using supplements and a gentian formula which stool testing had shown it was sensitive to - I elected this as opposed to antibiotics since I had just come off a prolonged course of antibiotics which gave me the c. diff in the first place.

As to whether celiacs are more prone to c. diff, I have not read anything on the subject but believe it is quite possible since our ability to absorb nutrients (and concomitantly our ability to fight off infections) is impaired to start with. I have heard of people having success with the SCD in treating it. Even though your testing was negative, with your symptoms you are at the least gluten intolerant if not diagnosable celiac at this time, which means you should avoid gluten just as strictly as a celiac.

Hope you are successful in getting rid of the c. diff because it is miserable.

Looking for answers Contributor
Looking for answers
Posted

Hi,

One of the best pieces of advice I was given on this forum was learn about the GAPS diet (it's nearly the same as the Specific Carb. Diet, but is a little more methodical, in my opinion). I'm leaving on vacation soon, so I haven't been able to do the full blown diet because it will be hard enough for me to navigate my no gluten, dairy, nut, soy diet overseas, let alone GAPS. However, when I return I'm diving in. I, too, have SIBO. I'm pretty certain it was caused by some antibiotics I took last June 2010 for a dental issue. I haven't been the same since, despite accompanying my treatment with probiotics. Anways, I'm doing the first phase of the diet now (but I throw in some normal foods here and there so I won't get sick on vacation) and I can't tell you how great it's been. The days I stick with the soup I feel amazing and have no symptoms. When I throw in illegal foods, my symptoms come back. Anways, check it out and see what you think. Also, check out Grapefruit See Extract as a complementary treatment with GAPS.

redheadsmom Rookie
redheadsmom
Posted
  • Author

Hi,

One of the best pieces of advice I was given on this forum was learn about the GAPS diet (it's nearly the same as the Specific Carb. Diet, but is a little more methodical, in my opinion). I'm leaving on vacation soon, so I haven't been able to do the full blown diet because it will be hard enough for me to navigate my no gluten, dairy, nut, soy diet overseas, let alone GAPS. However, when I return I'm diving in. I, too, have SIBO. I'm pretty certain it was caused by some antibiotics I took last June 2010 for a dental issue. I haven't been the same since, despite accompanying my treatment with probiotics. Anways, I'm doing the first phase of the diet now (but I throw in some normal foods here and there so I won't get sick on vacation) and I can't tell you how great it's been. The days I stick with the soup I feel amazing and have no symptoms. When I throw in illegal foods, my symptoms come back. Anways, check it out and see what you think. Also, check out Grapefruit See Extract as a complementary treatment with GAPS.

Thanks to both of you for your replies, I appreciate it! I know antibiotics aren't good to take but I'm kinda freaked out by this diagnosis so I'm listening to the doc! They have no answers for me (surprise, surprise) by I was told by the GI to NOT take my probiotics until after I'm done with the antibiotic treatment. I have been on a probiotic since January. I'm on day 4 of the gluten-free diet so I'm hoping between that and the antibiotics I will start feeling better soon, that is if I don't end up with another common infection from the antibiotics. It's a never ending cycle!

Jessica

Simona19 Collaborator
Simona19
Posted

Hi everyone, I'm fairly new here and recently diagnosed SIBO (small intestine bacteria overgrowth). I'm currently on a high does antibiotic for 14 days after testing positive via the Hydrogen Breath test.I was tested for Celiac via blood work in May and was negative. My GI wanted me to get and Endoscopy but due to insurance reasons I turned it down. I have numerous symptoms of Celiac and have suffered from GI problems, severe bloating, GERD, and Psoarisis so I firmly believe I have a Gluten Intolerance if not Celiacs. I'm currently on day 3 of being gluten free. Is there anyone else that has dealt with SIBO while on a gluten-free diet? Will being gluten-free help the SIBO from returning? I'm so lost I'm not even sure why I have SIBO and if it's another symptom/problem that comes with Celiac. If anyone has any advice I would greatly appreciate it!

Jessica

Hi!

I was on gluten free diet, but I had problem with digestion of sugar and fats. I saw a doctor at Columbia University Hospital in New York and she tested me for SIBO. I was positive. My body made high amounts of methanol. The Hydrogen breathing test was done in September. After I was taking two antibiotics for 14 days twice a day. At the end of them I had one funny side affect : I had BM after every meal. I didn

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Just another idea, you don't specify if they named what bacteria are causing the overgrowth. If it IS a C.diff bacteria, then after the course of antibiotics you might get your hands on Open Original Shared Link (I offer only one brand, there are others)...it has been shown very effective in helping heal the intestinal lining. Avoid, at least for a time, probiotics with FOS (fructo-oligosaccharides), they feed the bad as well as the good bacteria. There is some indication that the bifidum might contribute to overgrowth as well.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,251
    • Most Online (within 30 mins)
      7,748
    Kathlane
    Newest Member
    Kathlane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.