Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone From Tennessee

samie

Recommended Posts

samie Contributor
samie
Posted

I live north of Memphis. Just seeing if anyone is around this area or close by.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I'm about 70 miles from Knoxville. I'm just south of Johnson City appx. 40 minutes.

  • 3 months later...
millertl2 Rookie
millertl2
Posted

I live in Johnson City, TN. My physician just told me that my Celiac Panel was abnormal and that I had Celiac's Disease. Now, what do I do?.......Tom

Roda Rising Star
Roda
Posted

I live in Johnson City, TN. My physician just told me that my Celiac Panel was abnormal and that I had Celiac's Disease. Now, what do I do?.......Tom

Hi Tom. It sounds like you are a bit overwhelmed. I'm in Greeneville and you'd be suprised, for the area, how many options/products/stores are available. Just where I live I have access to two health food stores, two mennonite stores, and can find speciality products at Food City and Ingals. I also make trips up to JC to Earthfare. There also is another little health food store in the same shopping center as PetSmart (I don't know the actual shopping center name. I think it is off of State of Franklin.) I have also heard there are a lot of options at Kroger but I haven't been there. There was a speciality place in Kingsport that I went to a few times when I was commuting. I'll have to get back to you on the name of the place. I have sucessfully eaten at Mello Mushroom. I was really suprised at how good their gluten free pizza was.

Curious, did your doctor diagnose you based on your blood work only? Is your doctor recommending a scope? Some doctors will diagnose based on blood work alone. Rarely there is false positives, but a lot of false negatives. If you are going to have a scope/biopsy done however, stay eating a regular diet until it is over. Also it is recommended that all first degree relatives get screened for celiac (parents, siblings, children) because their risk increases from 1 in 133 to 1 in 22 having a first degree relative diagnosed.

I would start by eating things that are naturally gluten free like fresh meats, veggies and fruit. Dairy is fine unless you are having issues with it. Do you live alone or live with someone, ie roomates, wife, kids..? If you do are you going to maintain a shared house or take the whole house gluten free? Here is what I did when I was first diagosed:

-Went through the pantry/fridge and got rid of anything I couldn't eat and that the other "gluten eaters" didn't want and donated what I could to the local food bank. I dedicated a drawer in the fridge and the top shelf of the pantry for gluten foods the rest being for gluten free. I scrubbed the kitchen down and all but one small section of the counter was gluten free. I set up my husband's toaster on the small section for him and he could make his gluten sandwiches etc.

-I replaced or bought another of: toaster, wooden spoons/cutting boards, waffle iron, scratched/worn pots & plastic storage containers, pasta strainer. I kept some of the worn pots for hubby to use for gluten things.

-I rid the entire house of any regular flour. There was to much risk since it can stay airborn for awhile and then settle down on the counters. Any baking was done gluten free and if the gluten eaters wanted something I couldn't/wouldn't make, they went to the bakery.

-All shared meals were gluten free. I had no interest in cooking separate meals. The gluten eaters had their cereal and had luch at work/school. Any gluten products had to be consumed at the table on a plate and the kids/hubby had to wash afterwords so they wouldn't cross contaminate surfaces in the house.

-Let gluten eaters finish up any condiments etc that may have been contaminated and replace with new for everyone to share. They don't cross contaminate because I either bought squeeze bottles or they scoop out of the containers what they want and never double dip. We share things like cheese and lunchmeat. My husband will have clean hands and take out what he wants and put it away before touching his bread.

-replaced any baking items/spices/herbs that may have been contaminated with flour (yeah the double dipping thing, I was guilty before)

-checked all my personal care items and made sure they were gluten free. If you have a girlfriend and she is not gluten free, she will need at least gluten free lip balm and lipstick incase you kiss. Your partner, if not gluten free, will need to brush teeth before kissing too.

I know it seems overwhelming at first, mistakes will happen, but it does get easier. I wish when I had gone gluten free I had someone to help me set things up. It would have been so much easier. If you have any questions or if I can help you with anything you can PM me.

millertl2 Rookie
millertl2
Posted

Hey, Thanks for the reply. I was having concerns of low Testosterone (mine was 75 instead of in the normal range of 300), but I wasn't having low testosterone symptoms, plus I have been on Testosterone injections for the past 2 years, but they were not working at all. I requested to see an Endocrinologist. When I finally had my appointment (about 3 months) and after a thorough exam and blood work, my Endocrinologist called me yesterday to let me know that most of the blood work came back okay, but my Celiac Panel was abnormal. The Endocrinologist explained different symptoms, including low testosterone. After hearing and reading about Celiac Disease, I remember always having some issue areas but physicians couldn't explain. I had scopes done years ago looking for something because at some points I would have unexplained bleeding, but the scopes came back normal. My endocrinologist told me to be Gluten free for a couple of months and he will re-check my testosterone levels and blood work.

Thanks again for the information and encouragement! :)

The Adventure begins.........

Hi Tom. It sounds like you are a bit overwhelmed. I'm in Greeneville and you'd be suprised, for the area, how many options/products/stores are available. Just where I live I have access to two health food stores, two mennonite stores, and can find speciality products at Food City and Ingals. I also make trips up to JC to Earthfare. There also is another little health food store in the same shopping center as PetSmart (I don't know the actual shopping center name. I think it is off of State of Franklin.) I have also heard there are a lot of options at Kroger but I haven't been there. There was a speciality place in Kingsport that I went to a few times when I was commuting. I'll have to get back to you on the name of the place. I have sucessfully eaten at Mello Mushroom. I was really suprised at how good their gluten free pizza was.

Curious, did your doctor diagnose you based on your blood work only? Is your doctor recommending a scope? Some doctors will diagnose based on blood work alone. Rarely there is false positives, but a lot of false negatives. If you are going to have a scope/biopsy done however, stay eating a regular diet until it is over. Also it is recommended that all first degree relatives get screened for celiac (parents, siblings, children) because their risk increases from 1 in 133 to 1 in 22 having a first degree relative diagnosed.

I would start by eating things that are naturally gluten free like fresh meats, veggies and fruit. Dairy is fine unless you are having issues with it. Do you live alone or live with someone, ie roomates, wife, kids..? If you do are you going to maintain a shared house or take the whole house gluten free? Here is what I did when I was first diagosed:

-Went through the pantry/fridge and got rid of anything I couldn't eat and that the other "gluten eaters" didn't want and donated what I could to the local food bank. I dedicated a drawer in the fridge and the top shelf of the pantry for gluten foods the rest being for gluten free. I scrubbed the kitchen down and all but one small section of the counter was gluten free. I set up my husband's toaster on the small section for him and he could make his gluten sandwiches etc.

-I replaced or bought another of: toaster, wooden spoons/cutting boards, waffle iron, scratched/worn pots & plastic storage containers, pasta strainer. I kept some of the worn pots for hubby to use for gluten things.

-I rid the entire house of any regular flour. There was to much risk since it can stay airborn for awhile and then settle down on the counters. Any baking was done gluten free and if the gluten eaters wanted something I couldn't/wouldn't make, they went to the bakery.

-All shared meals were gluten free. I had no interest in cooking separate meals. The gluten eaters had their cereal and had luch at work/school. Any gluten products had to be consumed at the table on a plate and the kids/hubby had to wash afterwords so they wouldn't cross contaminate surfaces in the house.

-Let gluten eaters finish up any condiments etc that may have been contaminated and replace with new for everyone to share. They don't cross contaminate because I either bought squeeze bottles or they scoop out of the containers what they want and never double dip. We share things like cheese and lunchmeat. My husband will have clean hands and take out what he wants and put it away before touching his bread.

-replaced any baking items/spices/herbs that may have been contaminated with flour (yeah the double dipping thing, I was guilty before)

-checked all my personal care items and made sure they were gluten free. If you have a girlfriend and she is not gluten free, she will need at least gluten free lip balm and lipstick incase you kiss. Your partner, if not gluten free, will need to brush teeth before kissing too.

I know it seems overwhelming at first, mistakes will happen, but it does get easier. I wish when I had gone gluten free I had someone to help me set things up. It would have been so much easier. If you have any questions or if I can help you with anything you can PM me.

Celtic Queen Explorer
Celtic Queen
Posted

I'm in Memphis, so I'm close to you Samie.

samie Contributor
samie
Posted
  • Author

Yeah that is close.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rebecca92 Apprentice
Rebecca92
Posted

I am right outside Nashville

Celtic Queen Explorer
Celtic Queen
Posted

Samie,

Do you go to the support group meetings? I think they're on the 3rd Tuesday at Whole Foods? I haven't been to one yet and was just curious.

samie Contributor
samie
Posted
  • Author

no i haven't i have been thinking about going but just have not been able to go. i probaly will soon got to get another car first

Celtic Queen Explorer
Celtic Queen
Posted

For my Memphis friends,

Huey's is now serving a gluten-free burger. It's comes on a "lettuce bun." It's wonderful. Tastes just like a regular Huey Burger. Unfortunately their fries aren't cooked in a dedicated fryer, so they're off limits. But at least we can eat their burgers.

samie Contributor
samie
Posted
  • Author

I will have to try that.

  • 3 weeks later...
millertl2 Rookie
millertl2
Posted

I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

Roda Rising Star
Roda
Posted

I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

What did you find out at Earth Fare? I might be intestered if more people show an interest. I'll have to see what I can dig up.

notme Experienced
notme
Posted

I am still looking for people in the Johnson City, TN area. I would like to get a group going in this area.

my daughter (goes to school at ETSU) works at the ruby tuesday up there. she will feed you safely! she recently served a group that had celiac people and they were thrilled that she knew how to keep their food 'good to eat' - she was excited to call and tell me about it :)

millertl2 Rookie
millertl2
Posted

Okay, Great!

Thank you

millertl2 Rookie
millertl2
Posted

What did you find out at Earth Fare? I might be intestered if more people show an interest. I'll have to see what I can dig up.

I asked at the Customer Service area, but they did not have any information about Celiac Groups or Gluten Free Groups. The management people that I spoke with were not very friendly nor helpful.

Desi83 Newbie
Desi83
Posted

I live in Murfreesboro, TN. There are Celiac support group meetings as Whole Foods? As in Cool Springs?

  • 1 year later...
whoknewafter25years Newbie
whoknewafter25years
Posted

hello. im from mount carmel and would be interested in support group. i am gluten free now for almost a year and have enormous improvement in digestive health. im neg for blood work and biopsy but was gluten free prior to each.i was pos stool for gluten sens.the diet is tough but so worth it. so thankful God revealed to me to do this.apartfrom accidental ingestions im healthier than i have been in 25 years. would love to share recipes or eating out options locally and even physician suggestions.my md is not convinced because of the neg tests.the stool test was suggested by my dietician who helped me more in 3sessions than docs in 25 yrs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.