Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Food Intolerances Do You Have Along With Celiac Disease?


CourtneyLee

Recommended Posts

CourtneyLee Contributor

I called The Coeliac Society, which is Australian. I was telling them how I am CONSTANTLY getting the symptoms coming back that I had before I was diagnosed, except they are 10 times worse.

The lady was lovely and she suggested that I see a dietician and do an elimination diet.

It just got me wondering, what are you guys unable to eat along with gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diane-in-FL Explorer

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

CourtneyLee Contributor

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

I really hope I'm not able to eat anything else other than gluten :( I wont be able to cope haha

jststric Contributor

My list is rather lengthy and it all hit about the same time...suddenly at age 47. Glutens, dairy, nuts, eggs, beans and rice. I have gotten where I can do rice in a very limited amount and only occasionally. And I can do Lactaid milk and an occasional few bites of fresh mozzeralla and brie. I think the Lactaid helps with that.

alex11602 Collaborator

Dairy and soy for both my daughters and I plus egg yolks and sweet potatoes for my youngesst and high fructose corn syrup (or too much sugar in general) for me and both my girls get moody when they have artificial colorings and my oldest gets an upset stomach with too many preservatives now that we eat mostly whole foods.

NikkiV Newbie

For me it Dairy,soy, Citric Acid, and high Fructose/ high sugar. Yeah... It really sucks. High quantities of Corn also make my stomach very uncOmfortable. I can have a little but not munch on more than 1/4 cup of Corn-based Cereal

mushroom Proficient

Corn, soy, nightshades (tomatoes, potatoes, eggplant, peppers), legumes (all dried or fresh beans/peas/lentils), citrus. Can now do lactose again and one slice of bread made with some potato starch every four days (I finally got to try Udi's!!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I reacted to all sorts of things. It was really hard to figure out what was going on. The list of things that I might be intolerant to got longer and longer. The reactions felt the same as my gluten reaction. Finally I realized that it was all gluten, just vey tiny amounts. If I sourced my foods more carefully I was able to tolerate all the things that I had thought I might be intolerant to. I'm a big gardener now. It is something to consider.

Krystalcatt Newbie

I had a food intolerance blood test done 2 years ago, it came back with 45 different things. Certain spices and herbs, almost all grains (except 3), all dairy (including casien and goat), whole eggs, and a few here and there things. I did better excluding them. Then I started again eating 'normal' got ill and continued until the celiac test. Now I'm back to them especially since I was diagniosed with celiac. The major ones are grains, dairy, eggs and gluten.

PadmeMaster Apprentice

I've learned that I can't have dairy.. hoping to never add another to that list.. Two's bad enough.. I already miss cheese! (dairy free since Sat, but had some cheese on lunch yesterday and regret it now. It makes me bloated with gassy feelings.. can't sleep) It's actually what made me think I have Celiac instead of just a gluten intolerance.

Waverlywoods Rookie

Eggs and almonds both IGG delayed reactions. I plan on getting tested every 6 mo or at least once a year from now on.

BethJ Rookie

At first it seemed like everything except meat and seafood caused problems but after three years gluten-free, I've narrowed it down to fruit and alcohol. I've added fruit back in but I have to be very careful not to overdo it. I finally just gave up on alcohol so I haven't had a drop in over a year now.

I still have problems at times so I suspect this is going to be an ongoing process.

bartfull Rising Star

Gluten and corn so far (I think). I don't know about soy yet because I haven't touched any since June 5th. I seemed to have a D reaction the last couple of times I ate yams. I have been eating cheese without any apparent problems. Eggs too.

All in all, I don't really know yet. :huh:

Welda Johnson Newbie

I am intolerant of all grains, all milk & dairy products (including casein and whey), egg whites, yeast, maltodextrin & modified food starch. So, I am able to eat meat, fruits & vegetables.

JRS Rookie

Something to consider: I am lucky enough to have a Chiropractor/Nutritionist/Wellness clinic very near to me. They do everything from detox to physical therapy to counseling to acupuncture to nutrition evals etc. They claim they can "heal the total body" and they are amazing!!! The nutritionist (NOT a dietian, sooooooo much more) at this specific office can do a blood test that literally tests your blood to see how it reacts with 300 different allergens and known irritants (from mustard to gluten to diary to mushrooms etc). He also has several techniques to healing and recovering a body from a storm of autoimmune and allergen reactions. I've always believed that when you are exposed to something you react to for too long your body starts to think other things are trying to attack it as well. Most of the celiac people i know in person seem to suffer more with other irritants/allergens if it took longer to be diagnosed. Consider a detox/cleanse monitored by a chiropractor or nutritonist. Also consider a plain whole food/organic diet for a few months to see if you can calm your body down. Perhaps things you react to now may go away/heal with the right diet and nutrients.

T.H. Community Regular

My official allergies are: soy, dairy, potatoes, egg yolks and egg whites, chicken, some legumes, sugarcane, and coffee.

I dropped them all, and since then, I get noticeably sick with all of them, no matter the source, so far.

On top of that, all grains make me ill, especially corn. However, since going gluten-free, I've discovered I'm super sensitive like DilettanteSteph, so I'm a unsure if it is the grains themselves, or gluten cc. I am growing some of them, like the corn, in my own yard so I can determine whether the food itself or gluten cc is the problem.

I highly suspect I react to certain pesticides too, as I have started to have headaches and a few other issues with some fruits and vegetables that are typically grown with a high pesticide load. These are not my normal gluten reactions, and they don't happen if I grow the food in my own backyard, so I'm guessing it has to be something added to the plant during the farming process, you know?

Oh, and I will say - a dietician helped me quite a bit, but she was the second one I tried. The first was sweet, but not very useful. If you find one, you'll want one who is well versed in allergies and the food industry, so she'll know what you need to avoid to truly eliminate something.

Some examples: Dairy is added to latex products. White rice is often polished with corn products. Baking powder can contain potato starch. Salt has anti-caking agents.

If you don't have a dietician who knows these types of things, you won't get as much help as you should.

bartfull Rising Star

Cheese is another product that may have corn. Some companies dust their blocks of cheddar with corn starch.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748

    dcarter1682
    Newest Member
    dcarter1682
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.