Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Food Intolerances Do You Have Along With Celiac Disease?


CourtneyLee

Recommended Posts

CourtneyLee Contributor

I called The Coeliac Society, which is Australian. I was telling them how I am CONSTANTLY getting the symptoms coming back that I had before I was diagnosed, except they are 10 times worse.

The lady was lovely and she suggested that I see a dietician and do an elimination diet.

It just got me wondering, what are you guys unable to eat along with gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Diane-in-FL Explorer

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

CourtneyLee Contributor

For me, it is dairy and soy. That's what I have figured out so far. Soy is sneaky; it's in many things, like mayo, canned tuna.......you have to be even MORE diligent in reading labels than we already are. Just when you think you are doing well, along comes another food saboteur!

I really hope I'm not able to eat anything else other than gluten :( I wont be able to cope haha

jststric Contributor

My list is rather lengthy and it all hit about the same time...suddenly at age 47. Glutens, dairy, nuts, eggs, beans and rice. I have gotten where I can do rice in a very limited amount and only occasionally. And I can do Lactaid milk and an occasional few bites of fresh mozzeralla and brie. I think the Lactaid helps with that.

alex11602 Collaborator

Dairy and soy for both my daughters and I plus egg yolks and sweet potatoes for my youngesst and high fructose corn syrup (or too much sugar in general) for me and both my girls get moody when they have artificial colorings and my oldest gets an upset stomach with too many preservatives now that we eat mostly whole foods.

NikkiV Newbie

For me it Dairy,soy, Citric Acid, and high Fructose/ high sugar. Yeah... It really sucks. High quantities of Corn also make my stomach very uncOmfortable. I can have a little but not munch on more than 1/4 cup of Corn-based Cereal

mushroom Proficient

Corn, soy, nightshades (tomatoes, potatoes, eggplant, peppers), legumes (all dried or fresh beans/peas/lentils), citrus. Can now do lactose again and one slice of bread made with some potato starch every four days (I finally got to try Udi's!!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I reacted to all sorts of things. It was really hard to figure out what was going on. The list of things that I might be intolerant to got longer and longer. The reactions felt the same as my gluten reaction. Finally I realized that it was all gluten, just vey tiny amounts. If I sourced my foods more carefully I was able to tolerate all the things that I had thought I might be intolerant to. I'm a big gardener now. It is something to consider.

Krystalcatt Newbie

I had a food intolerance blood test done 2 years ago, it came back with 45 different things. Certain spices and herbs, almost all grains (except 3), all dairy (including casien and goat), whole eggs, and a few here and there things. I did better excluding them. Then I started again eating 'normal' got ill and continued until the celiac test. Now I'm back to them especially since I was diagniosed with celiac. The major ones are grains, dairy, eggs and gluten.

PadmeMaster Apprentice

I've learned that I can't have dairy.. hoping to never add another to that list.. Two's bad enough.. I already miss cheese! (dairy free since Sat, but had some cheese on lunch yesterday and regret it now. It makes me bloated with gassy feelings.. can't sleep) It's actually what made me think I have Celiac instead of just a gluten intolerance.

Waverlywoods Rookie

Eggs and almonds both IGG delayed reactions. I plan on getting tested every 6 mo or at least once a year from now on.

BethJ Rookie

At first it seemed like everything except meat and seafood caused problems but after three years gluten-free, I've narrowed it down to fruit and alcohol. I've added fruit back in but I have to be very careful not to overdo it. I finally just gave up on alcohol so I haven't had a drop in over a year now.

I still have problems at times so I suspect this is going to be an ongoing process.

bartfull Rising Star

Gluten and corn so far (I think). I don't know about soy yet because I haven't touched any since June 5th. I seemed to have a D reaction the last couple of times I ate yams. I have been eating cheese without any apparent problems. Eggs too.

All in all, I don't really know yet. :huh:

Welda Johnson Newbie

I am intolerant of all grains, all milk & dairy products (including casein and whey), egg whites, yeast, maltodextrin & modified food starch. So, I am able to eat meat, fruits & vegetables.

JRS Rookie

Something to consider: I am lucky enough to have a Chiropractor/Nutritionist/Wellness clinic very near to me. They do everything from detox to physical therapy to counseling to acupuncture to nutrition evals etc. They claim they can "heal the total body" and they are amazing!!! The nutritionist (NOT a dietian, sooooooo much more) at this specific office can do a blood test that literally tests your blood to see how it reacts with 300 different allergens and known irritants (from mustard to gluten to diary to mushrooms etc). He also has several techniques to healing and recovering a body from a storm of autoimmune and allergen reactions. I've always believed that when you are exposed to something you react to for too long your body starts to think other things are trying to attack it as well. Most of the celiac people i know in person seem to suffer more with other irritants/allergens if it took longer to be diagnosed. Consider a detox/cleanse monitored by a chiropractor or nutritonist. Also consider a plain whole food/organic diet for a few months to see if you can calm your body down. Perhaps things you react to now may go away/heal with the right diet and nutrients.

T.H. Community Regular

My official allergies are: soy, dairy, potatoes, egg yolks and egg whites, chicken, some legumes, sugarcane, and coffee.

I dropped them all, and since then, I get noticeably sick with all of them, no matter the source, so far.

On top of that, all grains make me ill, especially corn. However, since going gluten-free, I've discovered I'm super sensitive like DilettanteSteph, so I'm a unsure if it is the grains themselves, or gluten cc. I am growing some of them, like the corn, in my own yard so I can determine whether the food itself or gluten cc is the problem.

I highly suspect I react to certain pesticides too, as I have started to have headaches and a few other issues with some fruits and vegetables that are typically grown with a high pesticide load. These are not my normal gluten reactions, and they don't happen if I grow the food in my own backyard, so I'm guessing it has to be something added to the plant during the farming process, you know?

Oh, and I will say - a dietician helped me quite a bit, but she was the second one I tried. The first was sweet, but not very useful. If you find one, you'll want one who is well versed in allergies and the food industry, so she'll know what you need to avoid to truly eliminate something.

Some examples: Dairy is added to latex products. White rice is often polished with corn products. Baking powder can contain potato starch. Salt has anti-caking agents.

If you don't have a dietician who knows these types of things, you won't get as much help as you should.

bartfull Rising Star

Cheese is another product that may have corn. Some companies dust their blocks of cheddar with corn starch.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

    2. - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

    3. - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

    5. - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,253
    • Most Online (within 30 mins)
      7,748

    catnapt
    Newest Member
    catnapt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.