Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scalloped Sides Of Tongue. Trying To Figure Out Why


sreese68

Recommended Posts

sreese68 Enthusiast

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



adab8ca Enthusiast

oh my. these laundry lists of symptoms are always so frustrating, aren't they? you feel like you need to be a detective to sort out what's wrong!

ok, the obvious, any chance you are ingesting gluten by accident? supplements? something with undisclosed ingridients that may be processed?

i know there ar antibody tests for Sjogrens and they can run ANA's that give you an idea if you have some other autoimmune condition but like the celiac antibodies, I think it may be imperfect. Maybe a rheumotologist can give you some direction.

sorry you are not well. We all are so happy when gluten is the problem and other "stuff" seems to creep in.

ravenwoodglass Mentor

I would also see your dentist. The scalloped tongue with teeth marks and the jaw issue could mean you are grinding your teeth at night. A night guard should help. I no longer grind my teeth in my sleep but have taught myself over the years to keep my tongue between my teeth because of bad teeth and grinding. I also have ridges in my cheeks for the same reason.

AMom2010 Explorer

I have had a scalloped tongue frOm pressing against my teeth for as long as I can remember. I too have been extremely thirsty for the last couple of years. I have been gluten free for 8 weeks and I just checked my tongue and it is still scalloped. Who knows?

pricklypear1971 Community Regular

Ditto on the dentist. I'm a teeth grinder and that's a symptom. Also, jaw popping is a precursor to TMJ.

You may be showing signs if peri/Pre menopause. Get a Dr. John Lee book. Progesterone cream is miraculous stuff.

You may also gave other issues - autoimmune, etc.

It's never one thing, I've found.

Good luck, and find a way to de-stress and relax. Facial massage is a gift from heaven for TMJ/grinding.

ravenwoodglass Mentor

Facial massage is a gift from heaven for TMJ/grinding.

Do you know of any good books or links to how to do this yourself? I know I keep the muscles in my face tense because sometimes on it's own I can feel all the muscles in my forehead relax. Real weird feeling and can't figure out how to do it when I want to as it seems involuntary.

Bubba's Mom Enthusiast

I found several artcles about scalloped tongue. Here's a good one..

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Do you know of any good books or links to how to do this yourself? I know I keep the muscles in my face tense because sometimes on it's own I can feel all the muscles in my forehead relax. Real weird feeling and can't figure out how to do it when I want to as it seems involuntary.

Unfortunately, no. If you find one let me know!

Reba32 Rookie

most definitely see your dentist.

stella6923 Newbie

I ended up with a scalloped tongue after having thrush.From which I found out that also have an yeast allergy.

mamaw Community Regular

I had this plus angio lympathic edema of the tongue, lips & soft tissue on mouth after I was given levothyroxine... it started out with scalloped tongue then went from bad to much worse...it took 8 months to get better , my taste buds are still not correct yet...

I have many of the same symptoms as you in your laundry list.....

Laurarose Newbie

I get the tongue thing when I have had gluten, a sore or blister and a swollen tongue. its even hard to talk! then the soreness travels down my throat and into my ear canal. It feels like an infection but the doc says theres nothing there.

sreese68 Enthusiast

Thanks everyone! I've had a migraine all weekend off and on, or I would have replied sooner. I just made an appointment with my dentist for next week. I discovered that I do clench my teeth, so tmj is a possibility. I discovered I have lines inside my cheeks and on my bottom inner lip that line up with where my teeth go together.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,112
    • Most Online (within 30 mins)
      7,748

    tomhaley
    Newest Member
    tomhaley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.