Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching But No Rash


sleer

Recommended Posts

sleer Contributor

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba32 Rookie

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

sleer Contributor

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

Thank you Reba. I wasn't thinking I had DH since I don't have any type of rash. I just have an itchiness and I have yet to pinpoint what it's related to and was hoping others could shed some light on it. I haven't been gluten free for that long so it's hard to tell if its going to go away with that change.

Jnkmp8 Newbie

Hi

I find I itch & my skin feels a burning sensation for about 2-5 days before my DH rash comes out! Try riotous tea as a soak I find it soothes the inflammation/burning & itching.

Wish you better

Xx

Jnkmp8 Newbie

Sorry that was supposed to read Roobios tea!! X

pricklypear1971 Community Regular

I know someone else posted about this in the last week or so...try a search and see if you can find it. I don't think it was the title, but in the responses.

I know, not a lot to go on.

mushroom Proficient

For me, once I went gluten free, the no-rash itching was a sign of an additional intolerance -- in my case it was was soy. I discovered lots of other things that caused rashes and itching and it was a while before I sorted them all out :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....

I have trouble with my liver function and when my bilirubins are high I have an EXTREME itch all over my body with out a rash.(Especially down there.. Before the doc's realized it was my liver function I kept getting tested for a bladder infection and they were always negative )

Just to note I also have DH , this is different

rain Contributor

I had a crazy itch with a mostly a non-DH rash for over a year. Some of the locations, my thighs and stomach, would itch with no rash. A rash would develop after I itched. It started at the same time I went gluten free. 3 rounds of antibiotics (Doryx twice - that seemed the best) pretty much cured it. (My face is still very sensitive so I am using a cortisone cream as needed.) During that time I tried eliminating every food I could think of with no affect on my skin. So I've concluded that I must have either had an infection or been purging toxins. I've eliminated gluten, minimize dairy (milk in tea, occasional yoghurt) and foods which aggravate acidity.

You have my sympathies, I had no idea a rash could be so maddening until what I went through. I hope it goes away soon.

IrishHeart Veteran

I had serious itching issues --drove me mad :blink: --and RED & burning skin (like a sunburn --my skin felt like it was on fire!) and red "wet" sores on my scalp before I was Dxed. I even had a red, raised "butterfly" rash on my face--which was suspected as lupus, but it was not, thank God. My itching/sores are NOT DH, I am sure --and it all resolved about 4-5 months after I was gluten-free.

One thing that I found would bring those red sores and itching back was (1) accidental gluten ingestion and (2) the shampoo I was using---before I became an expert label reader, I failed to notice "hydrolyzed wheat protein" in my shampoo and hair spray. :rolleyes:

Thanks to the people on here, I found the culprit pretty early on and now, about 9 months gluten-free, no more itching. It is maddening and uncomfortable and I hope it resolves soon for you!

Check labels and hang in there ;) --best wishes!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.