Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching But No Rash


sleer

Recommended Posts

sleer Contributor

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba32 Rookie

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

sleer Contributor

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

Thank you Reba. I wasn't thinking I had DH since I don't have any type of rash. I just have an itchiness and I have yet to pinpoint what it's related to and was hoping others could shed some light on it. I haven't been gluten free for that long so it's hard to tell if its going to go away with that change.

Jnkmp8 Newbie

Hi

I find I itch & my skin feels a burning sensation for about 2-5 days before my DH rash comes out! Try riotous tea as a soak I find it soothes the inflammation/burning & itching.

Wish you better

Xx

Jnkmp8 Newbie

Sorry that was supposed to read Roobios tea!! X

pricklypear1971 Community Regular

I know someone else posted about this in the last week or so...try a search and see if you can find it. I don't think it was the title, but in the responses.

I know, not a lot to go on.

mushroom Proficient

For me, once I went gluten free, the no-rash itching was a sign of an additional intolerance -- in my case it was was soy. I discovered lots of other things that caused rashes and itching and it was a while before I sorted them all out :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....

I have trouble with my liver function and when my bilirubins are high I have an EXTREME itch all over my body with out a rash.(Especially down there.. Before the doc's realized it was my liver function I kept getting tested for a bladder infection and they were always negative )

Just to note I also have DH , this is different

rain Contributor

I had a crazy itch with a mostly a non-DH rash for over a year. Some of the locations, my thighs and stomach, would itch with no rash. A rash would develop after I itched. It started at the same time I went gluten free. 3 rounds of antibiotics (Doryx twice - that seemed the best) pretty much cured it. (My face is still very sensitive so I am using a cortisone cream as needed.) During that time I tried eliminating every food I could think of with no affect on my skin. So I've concluded that I must have either had an infection or been purging toxins. I've eliminated gluten, minimize dairy (milk in tea, occasional yoghurt) and foods which aggravate acidity.

You have my sympathies, I had no idea a rash could be so maddening until what I went through. I hope it goes away soon.

IrishHeart Veteran

I had serious itching issues --drove me mad :blink: --and RED & burning skin (like a sunburn --my skin felt like it was on fire!) and red "wet" sores on my scalp before I was Dxed. I even had a red, raised "butterfly" rash on my face--which was suspected as lupus, but it was not, thank God. My itching/sores are NOT DH, I am sure --and it all resolved about 4-5 months after I was gluten-free.

One thing that I found would bring those red sores and itching back was (1) accidental gluten ingestion and (2) the shampoo I was using---before I became an expert label reader, I failed to notice "hydrolyzed wheat protein" in my shampoo and hair spray. :rolleyes:

Thanks to the people on here, I found the culprit pretty early on and now, about 9 months gluten-free, no more itching. It is maddening and uncomfortable and I hope it resolves soon for you!

Check labels and hang in there ;) --best wishes!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.