Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching But No Rash


sleer

Recommended Posts

sleer Contributor

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Reba32 Rookie

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

sleer Contributor

DH would be evident with a rash. All over itchiness could be a symptom of other allergies, or a neurological reaction to gluten.

Thank you Reba. I wasn't thinking I had DH since I don't have any type of rash. I just have an itchiness and I have yet to pinpoint what it's related to and was hoping others could shed some light on it. I haven't been gluten free for that long so it's hard to tell if its going to go away with that change.

Jnkmp8 Newbie

Hi

I find I itch & my skin feels a burning sensation for about 2-5 days before my DH rash comes out! Try riotous tea as a soak I find it soothes the inflammation/burning & itching.

Wish you better

Xx

Jnkmp8 Newbie

Sorry that was supposed to read Roobios tea!! X

pricklypear1971 Community Regular

I know someone else posted about this in the last week or so...try a search and see if you can find it. I don't think it was the title, but in the responses.

I know, not a lot to go on.

mushroom Proficient

For me, once I went gluten free, the no-rash itching was a sign of an additional intolerance -- in my case it was was soy. I discovered lots of other things that caused rashes and itching and it was a while before I sorted them all out :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I know DH is one of the horrible and prevalent symptoms of gluten allergy/celiac. But I'm wondering if anyone has experienced itching (pretty much all over) but without a rash as a symptom. I had it mostly on my side, back (occassionally) my foot and down there.....

I have trouble with my liver function and when my bilirubins are high I have an EXTREME itch all over my body with out a rash.(Especially down there.. Before the doc's realized it was my liver function I kept getting tested for a bladder infection and they were always negative )

Just to note I also have DH , this is different

rain Contributor

I had a crazy itch with a mostly a non-DH rash for over a year. Some of the locations, my thighs and stomach, would itch with no rash. A rash would develop after I itched. It started at the same time I went gluten free. 3 rounds of antibiotics (Doryx twice - that seemed the best) pretty much cured it. (My face is still very sensitive so I am using a cortisone cream as needed.) During that time I tried eliminating every food I could think of with no affect on my skin. So I've concluded that I must have either had an infection or been purging toxins. I've eliminated gluten, minimize dairy (milk in tea, occasional yoghurt) and foods which aggravate acidity.

You have my sympathies, I had no idea a rash could be so maddening until what I went through. I hope it goes away soon.

IrishHeart Veteran

I had serious itching issues --drove me mad :blink: --and RED & burning skin (like a sunburn --my skin felt like it was on fire!) and red "wet" sores on my scalp before I was Dxed. I even had a red, raised "butterfly" rash on my face--which was suspected as lupus, but it was not, thank God. My itching/sores are NOT DH, I am sure --and it all resolved about 4-5 months after I was gluten-free.

One thing that I found would bring those red sores and itching back was (1) accidental gluten ingestion and (2) the shampoo I was using---before I became an expert label reader, I failed to notice "hydrolyzed wheat protein" in my shampoo and hair spray. :rolleyes:

Thanks to the people on here, I found the culprit pretty early on and now, about 9 months gluten-free, no more itching. It is maddening and uncomfortable and I hope it resolves soon for you!

Check labels and hang in there ;) --best wishes!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

    4. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    5. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,648
    • Most Online (within 30 mins)
      7,748

    anonymous54
    Newest Member
    anonymous54
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.