Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can An Infant Have Gluten Problems?


glutenfreemamax2

Recommended Posts

glutenfreemamax2 Enthusiast

I have been excluding bf'ing my 6 week old. I was gluten-free through my pregnancy, but started eating gluten te last 3 weeks of my pregnancy and 2 weeks after(I was doing a gluten challenge but started feeling so ba I went back gluten-free).

He has on and off green poop. It's also stringy and mucusy. When I get glutened, I notice that r is miserable, stomach gurgling, reflux is way worse, and it's like diareaha. E was on prevacid solutabs an I wondered if they were gluten-free because the reaction was so bad. I stopped them and switched o zantac.

I have a pedi gi appointment tomorrow an want to know what questions i should be asking. I will be loosing my insurance at the end of the month.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

Yes they can absolutely. Even if its not gluten it sounds like he is reacting to something that you are eating. And the more you read on here lots of people also react to nightshades and soy...I'd start by taking your baby to a Dr that is good (recommended) with things like celiac and food intolerances. Good luck!

glutenfreemamax2 Enthusiast

Me pedi is no help and knows nothing about breastfeeding. He told me as long as there is no blood doesn't have a problem with food. I don't want there to be that much damage that he bleeds. Hopefully the gi is more knowlagable, but I really don't think she is. There is no one in the area who is knowlagable, and she is the only gastro pedi with in like 70 miles.

codetalker Contributor

I was DX

beebs Enthusiast

Me pedi is no help and knows nothing about breastfeeding. He told me as long as there is no blood doesn't have a problem with food. I don't want there to be that much damage that he bleeds. Hopefully the gi is more knowlagable, but I really don't think she is. There is no one in the area who is knowlagable, and she is the only gastro pedi with in like 70 miles.

You need a new Dr - that is the most ridiculous thing I have ever heard. Some Celiacs have no symptoms whatsoever! Not to mention my kids never had blood in their poo - and they were sick as anything and their stools were horrifying! :rolleyes: Yet another Dr giving out ridiculous advice.

jebby Enthusiast

Are you drinking milk or consuming dairy? We see tons of infants who react to casein, which is one of the major proteins in cow's milk, and can easily pass through breastmilk. My oldest had a severe milk protein intolerance in her first few months of life, with green stools with mucus, bad reflux, and we couldn't get her to gain weight. The latest statistics I've seen is that 3-5% of infants have some degree of reaction to cow's milk proteins.

M0Mto3 Rookie

I agree with pp that it sounds more like a dairy issue. My DD started to react to gluten that was passing through breastmilk, but the amount that passes through breastmilk is fairly small (some doc's don't believe it is enough to cause any issues). We had no idea that she was reacting until she started dropping in weight %. She started at the 50th% and maintained this until she was 2 months old. Then, as the gluten started to destroy her small intestine she started dropping in weight %. Her bms were always funky, but didn't get bad until she had destruction to the small intestine.

My ODS had the dairy intolerance and he would vomit if I ate any dairy products. This is extremely common in infants. Celiacs in infants is extrememly rare. It would probably benefit your LO to try a dairy/soy free diet. My ped GI told me that 50% of the time LOs who react to dairy also react to soy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

At 6 weeks it's highly unlikely to be a gluten thing.

richard

salexander421 Enthusiast

At 6 weeks it's highly unlikely to be a gluten thing.

richard

Sorry, but I totally disagree with this. My girly started having problems at 8 weeks. We first suspected dairy and took that out of my diet and she got better but her symptoms were not completely gone. It took a super strict elimination diet to get rid of all her symptoms and finally when she was around 12 months we finally realized that gluten was at the base of her issues. She has not had any testing yet (doctors have not been super supportive, it would be really good if you can find a more supportive doctor) but we know she carries at least one of the genes and she has major symptoms which include a rash that fits the profile of dermatitis hepertiformis so we definitely suspect celiac.

I think you have 3 options here; you could continue eating the way your eating and wait until your little one's older and the symptoms are worse and maybe a doctor would be willing to test, you could change your diet and try to figure out what's causing the symptoms and eliminate those foods, or you could give up breastfeeding and hope that formula is the answer (some baby's have problems with even hypoallergenic formula).

If I were in your shoe's I would take out dairy and gluten and give it a few weeks and see how things are, then go from there.

glutenfreemamax2 Enthusiast

I'm not drinking or eating any dairy, but have not cut the "hidden" dairy. All the gluten-free stuff I eat is dairy free. These lo's need owners manuals!

My last son was extremely allergic to dairy and eggs. No one believed me until there was blood in his stool, then they told me "must be salmonella". It was food allergies.

pricklypear1971 Community Regular

If you have one with a dairy/egg problem, there's a good chance you have two. Seems to go that way, unfortunately.

Keep eliminating til you figure out what works.

Good luck, I know it's awful to watch them not feel well and not know how to fix it.

glutenfreemamax2 Enthusiast

Gi was awesome. She said defiantly stay away from gluten fair and eggs. Upped the Zantac dose, and asked me to put him on a probioic.

Said I should get gene testing done for me since I

gluten-free and didn't tolerate the gluten challenge. What does everyone think about that?

beebs Enthusiast

Gi was awesome. She said defiantly stay away from gluten fair and eggs. Upped the Zantac dose, and asked me to put him on a probioic.

Said I should get gene testing done for me since I

gluten-free and didn't tolerate the gluten challenge. What does everyone think about that?

Sounds like a good GI - I was thinking about what people were saying about it unlikely to be gluten at this age. Who really knows- my son screamed from the day he was born, refluxy, colicky and bad stools. He vomited every single day of his life and it caused ulcers in is esophagus, it only stopped when he went gluten free after his biopsy at 18 months old. At first the Drs where like leave it, it'll be ok, he'll grow out of it etc etc. Fast forward 2 years later, he has since had a borderline biopsy, he has been tested for CF, and basically everything under the sun. It looks like there is more to the story than just the gluten - but there is deffo a problem with gluten there. Which is unsurprising, considering I, my mother and her father are all the same.

As for the genes - I just got mine done. I am the same that I can't do a challenge. The positive gene and the severity of my reaction to gluten leaves no doubt in either my or my Drs mind that it is celiac. Even though its not diagnostic for someone who can't do a challenge it can be as good as we can get iykwim.

come dance with me Enthusiast

My nephew was a screamer for the first 3 months of his life. His parents are vegan so they weren't having any dairy or eggs at all anyway then I said to try a gluten free diet since my LO is coeliac and it's genetic and it's from my side not her father's side. My brother's wife cut out gluten from her diet and now he poos easily and sleeps better and is a whole lot happier. His problems began in the first month of his life.

Roda Rising Star

When I breast fed my youngest son I had to eliminate all dairy, oats, rice and tree nuts. Reflux was still an issue, but I didn't know about gluten at that time. Funny how I look back now and realize I felt pretty darn good during those first 12 months of breastfeeding, I was gluten light without knowing it. He was almost 4 when I was diagnosed and he tested negative. He started having issues again at 5 1/2 that led us to retest for celiac and he was positive. In hindsite I believe he had gluten issues as an infant and obviously I did too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.