Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 86 Of Going gluten-free And Not Feeling Good, Help?

KiwiBrit

Recommended Posts

KiwiBrit Rookie
KiwiBrit
Posted

Hello,

I am now on day 86 of being gluten-free and its been going ok. I have my up and down days, but I hear thats normal.

The past few days I have not been feeling well. I dont know whether its celiac related or im just getting sick.

I just spoke with my gastro (his assistant) she said it doesnt sound like anything celiac but she would ask him when he gets back, the end of this month. So I made an appt with my primary Dr today.

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

I guess the main reason im writing this is to see if any other women have had this happen.

I otherwise feel ok. Just weird. Is it menstral related?

Thanks for any advice.

-Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Anyone?

Di2011 Enthusiast
Di2011
Posted

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

If your mom went through menopause early, it sure sounds like you're having hot flashes. Those are absolutely classic symptoms with the flushing, heart pounding/racing, and feeling weird. I get oddly restless with mine and sometimes I break out in sweat. Once it's over I am often cold for a bit. I'm young for menopause too but it can happen early in us celiacs. The thing with hot flashes is that they're pretty fast and they can be intense. Mine come on fast and they can be over in 10-15 minutes. Putting my wrists under cool water or putting a cold cloth on my forehead helps a lot.

You can doublecheck with your Dr. that it's hot flashes and nothing more worrisome.

KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

I was born in the UK and grew up in NZ. :)

I looked at the soy allergy you posted and was surprised that that is a lot of what I have. Going to call my Dr on Monday and ask about being tested.

Thanks!

KiwiBrit Rookie
KiwiBrit
Posted
  • Author

Thanks Skylark. I mentioned early menopause to my Dr and she doesnt think so.

I just wish I was never sick again.

rosetapper23 Explorer
rosetapper23
Posted

Two possibilities: thyroid problem or B-12 deficiency. I have both problems, and when either gets out of hand, I end up with hot flashes and my heart pounds. These can both easily be tested for and are common in people with celiac, so perhaps your doctor would be willing to do them. Or....you could buy some sublingual Vitamin B-12 in the meantime and see if you start feeling better. Usually, my symptoms resolve after a day of taking the sublingual B-12. However, if you don't feel better, it might very well be your thyroid that is causing problems. When my Hashimoto's flares up, the hot flashes are acute and uncomfortable--bright, red face...and I feel as though I'm burning up. When I first started getting them, I thought it was menopausal because I'd just finished a round of chemo for breast cancer and could no longer menstruate. However, once I began taking thyroid medication, the hot flashes disappeared immediately.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Come to think of it, I haven't had any hot flashes since my Dr. upped my thyroid medicine a little.

heidi g. Contributor
heidi g.
Posted

anxiety?? That's how i feel when i start freaking out. Pounding heart and blood rushing especially. It feels like my blood is rushing and heart is pounding too. Especially with panich attacks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,169
    • Most Online (within 30 mins)
      7,748
    Lisa Crowley
    Newest Member
    Lisa Crowley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...