Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 86 Of Going gluten-free And Not Feeling Good, Help?


KiwiBrit

Recommended Posts

KiwiBrit Rookie

Hello,

I am now on day 86 of being gluten-free and its been going ok. I have my up and down days, but I hear thats normal.

The past few days I have not been feeling well. I dont know whether its celiac related or im just getting sick.

I just spoke with my gastro (his assistant) she said it doesnt sound like anything celiac but she would ask him when he gets back, the end of this month. So I made an appt with my primary Dr today.

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

I guess the main reason im writing this is to see if any other women have had this happen.

I otherwise feel ok. Just weird. Is it menstral related?

Thanks for any advice.

-Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KiwiBrit Rookie

Anyone?

Di2011 Enthusiast

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

Skylark Collaborator

I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.

I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.

Im also 40, my Mum said she had the 'change' early.

If your mom went through menopause early, it sure sounds like you're having hot flashes. Those are absolutely classic symptoms with the flushing, heart pounding/racing, and feeling weird. I get oddly restless with mine and sometimes I break out in sweat. Once it's over I am often cold for a bit. I'm young for menopause too but it can happen early in us celiacs. The thing with hot flashes is that they're pretty fast and they can be intense. Mine come on fast and they can be over in 10-15 minutes. Putting my wrists under cool water or putting a cold cloth on my forehead helps a lot.

You can doublecheck with your Dr. that it's hot flashes and nothing more worrisome.

KiwiBrit Rookie

Hi Kiwi Brit,

So are you a Kiwi in UK or Brit in NZ? :D

It does seem young for menopause but not unheard of.

I don't react to soy but I have read a lot~! Sounds a little similar to some peoples reaction to soy. Salicylates allergy symptoms might be worth checking too.

Perhaps you could test but be careful. I tend to wait until someone (or at least the phone) is around when I'm testing.

Do you avoid MSG?

You should talk to your mum and find out just how early she began noticing changes. The Doc needs to know and record that too.

Open Original Shared Link

Open Original Shared Link

I was born in the UK and grew up in NZ. :)

I looked at the soy allergy you posted and was surprised that that is a lot of what I have. Going to call my Dr on Monday and ask about being tested.

Thanks!

KiwiBrit Rookie

Thanks Skylark. I mentioned early menopause to my Dr and she doesnt think so.

I just wish I was never sick again.

rosetapper23 Explorer

Two possibilities: thyroid problem or B-12 deficiency. I have both problems, and when either gets out of hand, I end up with hot flashes and my heart pounds. These can both easily be tested for and are common in people with celiac, so perhaps your doctor would be willing to do them. Or....you could buy some sublingual Vitamin B-12 in the meantime and see if you start feeling better. Usually, my symptoms resolve after a day of taking the sublingual B-12. However, if you don't feel better, it might very well be your thyroid that is causing problems. When my Hashimoto's flares up, the hot flashes are acute and uncomfortable--bright, red face...and I feel as though I'm burning up. When I first started getting them, I thought it was menopausal because I'd just finished a round of chemo for breast cancer and could no longer menstruate. However, once I began taking thyroid medication, the hot flashes disappeared immediately.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Come to think of it, I haven't had any hot flashes since my Dr. upped my thyroid medicine a little.

heidi g. Contributor

anxiety?? That's how i feel when i start freaking out. Pounding heart and blood rushing especially. It feels like my blood is rushing and heart is pounding too. Especially with panich attacks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.