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Thankful To Be Gluten Free


Celtic Queen

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Celtic Queen Explorer

Like the rest of you guys, I'm having a hard time with the holidays coming up. There's lots of tempting gluteney food everywhere that I can't eat. And navigating the food at all the social events is like walking through a mine field.

But in the interest of being a "glass is half full" kind of girl, I was thinking about things I actually liked about having Celiac Disease. Things that made me thankful this holiday season. Here's a few I came up with:

1. My coupon clipping is much faster now, since I can't buy half the stuff in the insert. B)

2. My hair is slowly starting to grow back in. Yay!

3. I don't have to worry about putting on holiday pounds since I can't eat a lot of the treats that will be around.

4. I'm eating more fruits and veggies.

5. My friends and family have been so kind and supportive.

So, what are the things that Celiac Disease makes you grateful for this Thanksgiving?


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ravenwoodglass Mentor

I am thankful that I am still alive and not in daily pain anymore.

Don't miss the gluten at all....well, except for phyllo...

Lisa Mentor

I am thankful that I am still alive and not in daily pain anymore.

Don't miss the gluten at all....well, except for phyllo...

New puppy too? :D

IrishHeart Veteran

Not sure I am grateful for the disease itself, but I am damn grateful I figured out what was trying to kill me :blink: because being gluten free saved my life. :)

I am beyond grateful to my husband who never lost faith we would find an answer, who drove me to hundreds of doctor's appointments in 3 different states over 3 years, who picked me up off the floor when I was so weak, dressed me when I couldn't do it myself, and who held me when I was crying and scared that I was losing my mind and dying.

Thank God those days are behind me! I still have pain issues, but I am patient and hope for the best.

Grateful for this forum and the many who have guided and encouraged me. :)

You guys are the best!

This is the first Thanksgiving (and BIRTHDAY) since 2006 that I am going to enjoy my dinner! :) whoohoo!!! :) and pass me that gluten-free pie please!

Thanksgiving Blessings to everyone!!

IrishHeart Veteran

I am thankful that I am still alive and not in daily pain anymore.

Don't miss the gluten at all....well, except for phyllo...

Raven, I miss my baklava, too...but check this out!

looks like serious work, but do-able! :)

beebs Enthusiast

I am grateful that at least one of my autoimmune diseases can be put into remission with no hardcore drugs that are often worse than the disease itself. Seriously- I just think my mum is so lucky that she was undiagnosed for 40 years but it didn't trigger anything else. (Although her bones are shot to heck which is bad) . The other autoimmune stuff I have going on is awful - and the medications are worse. yayy for gluten free diets!

Lisa Mentor

Not sure I am grateful for the disease itself, but I am damn grateful I figured out what was trying to kill me :blink: because being gluten free saved my life. :)

I am beyond grateful to my husband who never lost faith we would find an answer, who drove me to hundreds of doctor's appointments in 3 different states over 3 years, who picked me up off the floor when I was so weak, dressed me when I couldn't do it myself, and who held me when I was crying and scared that I was losing my mind and dying.

Thank God those days are behind me! I still have pain issues, but I am patient and hope for the best.

Grateful for this forum and the many who have guided and encouraged me. :)

You guys are the best!

This is the first Thanksgiving since 2006 that I am going to enjoy my dinner! :) whoohoo!!! :) and pass me that gluten-free pie please!

I'm thankful for your kindness and good sense. :D And I proofread a little better because of you. :rolleyes:


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ravenwoodglass Mentor

New puppy too? :D

You bet. Wouldn't want to be without her although she is hardly a puppy. Actually I am thankful for that too as she was already crate trained and housebroken. :D I think she is thankful to be gluten free also because she doesn't have to deal with the upset tummy she had at the shelter and the first couple days here.

I am also thankful for the 16 year old kitty in pic with her and my other furry friends and I think they are thankful for being gluten free too.

And of course I am thankful for all the wonderful helpful and compassionate people here.

ravenwoodglass Mentor

Raven, I miss my baklava, too...but check this out!

looks like serious work, but do-able! :)

WOW!!!!!!!!!!

That's a video I am going to have to bookmark. Looks like a relaxing way to spend a winter afternoon. Thanks for posting. :)

Lori2 Contributor

I am grateful for this forum and all the patient posters. You never know when you will come across that post which will give you just the clue you need. So I read and read and read.

sandsurfgirl Collaborator

I'm thankful to be alive because a couple of months ago I felt like I might not make it.

I'm thankful for medicines that put me right.

I'm thankful that celiac is treatable with diet and much of the damage is reversible.

IrishHeart Veteran

I'm thankful for your kindness and good sense. :D And I proofread a little better because of you. :rolleyes:

aw, thanks, Lisa :) and I am grateful for you, too--as I told you last week, I sooooo appreciate your voice of reason and your humor! ;)

ElseB Contributor

I'm thankful I'm Canadian and our thanksgiving was over a month ago...looooong before Christmas! I don't know how you Americans manage two big holidays so close together (even if avoiding gluten wasn't an issue!). :)

Marilyn R Community Regular

I'm so thankful that I can sleep, and that we're eating healthier foods. Thanks for reminding us what it's all about.

rosetapper23 Explorer

I'm grateful that, even though it's sometimes difficult to walk because of damage from celiac, I still CAN walk.

I'm grateful that, although I'm often fatigued, I'm not as fatigued as I was before I knew I had celiac.

I'm grateful that my mother and son have fully recovered from celiac because of the gluten-free diet.

I'm grateful that there is hope that some of the remaining symptoms that I have will eventually go away over time.

I'm grateful that I now know what a healthful diet REALLY is.

I'm grateful for supportive family members and friends who are so careful to serve me safe food.

And, lastly, even though it was probably celiac that caused my breast cancer, I'm grateful that I now know how to eat better and live my life more fully because celiac made me realize that I need to enjoy each moment--I'm no longer in pain and want to get as much out of my life as possible.

Thanks to all of you wonderful people on this forum!!

IrishHeart Veteran

I'm thankful I'm Canadian and our thanksgiving was over a month ago...looooong before Christmas! I don't know how you Americans manage two big holidays so close together (even if avoiding gluten wasn't an issue!). :)

We don't know how/why we do it either. It's nuts! :lol:

bigbird16 Apprentice

I'm thankful for the wisdom, experience, friendship, and support I've found here on this board; my health and your health, that we have this opportunity to recover; good food that makes my body feel happy; friends who try to understand; family who probably will never "get it" but who I love anyway and especially; and my pups who make me laugh every day and cuddle with me when I feel icky.

Celtic Queen Explorer

I forgot to add on my original post that I'm grateful for everyone on this board too. You all have been such a big help to me as I try to figure everything out. It's nice to know that whatever issue I'm having, there's someone here to lend an ear, provide advice, and give support.

shakemysoul Newbie

I am thankful that I finally know why I have been in a spacey fog, weak and exhausted for 2 years straight. And very thankful to be feeling more normal again!

Also thankful for my sweet puppy Bailey who is 1 year old today and also gluten free! Thankful for no more runny messes in the house!

Happy Thanksgiving everyone!

IrishHeart Veteran

I am thankful that I finally know why I have been in a spacey fog, weak and exhausted for 2 years straight. And very thankful to be feeling more normal again!

Also thankful for my sweet puppy Bailey who is 1 year old today and also gluten free! Thankful for no more runny messes in the house!

Happy Thanksgiving everyone!

Good for you! Isn't it amazing to be "normal" again? This is what I would tearfully say to my hubby---I just want to be "normal" again. I want to be "me" again...that "lost in space" thing for 3 years was torturous and frightening....but, now I'm baaaack!!! :D

Yes, our kitty is gluten-free too...(as all pets should be, I think)her coat is gorgeous...now, if only MY hair would hurry up and grow back in.... :rolleyes:

Happy T-day to you!!!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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