Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has This Ever Happened To You?


gfpirate

Recommended Posts

gfpirate Rookie

Today we were doing a secret santa exchange for a club that I'm in. Beforehand, we all had to write on pieces of paper what our favorite candy was, etc; so the person drawing our name would have an idea of what to get us.

For mine, I specified that I'm allergic to wheat (I figured that would be easier than saying gluten, because more people know what wheat is).

I gave suggestions like Snickers and M&Ms and Hershey's dark chocolate, all of which are gluten-free.

So today I got my gift, and it was none other than Godiva Dark Chocolate, and on the package it said it contained WHEAT!! I was thinking, "Really? This person couldn't have taken the extra 5 seconds to check the label (it's clearly listed in the allergen statement)? And why couldn't they just have gotten one of the things I suggested??"

I know this sounds like an overreaction, and it probably is, I just needed to rant :P

I understand that it's the thought that counts, and I'm thankful they got me anything at all. I guess it's just the thoughtlessness that bothers me.

Anyone have any similar stories? The holidays can be tough with Celiac :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hey, Godiva!!! At least you have a nice gift to recycle :lol: No, peeps do not read labels much. Don't know if they even realize they are there. The only other people who read labels seem to be the ones counting calories.

gfpirate Rookie

Hey, Godiva!!! At least you have a nice gift to recycle :lol: No, peeps do not read labels much. Don't know if they even realize they are there. The only other people who read labels seem to be the ones counting calories.

Yes, I was very happy to give it to my mom who LOVES dark chocolate:)) You're totally right, if I didn't have Celiac I probably would assume chocolate didn't have wheat in it also:p

GFreeMO Proficient

It happens. Unless one is affected with celiac or food allergies, they don't pay attention to the ingredients. Just be glad that you didn't eat it!!

coco676 Newbie

I decided to avoid all Christmas functions with coworkers and my husband's coworkers because it's just not worth explaining the precautions I have to take. Sorry to hear that your Secret Santa was not v/ diligent.

Googles Community Regular

I'm conveniently avoiding the Christmas party tomorrow because I have a client and supervision. They are doing white elephant exchange, with my luck I would end up with gluten filled food at the end of it.

bigbird16 Apprentice

LOL For Christmas last year, my mom gave me a gluten-free bread mix and a regular wheaty cookie mix. I stuck the cookie mix in a plastic bag and gave it to a friend.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I'm conveniently avoiding the Christmas party tomorrow because I have a client and supervision. They are doing white elephant exchange, with my luck I would end up with gluten filled food at the end of it.

That would be the ultimate irony, wouldn't it?

I remember one time trading to get the most ridiculous gift because I had a need for a gag gift. Ironically, something glutenous now counts...

rosetapper23 Explorer

Yeah, I can relate. At our office holiday luncheon today, Outback Steakhouse catered it....but their idea of providing gluten-free "options" was to exclude serving me anything with gluten, not making any substitutions. That meant salad without dressing, no vegetables, and no dessert. I know that this particular restaurant has a gluten-free flourless chocolate cake, so I asked if they had brought one for me....and they said, "Oh, we should have thought of that. Sorry." Then there was a gift giveaway....and I won a gift certificate for an Outback Steakhouse "Blooming Onion," which is not gluten free. **sigh**

Also, I might add that my sister gives me, my mother, and both of my children (all of whom have celiac) a big tin of gingerbread cookies every Christmas even though she knows we can't eat them. My children feel so tempted, they usually end up cheating by eating a few of them...and then getting very sick. What's THAT all about?? What's wrong with her??

Oh, and lastly, tomorrow my boss is hosting a reception at Chevy's....and here in California, Chevy's doesn't accommodate people with celiac...so there will be nothing for me to eat. So, I will sit there politely nursing a drink and eating nothing. The holidays really tend to get me down...

dilettantesteph Collaborator

I got wheat germ oil containing lotion. I'll just give it away. It was hard enough for me to figure this stuff out. I can't expect it of casual acquaintances.

Darn210 Enthusiast

I'm sure they thought they were being generous with the Godiva . . . and in most cases they would be . . . and really why would anyone (other than the label-reading-celiacs (and their mothers ;) )think that there might be a possibility of wheat in chocolate.

I have to throw out a good story, too . . . just to remind people that it DOES happen . . .

Every year I get a call from the school nurse to remind me to send a gluten free cookie in for my daughter for the school holiday party. (I always appreciate the reminder because the holidays get so busy.) Last year's teacher didn't know that I would send something in and she knew that my daughter needed to be gluten free. She brought in a bag of gluten free cookies for her to make sure she had something.

Celtic Queen Explorer
Last year's teacher didn't know that I would send something in and she knew that my daughter needed to be gluten free. She brought in a bag of gluten free cookies for her to make sure she had something.

What an awesome teacher. She deserves a raise :)

It is hard this time of year. We get a lot of food at the office. I just keep telling myself my coworkers that I'm going to be really skinny by the time the holidays are over because I'm not eating any of that stuff.

lynnelise Apprentice

That would annoy me too! I guess the person was probably thinking they were being generous and giving you an upgrade. Who would think wheat was in chocolate? Crazy.

Of course the people I work with offer me cookies all the time and don't seem to understand that flour=wheat=gluten. I will tell them I can't have one and they look so surprised and say "gluten is in everything!" lol.

Mom of Boys Rookie

Would it be wrong to bring your own food?

Yeah, I can relate. At our office holiday luncheon today, Outback Steakhouse catered it....but their idea of providing gluten-free "options" was to exclude serving me anything with gluten, not making any substitutions. That meant salad without dressing, no vegetables, and no dessert. I know that this particular restaurant has a gluten-free flourless chocolate cake, so I asked if they had brought one for me....and they said, "Oh, we should have thought of that. Sorry." Then there was a gift giveaway....and I won a gift certificate for an Outback Steakhouse "Blooming Onion," which is not gluten free. **sigh**

Also, I might add that my sister gives me, my mother, and both of my children (all of whom have celiac) a big tin of gingerbread cookies every Christmas even though she knows we can't eat them. My children feel so tempted, they usually end up cheating by eating a few of them...and then getting very sick. What's THAT all about?? What's wrong with her??

Oh, and lastly, tomorrow my boss is hosting a reception at Chevy's....and here in California, Chevy's doesn't accommodate people with celiac...so there will be nothing for me to eat. So, I will sit there politely nursing a drink and eating nothing. The holidays really tend to get me down...

Mom of Boys Rookie

I'm sure they thought they were being generous with the Godiva . . . and in most cases they would be . . . and really why would anyone (other than the label-reading-celiacs (and their mothers ;) )think that there might be a possibility of wheat in chocolate.

I have to throw out a good story, too . . . just to remind people that it DOES happen . . .

Every year I get a call from the school nurse to remind me to send a gluten free cookie in for my daughter for the school holiday party. (I always appreciate the reminder because the holidays get so busy.) Last year's teacher didn't know that I would send something in and she knew that my daughter needed to be gluten free. She brought in a bag of gluten free cookies for her to make sure she had something.

We need a "like" button! HOw sweet of that teacher!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.