Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I'm Missing Something....


upwitht21

Recommended Posts

upwitht21 Rookie

Hi everyone and merry Christmas,

So my family has been gluten free for about a month. New cookware, toaster, strainer, ect have been purchased. I've been really trying to avoid processed food but I think I'm missing something. My bone pain has definitely improved but now I have stomach problems I didn't have before. Is there anything that you guys missed at first that I should look at changing? I changed lotions and things like that as well.

Thanks!

Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

Marilyn R Community Regular

sorry, how long have you been gluten free?

it took 3-6 months before certain symptoms of mine resolved. I experienced a new symptom--bloating and gas--which was new, but went away in time.

healing is so confusing.

If your gut is damaged, it could also be one of the common culprits like dairy, soy, corn or other grains (like certifed gluten-free oats or other "safe" grains. Fortunately these may be items you can safely reintroduce in time. Foods in the nightshade family bother some people after going gluten-free too.

Try keeping a food diary. It also helped me to go to an allergist. Good luck!

upwitht21 Rookie

I had zero stomach problems before I changed my diet. I was actually tested because we have fertility problems. In a lot of ways I feel worse than I did. We decided that I wouldn't do a biopsy since my labs were all high but I'm considering going back on gluten and having the biopsy. I've only been gluten free for a about a month. I've been avoiding dairy as much as possible and I'm not s huge fan of tomatoes or the other nightshade veggies so they aren't a problem.

I'm so incredibly frustrated right now.

mamaw Community Regular

Your body may be de-toxing. A month is really nothing in terms of being gluten-free.. I call it the infancy stage. It can take several years for some people to feel better ... Everyone is different..You have taken out (wheat) something that your body was having to digest for probably years & years, then all of a sudden you take it away.. Body just may be having withdrawals & fighting back...

You could try some digestive enzymes ( I use Digest Gold) and probiotics... I think I would try anything before having to go back to eating gluten ! Also very clean eating could help for a few months. Cutting out processed foods & junk foods....just a plain basic diet...

eatmeat4good Enthusiast

I had a lot of stomach rumbling and nausea in the first few months gluten free. Your stomach isn't used to not having to deal with gluten. I had to use Promethazine by prescription for the nausea. I decided the "baby villi" were just trying to grow back. It was a long few months and I had secondary intolerances too. I didn't think I would have the secondary intolerances, but dairy, soy, preservatives, and salicylates all bothered me in the early stages of healing. It took forever to figure it out. Finally I went grain free and that is when I started healing really really fast. Just wanted you to know the early months are rough just like the other posters have said. But hang in there because it really is all worth it.

upwitht21 Rookie

Thanks for all the advice glad to know this normal lol sucks to have stomach problems now but hopefully it will get better. My 9 year seems totally fine with the change so thank goodness for that.

....Jess


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

It can take a while for your bodies' gut flora to get right after removing gluten. It can help to take pro-biotics and remove sugar and starches. Dairy is a fairly common problem as the tips of the villi make the lactase enzyme that breaks down the lactose sugar in cow dairy. So it can help to go off dairy for a few months and see if that improves things. The villi can heal/regrow though and then they can make the lactase enzyme again and the dairy may not bother you then.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,220
    • Most Online (within 30 mins)
      7,748

    kimchi1
    Newest Member
    kimchi1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.