Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Aches (Thighs And Calves)


birdie22

Recommended Posts

birdie22 Enthusiast

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I usually find that for me it's from a lack of potassium. If you are ok with orange juice, potatoes and bananas those should help. They always make my muscles feel better especially after being glutened.

saintmaybe Collaborator

Seeking advice on causes and remedies for aches in my legs. I've bee gluten-free for 3 mos. I'm not diagnosed celiac. I take 500 mg of magnesium with calcium and 1000mg D3 daily. I've always suffered from deep aches in my thighs that I used to be able to correlate to a time in my monthly cycle. Now it seems to happen several times a week. Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up. I don't drink enough fluids but that hasn't changed from before. I had basic electrolyte and metobolic panel done in oct and everything was in normal range.

Some ideas:

1. Very early rheumatoid arthritis.

2. A groin pull.

3. Trochanteric bursitis- bursitis of the hip.

4. Early osteoarthritis of the hip.

5. Very remote possibility of lyme.

A rheumy would be able to pin it down a little better. It depends on exactly where you feel the pain.

birdie22 Enthusiast

I do eat a lot of potatoes. At least once a week but not bananas. Could easily add those.

As for arthritis would I feel that other than in the joints? The ache is not at the joint specifically. Like when it aches in my calves.

Wanted to add that sometimes it is just one leg that aches (more often just the right). I never ache anywhere else.

AVR1962 Collaborator

If the muscle feels crapped add a potassium supplement, eating abanabs might not be enough. If the muscle feels hard kind of like you have been running, then try adding an Omega 3,6,9 supplement.

love2travel Mentor

I used to get leg cramps, mainly at night, and was told by my chronic pain doc to increase my magnesium to 900-1800 mg. He also recommended using magnesium glycinate as it is said a far higher percentage is absorbed than plain old magnesium. It took about a month at 900 mg before I felt a difference. But if you try this, be sure to increase magnesium gradually to avoid diarrhea.

zimmer Rookie

Sometimes it extends to my calves but more often just my thighs. It feels deep like what a growing pain would probably be like. It not a cramp or Charlie horse. It's not the muscles themselves because the ache doesn't change with movement (like a sore muscle from exercise would). It seems to stem from the top of the leg where it bends at the hip. Sometimes I can ignore it and sometimes I take Motrin because it nags at me. It's not painful but annoying. It almost always starts at night. Either at dinner time or before bed. I don't wake up with it and it never wakes me up.

I have similar pain that starts at the hip joint and runs down my leg. Achy. Sometimes tingling. Sometimes extending all the way to my toes. Acetaminophen / ibuprofen helps. It makes sleeping on my side difficult, and one side is worse than the other. It comes and goes, and has improved since going gluten-free. I find taking D3 has helped. Recently I added other vitamins/supplements - fish oil, cod liver oil, potassium, calcium, multivitamin. When I take all of those the pain goes away. Maybe like other posters said it's the potassium that helps? When I skip a day or two of taking the vits/supps then the pain creeps back in.

I'm thinking of seeing a rheumotologist (sp?) but am afraid of not finding one that is educated re celiac. I'm reluctant because I can help the symptoms and it doesn't really interfere with my life. It's mainly a nuisance and a frustration at this point, and I usually grin and bear it. I'm not sure what to do unless/until it gets worse.

I'm sorry you have this problem, but it's nice to know I'm not alone...! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smsm Contributor

I have a twin sister - both of us have suffered from back pain for years and just figured it was they way we were. She started getting the hip pain/thigh pain that you are describing and went to an arthritis specialist out of desperation about a year ago. He tested her for arthritis and came up neg. and he just started testing her for everything under the sun to figure out the source of her pain (no one had ever done anything but dismiss our pain before this). Sure enough, celiac was the answer - this is how we found out. After going gluten-free, the pain gradually has disappeared but when I do get glutened, now I also get the thigh pain (it is one of my first symptoms!). While it may be something else, I wanted you to know that thigh/leg/knee/back/neck/muscular pain is my glutened reaction and I have been for many other things. Ibprofen (I don't think I spelled that right) helps a little, but I just have to wait - sometimes up to 4 weeks - for the inflammation to subside.

birdie22 Enthusiast

Thank you all for your continued suggestions. It is helpful. It is so hard to describe the ache. It isn't a cramp or knot or tightness or burning or even pain. Just a dull, persistent ache deep in the thigh. If you asked me to, I couldn't even pinpoint for you exactly where it aches, just that it does, and that more often than not it seems to start at the crease where my leg meets my pelvis. It doesn't hurt up at the hip bone, nor the groin.

I've wondered about restless leg, though it doesn't wake me up at night or keep me from falling asleep.

I've upped my potassium intake this week and will consider if I need to add any other supplements to the mix.

Metoo Enthusiast

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

love2travel Mentor

Do you think it could be ITB band?

I have ITB band tightness, more so on my right side. If I were to describe the pain it would be a dull achiness that gets worse as the day goes on, or if I am walking or standing a lot all day, but not always. It can ache anywhere from the middle of my thigh, to dull achy knee pain. I have had it extend slightly down below my knee. I can't pin point the pain though, thats why I struggled for a year to figure out what it was until an expert runner suggested it.

If it is ITB if you do the foam roller stretch it will hurt intensly (you lie on your side, parrallel to the ground with the foam roller below your hip joint) while you are on the foam roller.

I have IT band syndrome as well and it causes all sorts of problems with my hips and legs regularly. OUCH!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,744
    • Most Online (within 30 mins)
      7,748

    jude T
    Newest Member
    jude T
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.