Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Things People Say To Celiacs

researchmomma

By researchmomma
in Coping with Celiac Disease

Recommended Posts

researchmomma Contributor
researchmomma
Posted

This is so funny. Go to Open Original Shared Link and scroll down to the video.

It is a quick watch and super funny.

I will add to the ridiculous questions and statements:

My mother said to me "well she can eat white bread cuz it has less gluten, right?".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Meggielynn13 Rookie
Meggielynn13
Posted

That's like my dad telling me I can eat crackers instead of bread. Since he's trying to eat less bread, he's been having low fat crackers or something. People just don't get it. Or they think you are just on a fad diet. I feel like only people that have Celiac get it.

IrishHeart Veteran
IrishHeart
Posted

Hilarious and yet, frustratingly annoying as well :lol:

Thanks for sharing, honey!

Yes, I have heard similar queries about bread, only it was "WHOLE WHEAT is wrong, but other bread is okay, right?"

another was:

someone, smiling at me, all excited, holding up an ice cream sandwich and asking:

"This is okay, right!? It's just ice cream!!"

:huh:

When I said (as a celiac), I can no longer can receive communion, I was asked in a hushed tone, "oh, is that because you were divorced?"

:lol:

Oh well, we were once dumba$ses about this gluten stuff, too.

researchmomma Contributor
researchmomma
Posted
  • Author

Hilarious and yet, frustratingly annoying as well :lol:

Thanks for sharing, honey!

Yes, I have heard similar queries about bread, only it was "WHOLE WHEAT is wrong, but other bread is okay, right?"

another was:

someone, smiling at me, all excited, holding up an ice cream sandwich and asking:

"This is okay, right!? It's just ice cream!!"

:huh:

When I said (as a celiac), I can no longer can receive communion, a real Mensa candidate I know said in a hushed tone, "oh, is that because you were divorced?"

:lol:

Oh well, we were once dumba$ses about this gluten stuff, too.

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

researchmomma Contributor
researchmomma
Posted
  • Author

That's like my dad telling me I can eat crackers instead of bread. Since he's trying to eat less bread, he's been having low fat crackers or something. People just don't get it. Or they think you are just on a fad diet. I feel like only people that have Celiac get it.

The fad diet thing kills me. I heard that today "oh you are doing that too?"

IrishHeart Veteran
IrishHeart
Posted

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

Well, he is unusually progressive thinking. For a while, they dragged their collective feet about that, saying the recipe --the amount of gluten in it--could not be tampered with for religious reasons. I read some nuns were busy working on a recipe with low levels of gluten. Maybe it has come to pass.

My first thought was "you darn well better think of something"! The largest celiac populations in European countries---are also predominantly Catholic.

IrishHeart Veteran
IrishHeart
Posted

The fad diet thing kills me. I heard that today "oh you are doing that too?"

Quick (sarcastic) reply is....."Hell yes, aren't YOU!!??" and then look at them with a tsk, tsk! and a :rolleyes: --- as if they are sooooo hopelessly "ten minutes ago" :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


researchmomma Contributor
researchmomma
Posted
  • Author

Quick (sarcastic) reply is....."Hell yes, aren't YOU!!??" and then look at them with a tsk, tsk! and a :rolleyes: --- as if they are sooooo hopelessly "ten minutes ago" :lol:

That is good!

Poppi Enthusiast
Poppi
Posted

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

IrishHeart Veteran
IrishHeart
Posted

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

oh Snap! :lol: Great comeback!

Not rude--perhaps a lesson in civility he sorely needed. Good for you!!

I know some people "feel sorry" for me and my gluten-free life--but the irony is--my doc says our diet is healthier than anyone else's.

I feel sorry for the ones who SHOULD be gluten-free but won't do it (like my family and some friends). Someday soon, I am going to feel better than I have in my life.

They will still feel like crap.

eatmeat4good Enthusiast
eatmeat4good
Posted

Just another story of Stupid Things People Say to Celiacs-

My co-worker who knows I have Celiac served up cake for me...I said, no thank you. She said you can have some...there is no wheat in it...just sugar,flour,eggs,cocoa and butter. I said there is flour in it...she says yeah, but there is no wheat. I said um...Flour is wheat...she says...Oh My God!!...that means you can't have bread or pancakes or cookies or cake like EVER????

:) Rrrrright I said with a smile. :ph34r::blink:

pixiestargirl Newbie
pixiestargirl
Posted

One of my favourites is a recurring thing at work.

*while eating chips*

"You can eat chips???"

*while eating popcorn*

"You can eat popcorn????"

*while eating gluten free muffins*

"Are those gluten free???"

...no, I've just decided I really felt like torturing myself :rolleyes:

kareng Grand Master
kareng
Posted

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow! I guess it would be a death sentence for you.... :huh:

come dance with me Enthusiast
come dance with me
Posted

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

Did you tell them you can?

We just made a cake, and will ice it soon. We also have bread rolls to bake.

I will be making pancakes this week for Shrove Tuesday.

We also have apple turnovers, donuts, waffles, crepes, all sorts of yummy treats! Not only gluten free but also vegan :D

Adalaide Mentor
Adalaide
Posted

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

For my religion, the sacrament is passed by Deacons. Our bishop assigned an entire section for celiacs because there are so many of us. The first Sunday back to church after my surgery I almost choked on the most awful cracker I've ever put in my mouth. I was like omg, I'm gonna burst into flames if I choke on this. :lol:

It's unbelievable how many people just say the dumbest things. I do try to be patient but I agree that the worst is the "I'd just kill myself." Thanks... you're a jerk.

lc1333 Apprentice
lc1333
Posted

me at taco bell: gimme just a sec, i'm trying to figure out what i can eat...

girl behind the counter: oh, no problem, take your time

my sister in law: she just found out she has celiac disease, so she can't eat wheat

girl: oh, well she can have a soft taco with a tortilla, they're made out of flour, not wheat :blink:

me: yeah, but the flour is made out of wheat

girl: oh, really? that's interesting

my sister and i just look at each other...

IrishHeart Veteran
IrishHeart
Posted

A member on here recounted a story of a co-worker who would taunt him by eating donuts, bagels, etc. in front of him and LAUGH and say

things like: "Too bad you can't have this. It's awesome. Too bad you have that celia-thing, huh? I feel sorry for you, man. wow, that sucks, dude"

And the poor guy was devastated. :(

I suggested the next time that jerkwad said something rude, he should smile and say:

"Hey, celiac is treatable. I'm going to get well. But I fear your ignorance is incurable. You'll always be an a$shat."

Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

someone once told me that he would cut himself if he had celiac ("no offence, but...")

then I told him that I used to cut myself all the time before diagnosis, but after diagnosis I never did.

seriously, my ribs are covered in scars, as well as my upper arms.

anyway, a really awkward silence followed. I hope he learned something.

melikamaui Explorer
melikamaui
Posted

My favorite is "I would DIE if I couldn't eat (insert gluten-filled food here) again!". Really??? You would literally die? Like kill yourself...because you couldn't eat your favorite food anymore? What a pathetic, sad life you must lead. Yeah it sucks sometimes, but I have so much more to live for!

Avalon451 Apprentice
Avalon451
Posted

That is funny Irish. Hey, our Priest made a point to get gluten-free host because so many of his parish are gluten free!

We're Lutheran (not so picky about what the host is made of) and I ordered some Ener-G gluten-free wafers to use; we arranged with our pastor to put them in a little dish next to where we walk up to the front for communion so me, DH and DD could grab one on our way. He's totally cool with it. Today was the first day we tried it. The host totally tastes like a potato chip or corn chip.

I was reading about the Catholic host controversy; what's with that anyway? The Bible doesn't say in the original Hebrew or Aramaic that the grain used in the unleavened bread was necessarily wheat. Such a fuss.

Lisa Mentor
Lisa
Posted

I was reading about the Catholic host controversy; what's with that anyway? The Bible doesn't say in the original Hebrew or Aramaic that the grain used in the unleavened bread was necessarily wheat. Such a fuss.

Yes, such a fuss.

psawyer Proficient
psawyer
Posted

The debate about the Eucharist is a topic in and of itself that has been discussed many times before. It is not relevant to the topic here. Google Eucharist or Communion in the search bar to find prior discussions about that.

WinterSong Community Regular
WinterSong
Posted

Or my personal favourite which I have heard from everyone from family members to grocery store cashiers..."Ugh, I would kill myself if I couldn't have pasta/bread/croissants/cake."

Wow. You just said my life is not worth living. Think about that for a second.

Last time I got that comment from a cashier I responded with, "Well, I would kill myself if I had to bag groceries all day." I know that was rude but I couldn't help myself.

Haha. My first trip to Trader Joe's being gluten free, I told the cashier as she was scanning my Udi's bread that it's so great that they carry gluten free options. She said "Well, you know it's just a fad diet. So many people are doing it these days. It's ridiculous. No one really needs to be gluten free."

I said something like, "Well actually I was just diagnosed with Celiac Disease. So if I eat gluten I'll probably start throwing up and could get cancer and die."

She shut up after that. :-P

But yes, I've also gotten the "Oh man, if I had to be gluten free I'd just DIE." Come on people. Sigh....

IrishHeart Veteran
IrishHeart
Posted

But yes, I've also gotten the "Oh man, if I had to be gluten free I'd just DIE." Come on people. Sigh....

I just say: "Well, I have Celiac Disease and when I was still eating gluten, I almost died." If they keep being snarky or say "that's not possible" or some other nonsense, then I show a pic of myself when I was chubby with lots of "oomph" to me. :lol: Then, I show them what I looked like when I hit bottom. I look like the walking dead. It's pretty bad. Someone told me I look like I have been in a prison camp. Major muscle and hair loss. Bones protruding. My eyes look vacant and hollow, just staring into space. I looked like I was 10 years older than I am.

Very effective for stopping that kind of talk. :lol:

IrishHeart Veteran
IrishHeart
Posted

I am thinking these stories are both funny AND sad and that unfortunately, there are still so many misconceptions about Celiac and gluten.

We need to do more educating! :)

It serves no purpose for us to just get angry.

Some people just do not know what celiac or gluten IS--because no one ever explained it to them. If they do know, and then make fun of you or treat your cruelly, that's different. No excuse.

I take every opportunity to educate. But not everyone wants to hear it. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.