Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi Symptoms & Behavior

Carpe227

By Carpe227
in Coping with Celiac Disease

Recommended Posts

Carpe227 Newbie
Carpe227
Posted

Hello! I'm brand new to the gluten free world and have been looking for answers. I went and got tested today (6 vials of blood!) from my family doctor and in a few weeks the results will come back, then the allergist, blah blah blah and etc. After reading a couple of posts, I'm glad I'm not alone with my weird mood swings and no longer feel like a hypochondriac! My roommate and friends believe that I am one since I have a headache every day and my stomach hurts after every meal. Nice support system eh? Haha.

So my symptoms, and I by no means have it as bad as some other people, but answers are comforting and help my confused mind.

When I eat a ton of bread I go through these very weird mood swings. I'll be best friends with everyone, feeling good etc, and then within a 5 minute turnaround, I turn into this straight up witch. This usually lasts for a couple of days (and it's mainly aimed at my roommate and the only adjective I can describe is loathing). Bloating happens in there and then the uncontrollable and never ceasing urge to pass wind. It's quite embarrassing. And then I go back to normal, until I have more gluten-rich meals. I'd say this happens at least once every two weeks.

Aside from that emotional rollercoaster, Sidenote, I literally went and got an epi pen when I found out that I'm HIGHLY allergic to peanuts. Like, go down the peanut aisle and my eyes start to water and my stomach starts to...burn? It feels like a feral cat was let loose and is scratching its way out...unsuccessfully. So recently, I've started to notice that I break out in hives and get the feral cat stomach after eating foods. Bananas, grape soda, gardetto's original mix, tortillas, mac and cheese, and more that I cannot think of at this moment. I love Buffalo Wild Wings and usually order the honey bbq crispy chicken wrap, and then suffer the acid reflux consequence a few hours later. Last week I took part in this and it triggered a migraine along with the FC stomach, hives, and a long night of being in serious discomfort.

Like I've mentioned, I am seen as a hypochondriac. It's extremely frustrating to have no one believe me, except for the quirky nurse today who finally found someone (moi) who has the same issues as herself.

Also, randomly, my left leg goes numb from time to time. I can be sitting cross legged, and only my left foot is numb - not my right. I don't have diabetes (was already tested) and just find it peculiar that this happens.

Sorry if this is a long post, like I've mentioned previously, just looking for answers/others who have similar symptoms.

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kamma Explorer
Kamma
Posted

Hi Carpe...

My symptoms are mostly neurological but I seen your post and wanted to bump it up. Perhaps others with more similar symptoms will see it and respond.

You must have felt great after talking to the nurse and getting validation for your symptoms. :)

Welcome to the forum.

UKGail Rookie
UKGail
Posted

Hi Carpe

I've only just seen your post. Your symptoms are fairly similar to mine. I wouldn't have said that major mood swings was my number one symptom, but it was definitely part of the mix. I rather find mood swings are worse now if I get glutened, rather than before I went gluten free. My major symptoms were migraine and chronic joint and muscle pain. Reflux, abdominal pain, gas and bloating were all there, and chronic, but never at the level where when I grumbled to a doctor, they always found some other cause (ovarian cysts, consitipation, appendicitis - the latter was a misdiagnosis, the others were problems secondary to gluten intolerance).

After suffering these chronic problems my whole adult life, things started to escalate about 3 years ago. The stomach issues got worse, the migraines got worse, and I suffered more frequent episodes of major migraine with vomiting and D, plus huge back and hip pain. Whilst I had always suffered from chronic fatigue, I managed it. This now got worse, and I started to feel really ill.

When it started to get worse, I had a frozen shoulder which took about a year of steriod injections, anti-inflammatories and physiotherapy to recover. Then after another year, the other shoulder went. This time it did not respond to treatment, and that led by a circuitous route to my "diagnosis" which is presumed rather than confirmed because I am sero-negative to the antibodies and my doc asked me to trial a gluten free diet rather than send me for biopsy....During this time I would wake up and my arms would be numb. My shoulders are now recovered, and the numbness did go too, but I am still a bit creaky and these problems do flare up again quickly if i get glutened.

A few months before I went gluten free I developed chronic sinus pain (after having had a drippy nose for a couple of years). Then I suddenly started getting a photosensitive rash, then a burning rash on my face, then hives. The hives continued for a little while after going gluten free, and I noticed a reaction to either tomatoes or, more likely, nuts. This reaction to these foods did not last, and I no longer get hives or photosensitive rashes. The burning face comes and goes, and seems to vary with trace gluten exposure. The sinus pain and drippy nose has lessened but is still there after 6 months gluten-free. I have found that anti-histamines help with this. It is possible, even common, for celiac to go hand in hand with allergies. Sometimes the allergies will settle down once your system calms down once it has been on the gluten free diet for a while. IrishHeart has posted elequently on this issue on a number of occasions.

Whilst I wouldn't wish celiac on anyone, I do hope that you find the triggers for your symptoms and can successfully eliminate them.

  • 4 months later...
LauraB0927 Apprentice
LauraB0927
Posted

I definitely had a lot of neurological symptoms before my diagnosis and they seemed to have gotten worse after going gluten free and accidentally being exposed. I had tingling in my hands and would get terrible cases of sciatica and would even faint - the doctors diagnosed me with syncope. All these random symptoms didnt make sense until I was diagnosed with Celiac. Now, when I get exposed to gluten, I become a raging b**** and my family just knows to clear out of the way. My fiance, bless his heart, has been very good about it and just understands that its going to happen - he runs, hides, and starts playing video games with his headset on.

No, you're not a hypochondriac and I think its pretty clear that you have issues with gluten which would definitely explain everything you're describing. Do your symptoms subside when you're not eating gluten? I think you have your answer right here! Welcome to the forum!!! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      7

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
    3. Wheatwacked
      - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...
    4. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    5. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Thanks to those who have replied. To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia. Generally feeling unwell. To Trents, We didn’t do any of the construction but did v...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,288
    • Most Online (within 30 mins)
      7,748
    Greg R.
    Newest Member
    Greg R.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.