Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Lecithin...?


Cujy

Recommended Posts

Cujy Apprentice

Can we have it?? What is it? We can't have soy right? Sorry for my ignorance but Im still trying to desperately learn! Just ate some MM's and I hope to God I didn't just gluten myself!!! :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alex11602 Collaborator

Soy lecithin is derived from soy which Celiacs can have from a gluten perspective. Of course you could be intolerant to soy, but as far as gluten goes it is not a concern.

sa1937 Community Regular

I don't avoid soy lecithin and as far as I know, I don't have any problem with it. While I am well aware that some people have serious problems with soy, I don't buy products based on soy like tofu or soy flour as I figure I just don't need them.

Skylark Collaborator

There are links to safe and unsafe ingredients at Open Original Shared Link Here is the safe list, and as you can see soy lecithin is on it. https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

This is the UNSAFE list so you know what to look out for. To be honest I find it easier to mostly avoid processed foods. Reading long ingredient labels is confusing and if you make a mistake you gluten yourself.

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

IrishHeart Veteran
:lol: I was just going to point her to those lists--but I see Skylark has already done it! ;) (great minds and all..... :lol: )
  • 7 months later...
PennyH Newbie

This was written in 2011 on the Livestrong website but raises concerns to me. Does anyone have any more info on this?

Soy, or soya, lecithin is a gluten-free food because it is not made from wheat, rye or barley. While soy lecithin by itself does not contain gluten, additives to lecithin may contain gluten. Consumers must do their own research into ingredients and gluten content, which can sometimes be confusing.

Read more: Open Original Shared Link

  • 9 months later...
Rchelpka Newbie

I'm  relatively newly diagnosed Celiac. My understanding of the whole Soy issue is that while Soy itself does not contain gluten, it is often suspect due to the high likelihood of cross contamination. This is due to the fact that most Soy growers also grow Wheat, Barley and Rye in rotation with their Soy crops. This means the soils are contaminated with the gluten containing grains and the equipment used to harvest and process the Soy is shared with the other gluten containing grains. So, the bottom line is, it's pretty much a crap shoot with Soy unless the product containing the Soy is specifically labeled gluten free. This would and should imply that the Soy used in the product is grown independently and isolated from other gluten containing grains.  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

no, dude, you are thinking of oats.  i have an independent soy sensitivity and if i have a reaction it lasts maybe 24 hrs.  i know it doesn't contain gluten because i would be knocked down for 2 weeks.  

Rchelpka Newbie

Thanks Arlene! However, a very short Google search using the string "Soy Wheat Rotation" yielded hundreds of articles about crop rotations including wheat, soy, corn and the list goes on. In fact, One short info article from Ohio State University Open Original Shared Link recommends planting wheat following soy. It would appear there is nothing truly safe as far as crops go as it seems to be a largely common practice to rotate wheat with just about any other crop. Guess we Celiacs should just stop eating period! :-) Does anyone else out there know if wheat crop rotation is really a concern for those suffering from Celiac disease?

notme Experienced

so, once every 3 years, wheat is planted.  i suppose, the weather and the rest of the year take care of any excess wheat - also whatever likes to eat wheat would take care of what is left - after all, that is what the point to crop rotation is anyway, right?  and corn and soybeans are self contained so the wheat (theoretically, if there even was any to begin with) would be washed off when the kernels or beans were washed.  

 

but, i am not a farmer.  i am a celiac who eats corn and soy and gets no gluten reaction from either :)  i got enough worries, i don't need to borrow any ;)

notme Experienced

oh, and ps - welcome to the forum - if you haven't already, here is a helpful thread to read:

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

lots of practical info to help you navigate - good luck!

  • 1 month later...
YouAreWhatYouFeat Newbie

Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. Also, soy is not as healthy as people had once thought. It increases the risk for breast cancer and is genetically modified...among many other reasons why we shouldn't eat it. I avoid it all together, but it is very hard because it is in ALOT of foods.

kareng Grand Master

Among many things, soy is a product that is not good for people avoiding gluten. the protein in soy is so similar to that of gluten that your body reacts the same way with it. .

This is not true. There is no scientific evidence of this. Soy does bother some people, Celiacs or not.

Celtic Queen Explorer

I believe it's not the crop rotation that is an issue with wheat/oats.  It's the fact that they are usually grown next to each other at the same time.  And they are often processed in the same facility.

 

I live in a state where large amounts of soybeans are grown.  Where I live, almost no wheat is grown.  Soy may be rotated with corn or cotton here.  Not sure if it's the same in other parts of the country.

luvrdeo Apprentice

soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

kareng Grand Master

soooo....is the gum I'm chewing - both kinds with soy lecithin on the label - gonna get me?  For whatever reason I decided to read what all was in my gum, looked up the soy l - and of course was brought back to my favorite celiac board :)

 

 

Maybe if you have a problem with soy.  Wouldn't be a gluten issue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,678
    • Most Online (within 30 mins)
      7,748

    Kristina S
    Newest Member
    Kristina S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.