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Worse Before It Gets Better?


JBird

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JBird Newbie

Hi :) I'm new to the forum. I was diagnosed in the fall last year, and have really been having a hard time. I'm not having a hard time making the diet change...I cook and am not picky about what I eat so switching to the gluten-free diet has been easy. Can't say it's been easy on my body as much as my taste buds though!

Since January I've been very strict about my diet. I have had maaaybe 5 meals with something gluten in it. Recently, I decided I needed to eat more vegetables and protiens, and cut my diary intake to 1/3 of what it was. I'm sensitive to lactose and have definitely noticed a difference in using lactaid milk, lactose free sour cream, and using lactaid tablets when eating cheese.

In the past month though I became constipated,(sorry gonna get kinda gross here) used Miralax a few times, and now it's soft but I'm still having a hard time just going at all or feeling like I've gotten it all out. Plus! I get enormously bloated and even have a hard time farting or it's like a stink-bomb when I do. And I'll stay that way for hoooours!

Like I said, this has been going on for a month and I don't know what to do! Is this a result of the veggie increase or just the time it takes for your body to become adjused to the gluten-free diet? I heard it can get worse before it gets better.

Thanks for reading!! So desparate for answers :(


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mamaw Community Regular

You are still new to the gluten-free diet.. It can take some up to a year or even longer to completely heal, some even in five years they have trouble...Research on this was done. Some see healing almost immediately. It is what your body chooses to do.

As for theBig C. Many of us suffer from that... Miralax is not habit forming like many other products so it is okay to use it when needed. dairy can also cause the Big C...

now for eating gluten foods maybe five times since Jan2012 ************ way toooo much. You should be eating zero gluten.....everyday ...there is a difference in not knowing a food contained gluten & knowing & still partaking of that food...I'm not sure which you fall under! But that alone could cause the Big C

Do some research to learn about hidden gluten so as to not make yourself ill.....

Drink plenty of water. The rule is take your body weight & divide in half ie: 100# equals 50 ounces in water each day. not all at once like five sips every half hour or so. until your body gets used to processing that much water. Most never consume enough pure water..

Glad your taste buds are enjoying the gluten-free foods..Great choices are available... .

blessings

mamaw

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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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