Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worse Before It Gets Better?


JBird

Recommended Posts

JBird Newbie

Hi :) I'm new to the forum. I was diagnosed in the fall last year, and have really been having a hard time. I'm not having a hard time making the diet change...I cook and am not picky about what I eat so switching to the gluten-free diet has been easy. Can't say it's been easy on my body as much as my taste buds though!

Since January I've been very strict about my diet. I have had maaaybe 5 meals with something gluten in it. Recently, I decided I needed to eat more vegetables and protiens, and cut my diary intake to 1/3 of what it was. I'm sensitive to lactose and have definitely noticed a difference in using lactaid milk, lactose free sour cream, and using lactaid tablets when eating cheese.

In the past month though I became constipated,(sorry gonna get kinda gross here) used Miralax a few times, and now it's soft but I'm still having a hard time just going at all or feeling like I've gotten it all out. Plus! I get enormously bloated and even have a hard time farting or it's like a stink-bomb when I do. And I'll stay that way for hoooours!

Like I said, this has been going on for a month and I don't know what to do! Is this a result of the veggie increase or just the time it takes for your body to become adjused to the gluten-free diet? I heard it can get worse before it gets better.

Thanks for reading!! So desparate for answers :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

You are still new to the gluten-free diet.. It can take some up to a year or even longer to completely heal, some even in five years they have trouble...Research on this was done. Some see healing almost immediately. It is what your body chooses to do.

As for theBig C. Many of us suffer from that... Miralax is not habit forming like many other products so it is okay to use it when needed. dairy can also cause the Big C...

now for eating gluten foods maybe five times since Jan2012 ************ way toooo much. You should be eating zero gluten.....everyday ...there is a difference in not knowing a food contained gluten & knowing & still partaking of that food...I'm not sure which you fall under! But that alone could cause the Big C

Do some research to learn about hidden gluten so as to not make yourself ill.....

Drink plenty of water. The rule is take your body weight & divide in half ie: 100# equals 50 ounces in water each day. not all at once like five sips every half hour or so. until your body gets used to processing that much water. Most never consume enough pure water..

Glad your taste buds are enjoying the gluten-free foods..Great choices are available... .

blessings

mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,809
    • Most Online (within 30 mins)
      7,748

    Ello
    Newest Member
    Ello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.