Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Means No Coffee?

moose07

By moose07
in Coping with Celiac Disease

Recommended Posts

moose07 Apprentice
moose07
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 79
  • Created
  • Last Reply
kareng Grand Master
kareng
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Monklady123 Collaborator
Monklady123
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

JustNana Apprentice
JustNana
Posted

Moose

Say what?

Monklady, I have written my will, gathered my kin and sharpened my hari-kari knife.

This will NOT stand.

Plus I ain't buyin' it. The whole gluten free community is so big now that we are a marketing force! (That's a good thing). If coffee had been discovered to be dangerous to celiacs it would make the 6:00 AND 11:00 news.

Let not your heart be troubled.

psawyer Proficient
psawyer
Posted

If coffee had gluten I would have been dead years ago. :ph34r:

Even if it isn't "gluten," I consume enough of it that if it was problematic, I would certainly know by now. Enjoy your coffee!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

I'm with you! I can live without bread..but they better not try to take my morning coffee away. :angry::ph34r:

JustNana Apprentice
JustNana
Posted

Hey Bubba's mom

How's it goin?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hey Bubba's mom

How's it goin?

Goin' good as long as they don't try prying my coffee cup out of my hand! LOL :D

JustNana Apprentice
JustNana
Posted

I read that goofy blog.

Sorry, but when they start saying they know what causes MS...blah blah blah - my BSometer sounds an alarm.

Are these sincere but gullible people or just trolls?

Ugh

OliviaB Newbie
OliviaB
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

pricklypear1971 Community Regular
pricklypear1971
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

I suggest not taking gluten-free advice from the general public (this board is not the general public).

My FIL thought I potatoes had gluten in them, and cookies didn't....and some people think all cheese has gluten in it...

So, my point is, get used to heart attacks. And get used to hearing some incredibly stupid, uninformed stuff.

And get used to laughing at people who "would die if they couldn't eat bread". I mean seriously, it's funny. I tried the polite smile a few times, but now I just give in and laugh. Obviously, they don't get it. But you will, soon. And if you don't, yet, deliver a nice frozen loaf of gluten-free bread to one of those idiots and watch their face. And then ask them if they could give it up or die.

But I digress...

larry mac Enthusiast
larry mac
Posted

The first thing I do in a case like this (outlandish claim) is see what they're selling. It doesn't take long. Sarah the healthy home economist is selling product links and advertising.

"Please contact Sarah at thehealthyhomeeconomist.com for a Media Kit.

Please Note: The Healthy Home Economist is part of the Real Food Media online magazine. We have paid sponsors. Unfortunately, this precludes us from doing unpaid promotions or reviews for free product."

Ie, she doesn't talk about anything she's not getting paid for.

The exciting and important news about a so-called coffee/gluten connection was revealed to her at a paleofx12 conference ( an alternative health and nutrition "disipline" based on evolutionary study (or somesuch) where she saw dr. david clark speak. He's not really a doctor, he's a chiropractor. Thus the titles of functional this and functional that in his bio. He's also selling stuff. Books and whatnot.

There's always people out there trying to make a living duping the gullible.

Try not to be the gullible!

best regards, lm

.

JustNana Apprentice
JustNana
Posted

Olivia,

I swear the people on this site have heard and seen it all...ignorant public, thoughtless friends and family, even dumbazz doctors. They are skeptical but open minded. You are Sooooo lucky you found this forum. It is THE best forum I have ever read, bar none.

dani nero Community Regular
dani nero
Posted

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

lynnelise Apprentice
lynnelise
Posted

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!

JustNana Apprentice
JustNana
Posted

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

moose07 Apprentice
moose07
Posted
  • Author

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Sorry that I don't spend my entire life on this board. Did you actually read what I wrote? I was asking if anyone else had heard of this notion. I never said I believed it.

JustNana Apprentice
JustNana
Posted

No need to apologize.

:-)

ravenwoodglass Mentor
ravenwoodglass
Posted

No need to apologize.

:-)

At least not on the OP's end.

IrishHeart Veteran
IrishHeart
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Hi Moose,

Please re-read the other thread and see what we all think of this "theory". :rolleyes:

Honestly, none of us see any reason why you should worry about coffee. Okee dokee?!

Best wishes,

IH

JustNana Apprentice
JustNana
Posted

Moose

I have sent you a private message, but want to publically apologize to you for my rude behavior. I completely misread the intent behind your thread. I was disrespectful and totally out of line. I have fought a tendency to be mouthy and judgmental for years and as you see I am not always successful.

This was the worst place to exhibit that ugly trait and I am truly sorry.

moose07 Apprentice
moose07
Posted
  • Author

JustNana,

Thanks for the apology.

Everyone else, thanks for the adivce. I'm glad other people on here are good at researching all this stuff.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Monklady123 Collaborator
Monklady123
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Well, I'm not a doctor, but I would say that probably you're getting the pains from the coffee itself -- i.e., the caffeine, or the acid, or whatever else is in coffee. Not from gluten, which is not in coffee. Lots of people who have "stomach trouble" (as the doctors like to call any number of things) cannot drink coffee.

My entirely unmedical opinion is that all sorts of things bother us while we're healing, and that it can take a long time. I was doing okay with milk, then got glutened (through my own stupidity), and then couldn't have cereal with milk for the next week or so.

Anyway, just my thoughts. :)

cougie23 Explorer
cougie23
Posted

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together! Hell even shampoo isn't safe...I tryied NEXUS and had a HORRIBLE reaction...my son looked at the lable, and said...you know mom...this has wheat in it! GASP! :ph34r:

Just goes to show...READ THOSE LABLES!

( and contrary to befief...you don't HAVE to ingest the shampoo to react to it...I'm living proof!I got sick to my stomache,naushous,dizzy and my hair went limp and oily...not to mention my whole body was ITCHY!!!)But thats another thread! :ph34r::D

They BETTER NOT MESS WITH MY COFFEE!!! :DB)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Doctors
      9

      Second chance

      @Jmartes71, Have you tried a naturopathic or holistic doctor? Some posters in the past have commented theirs were more helpful than mainstream doctors.
    2. knitty kitty
      - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      @HectorConvector, Have you tried taking 500 mg of the Thiamine Mononitrate that you have left? Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand. Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency. No harm in trying it. Neuroplastic...
    3. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I...
    4. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      330

      Terrible Neurological Symptoms

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Doctors
      9

      Second chance

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,673
    • Most Online (within 30 mins)
      7,748
    Troy Howald
    Newest Member
    Troy Howald
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Second chance

      By knitty kitty · Posted

      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      @HectorConvector,  Have you tried taking 500 mg of the Thiamine Mononitrate that you have left?   Thiamine Mononitrate may not be as helpful as other forms of thiamine, but since that's what you have on hand.    Thiamine is safe and nontoxic even at high doses needed to correct thiamine deficiency.   No harm in trying it. Neuroplastic changes in the brain may be caused by thiamine deficiency.   These changes can be seen in Wernicke's encephalopathy and Korsakoff's syndrome, Alzheimer's and Parkinson's. I googled "Neuroplastic Sensitization syndrome and thiamine pubmed" and see for yourself what it says.   Try taking 500 mg Thiamine Mononitrate and look for health changes.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      This may seem non-relevant but I thought I'd add it here anyway to see what anyone thinks. Many might dismiss it but that's OK. I went through the entire history of this condition from its onset in 2010 or so, including the things that flare it up, and the timeline of what made it worse, the medications that worked and didn't, in ChatGPT (rolleyes I know lol)  and supplied it with all the clinical evidence I've had from tests etc.... After hours of "discussing" with it and finding research it "concluded" it's a chronic neuroplastic sensitization syndrome but of course said I should only get a proper diagnosis from a  doctor. When I saw the doctor on 9th February because this got worse he looked through all my medical history and the course of the "condition". I didn't tell him I'd used ChatGPT or mention what I thought it is because I still don't really know until I have a formal diagnosis. He came with the same conclusion as ChatGPT. Just thought it was an interesting co-incidence perhaps. As for myself, I'm not forming any conclusions til I can really know exactly what's happening and why and what stops it. Only then can I truly know.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      So I've been eatin no carbs in the evening and only a bit for my lunch so a big reduction. Well, made no difference, in fact it's actually got even worse. So everything I do makes it get worse. I said this to the doctor. He said he definitely thinks it's a neuroplastic pain condition where I've sensitized my nerves to max volume and now the pain has outgrown the medication max dose even though there is nothing physically wrong with my body. A bit earlier I had violent shocking evil burning nerve pain that made me nearly pass out and want to die again, also noticed this seems to be associated with sudden water retention. I've made hardly any pee in nearly 12 hours and despite drinking loads. Mouth is super dry. I am getting the "correct" sort of this when I've finished the current ones, so not long now. Can only get it on the internet here. Then I can say how it might change anything.
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Im not a doctor and my term isnt right.All I know is I had what ever lovely procedure I know I had it in down the throat and the bottom biopsy. Im tired of and not feeling well and my blood looks fabulous though STULL HLA-DQ2 Positive and past biopsy Positive. Dealing with this is literally insane im begging for help.im at the point where just what ever 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.