Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Means No Coffee?

moose07

By moose07
in Coping with Celiac Disease

Recommended Posts

moose07 Apprentice
moose07
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 79
  • Created
  • Last Reply
kareng Grand Master
kareng
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Monklady123 Collaborator
Monklady123
Posted

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

JustNana Apprentice
JustNana
Posted

Moose

Say what?

Monklady, I have written my will, gathered my kin and sharpened my hari-kari knife.

This will NOT stand.

Plus I ain't buyin' it. The whole gluten free community is so big now that we are a marketing force! (That's a good thing). If coffee had been discovered to be dangerous to celiacs it would make the 6:00 AND 11:00 news.

Let not your heart be troubled.

psawyer Proficient
psawyer
Posted

If coffee had gluten I would have been dead years ago. :ph34r:

Even if it isn't "gluten," I consume enough of it that if it was problematic, I would certainly know by now. Enjoy your coffee!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

I'm with you! I can live without bread..but they better not try to take my morning coffee away. :angry::ph34r:

JustNana Apprentice
JustNana
Posted

Hey Bubba's mom

How's it goin?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hey Bubba's mom

How's it goin?

Goin' good as long as they don't try prying my coffee cup out of my hand! LOL :D

JustNana Apprentice
JustNana
Posted

I read that goofy blog.

Sorry, but when they start saying they know what causes MS...blah blah blah - my BSometer sounds an alarm.

Are these sincere but gullible people or just trolls?

Ugh

OliviaB Newbie
OliviaB
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

pricklypear1971 Community Regular
pricklypear1971
Posted

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

I suggest not taking gluten-free advice from the general public (this board is not the general public).

My FIL thought I potatoes had gluten in them, and cookies didn't....and some people think all cheese has gluten in it...

So, my point is, get used to heart attacks. And get used to hearing some incredibly stupid, uninformed stuff.

And get used to laughing at people who "would die if they couldn't eat bread". I mean seriously, it's funny. I tried the polite smile a few times, but now I just give in and laugh. Obviously, they don't get it. But you will, soon. And if you don't, yet, deliver a nice frozen loaf of gluten-free bread to one of those idiots and watch their face. And then ask them if they could give it up or die.

But I digress...

larry mac Enthusiast
larry mac
Posted

The first thing I do in a case like this (outlandish claim) is see what they're selling. It doesn't take long. Sarah the healthy home economist is selling product links and advertising.

"Please contact Sarah at thehealthyhomeeconomist.com for a Media Kit.

Please Note: The Healthy Home Economist is part of the Real Food Media online magazine. We have paid sponsors. Unfortunately, this precludes us from doing unpaid promotions or reviews for free product."

Ie, she doesn't talk about anything she's not getting paid for.

The exciting and important news about a so-called coffee/gluten connection was revealed to her at a paleofx12 conference ( an alternative health and nutrition "disipline" based on evolutionary study (or somesuch) where she saw dr. david clark speak. He's not really a doctor, he's a chiropractor. Thus the titles of functional this and functional that in his bio. He's also selling stuff. Books and whatnot.

There's always people out there trying to make a living duping the gullible.

Try not to be the gullible!

best regards, lm

.

JustNana Apprentice
JustNana
Posted

Olivia,

I swear the people on this site have heard and seen it all...ignorant public, thoughtless friends and family, even dumbazz doctors. They are skeptical but open minded. You are Sooooo lucky you found this forum. It is THE best forum I have ever read, bar none.

dani nero Community Regular
dani nero
Posted

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

lynnelise Apprentice
lynnelise
Posted

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!

JustNana Apprentice
JustNana
Posted

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

moose07 Apprentice
moose07
Posted
  • Author

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Sorry that I don't spend my entire life on this board. Did you actually read what I wrote? I was asking if anyone else had heard of this notion. I never said I believed it.

JustNana Apprentice
JustNana
Posted

No need to apologize.

:-)

ravenwoodglass Mentor
ravenwoodglass
Posted

No need to apologize.

:-)

At least not on the OP's end.

IrishHeart Veteran
IrishHeart
Posted

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Hi Moose,

Please re-read the other thread and see what we all think of this "theory". :rolleyes:

Honestly, none of us see any reason why you should worry about coffee. Okee dokee?!

Best wishes,

IH

JustNana Apprentice
JustNana
Posted

Moose

I have sent you a private message, but want to publically apologize to you for my rude behavior. I completely misread the intent behind your thread. I was disrespectful and totally out of line. I have fought a tendency to be mouthy and judgmental for years and as you see I am not always successful.

This was the worst place to exhibit that ugly trait and I am truly sorry.

moose07 Apprentice
moose07
Posted
  • Author

JustNana,

Thanks for the apology.

Everyone else, thanks for the adivce. I'm glad other people on here are good at researching all this stuff.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Monklady123 Collaborator
Monklady123
Posted

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Well, I'm not a doctor, but I would say that probably you're getting the pains from the coffee itself -- i.e., the caffeine, or the acid, or whatever else is in coffee. Not from gluten, which is not in coffee. Lots of people who have "stomach trouble" (as the doctors like to call any number of things) cannot drink coffee.

My entirely unmedical opinion is that all sorts of things bother us while we're healing, and that it can take a long time. I was doing okay with milk, then got glutened (through my own stupidity), and then couldn't have cereal with milk for the next week or so.

Anyway, just my thoughts. :)

cougie23 Explorer
cougie23
Posted

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together! Hell even shampoo isn't safe...I tryied NEXUS and had a HORRIBLE reaction...my son looked at the lable, and said...you know mom...this has wheat in it! GASP! :ph34r:

Just goes to show...READ THOSE LABLES!

( and contrary to befief...you don't HAVE to ingest the shampoo to react to it...I'm living proof!I got sick to my stomache,naushous,dizzy and my hair went limp and oily...not to mention my whole body was ITCHY!!!)But thats another thread! :ph34r::D

They BETTER NOT MESS WITH MY COFFEE!!! :DB)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.