Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Means No Coffee?


moose07

Recommended Posts

moose07 Apprentice

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 79
  • Created
  • Last Reply
kareng Grand Master

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Monklady123 Collaborator

Hey Everyone,

So I read this blog today that basically says a protien in coffee can cause the same harmful effects as gluten can. I'm just wondering if anyone else has heard this or knows anymore. I'm a little upset about it. :/

Here is the blog Open Original Shared Link

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

JustNana Apprentice

Moose

Say what?

Monklady, I have written my will, gathered my kin and sharpened my hari-kari knife.

This will NOT stand.

Plus I ain't buyin' it. The whole gluten free community is so big now that we are a marketing force! (That's a good thing). If coffee had been discovered to be dangerous to celiacs it would make the 6:00 AND 11:00 news.

Let not your heart be troubled.

psawyer Proficient

If coffee had gluten I would have been dead years ago. :ph34r:

Even if it isn't "gluten," I consume enough of it that if it was problematic, I would certainly know by now. Enjoy your coffee!

Bubba's Mom Enthusiast

I wouldn't stop that morning cup of coffee just yet. :)

And you know how people say to us "I would DIE if I couldn't eat bread!" and we reply (to ourselves) "no you wouldn't." Well... seriously...I would DIE without my morning coffee. :P

(Go ahead, think to yourself "no you wouldn't." But I'm telling you that yes I would!) :lol:

I'm with you! I can live without bread..but they better not try to take my morning coffee away. :angry::ph34r:

JustNana Apprentice

Hey Bubba's mom

How's it goin?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hey Bubba's mom

How's it goin?

Goin' good as long as they don't try prying my coffee cup out of my hand! LOL :D

JustNana Apprentice

I read that goofy blog.

Sorry, but when they start saying they know what causes MS...blah blah blah - my BSometer sounds an alarm.

Are these sincere but gullible people or just trolls?

Ugh

OliviaB Newbie

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

pricklypear1971 Community Regular

I just found out I had Celiac Disease yesterday and can't have gluten. Then today I see the headline Celiacs Means No Coffee? Can you say heart attack?! Don't scare a newbie like that :P! I am so glad most disagree with that blog or I would be having a major melt-down right now!

I suggest not taking gluten-free advice from the general public (this board is not the general public).

My FIL thought I potatoes had gluten in them, and cookies didn't....and some people think all cheese has gluten in it...

So, my point is, get used to heart attacks. And get used to hearing some incredibly stupid, uninformed stuff.

And get used to laughing at people who "would die if they couldn't eat bread". I mean seriously, it's funny. I tried the polite smile a few times, but now I just give in and laugh. Obviously, they don't get it. But you will, soon. And if you don't, yet, deliver a nice frozen loaf of gluten-free bread to one of those idiots and watch their face. And then ask them if they could give it up or die.

But I digress...

larry mac Enthusiast

The first thing I do in a case like this (outlandish claim) is see what they're selling. It doesn't take long. Sarah the healthy home economist is selling product links and advertising.

"Please contact Sarah at thehealthyhomeeconomist.com for a Media Kit.

Please Note: The Healthy Home Economist is part of the Real Food Media online magazine. We have paid sponsors. Unfortunately, this precludes us from doing unpaid promotions or reviews for free product."

Ie, she doesn't talk about anything she's not getting paid for.

The exciting and important news about a so-called coffee/gluten connection was revealed to her at a paleofx12 conference ( an alternative health and nutrition "disipline" based on evolutionary study (or somesuch) where she saw dr. david clark speak. He's not really a doctor, he's a chiropractor. Thus the titles of functional this and functional that in his bio. He's also selling stuff. Books and whatnot.

There's always people out there trying to make a living duping the gullible.

Try not to be the gullible!

best regards, lm

.

JustNana Apprentice

Olivia,

I swear the people on this site have heard and seen it all...ignorant public, thoughtless friends and family, even dumbazz doctors. They are skeptical but open minded. You are Sooooo lucky you found this forum. It is THE best forum I have ever read, bar none.

dani nero Community Regular

I'm gonna give the previous posts some serious reinforcements. I've never gotten any information off this forum that was harmful. Without the experience of the people here I would have still been lost and itching my skin into oblivion.

lynnelise Apprentice

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!

JustNana Apprentice

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

moose07 Apprentice

Hey Moose! YooooHooooo....

Where IS that oh so concerned poster? Drop in. Write a goofy inflammatory post. Run.

Harumph!

dani nero

I have DH too. I've already seen some improvement. I would love to hear your story. Maybe over a nice gluten-free snack and a BIG CUP of COFFEE. :-)

Sorry that I don't spend my entire life on this board. Did you actually read what I wrote? I was asking if anyone else had heard of this notion. I never said I believed it.

JustNana Apprentice

No need to apologize.

:-)

ravenwoodglass Mentor

No need to apologize.

:-)

At least not on the OP's end.

IrishHeart Veteran

We just had this discussion yesterday. It's rediculous. A brewed beverage has no or barely any protein, first. This is just some Internet doctors theory.

Hi Moose,

Please re-read the other thread and see what we all think of this "theory". :rolleyes:

Honestly, none of us see any reason why you should worry about coffee. Okee dokee?!

Best wishes,

IH

JustNana Apprentice

Moose

I have sent you a private message, but want to publically apologize to you for my rude behavior. I completely misread the intent behind your thread. I was disrespectful and totally out of line. I have fought a tendency to be mouthy and judgmental for years and as you see I am not always successful.

This was the worst place to exhibit that ugly trait and I am truly sorry.

moose07 Apprentice

JustNana,

Thanks for the apology.

Everyone else, thanks for the adivce. I'm glad other people on here are good at researching all this stuff.

stef-the-kicking-cuty Enthusiast

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Monklady123 Collaborator

Remember my post about new celiac pain a couple of days ago, even though I'm entirely glutenfree? With me it IS the coffee. I can not have coffee or I'm getting my old celiac pains.

Well, I'm not a doctor, but I would say that probably you're getting the pains from the coffee itself -- i.e., the caffeine, or the acid, or whatever else is in coffee. Not from gluten, which is not in coffee. Lots of people who have "stomach trouble" (as the doctors like to call any number of things) cannot drink coffee.

My entirely unmedical opinion is that all sorts of things bother us while we're healing, and that it can take a long time. I was doing okay with milk, then got glutened (through my own stupidity), and then couldn't have cereal with milk for the next week or so.

Anyway, just my thoughts. :)

cougie23 Explorer

Hook me up with an IV...LOL! :lol:

But seriously...The fact that my INSTANT NESCAFE FOLGERS CHOICE felt it nessasery to put gluten free on the lable for my INSTANT coffee, made me wonder if maybe OTHER instant coffees might have glutten as a binder/emulfifier to hold those lovely little crystals together! Hell even shampoo isn't safe...I tryied NEXUS and had a HORRIBLE reaction...my son looked at the lable, and said...you know mom...this has wheat in it! GASP! :ph34r:

Just goes to show...READ THOSE LABLES!

( and contrary to befief...you don't HAVE to ingest the shampoo to react to it...I'm living proof!I got sick to my stomache,naushous,dizzy and my hair went limp and oily...not to mention my whole body was ITCHY!!!)But thats another thread! :ph34r::D

They BETTER NOT MESS WITH MY COFFEE!!! :DB)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Scott Adams's article in Origins of Celiac Disease
      8

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    2. - knitty kitty replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

    4. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    5. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,445
    • Most Online (within 30 mins)
      7,748

    JamesM
    Newest Member
    JamesM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
    • Yaya
      Scott.  Thank you for your reply. I'm still having symptoms, but significantly better.  I will go back to batch cooking and freezing vegetables.  I have had success with Pict Sweet frozen, single item (not mixed) vegetables.  My Kroger carries very little Pict Sweet variety. Regards, Yaya
    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.