Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed, Constant Tingling Pain In Left Hand...? Allergies?

Annie73

Recommended Posts

Annie73 Newbie
Annie73
Posted

Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Hi Annie. I am new here but I have a few thoughts for you. First, congrats on being gluten free. As you have probably read, there are many afflictions that can be attributed to celiac. However, there are also many that are not. Sometimes I think to many people think all their issues will resolve by going gluten free. I believe this is a misconception because of research finding links (in some people) to other medical conditions. I'm not saying this isn't the case only stating that celiac is not a catch all. If it were me, I would get a referral to a neurologist who can have very simple tests ordered that can identify and nerve damage or a neurological issues. See where that takes you. We should always question medical issues we have and do our best to resolve them. Resting on our laurels helps nothing. I sincerely hope you figure out what's going on. Be Well.

ravenwoodglass Mentor
ravenwoodglass
Posted

You have only recently been diagnosed and it does take some time to heal. The low B12 is likely the cause of the tingling in your hands but since it has gotten worse after the shot call your doctor about it and see what they say. Personally I would give yourself time to heal before seeing a neuro. If the issues don't resolve in a few weeks then do explore other possibilities.

Is your home gluten free? If not be sure you have gotten a new toaster for just the gluten free members of the family. You would also need a new strainer and things like condiments, nut butters etc need to replaced for just the gluten free eaters. You also cannot bake or cook with flour for others safely. IF others eat bread or cakes it is best to have them come into the house premade.

It is also a good idea to drop dairy products until you are feeling better. I hope things get better soon and do check out the Celiac 101 thread in the Coping section and the home page info on safe and unsafe products. If you have any questions don't hesitiate to ask.

frieze Community Regular
frieze
Posted

the worsening tingles may be healing. Make sure you have enough potassium in your diet.

Annie73 Newbie
Annie73
Posted
  • Author

Thanks so much for taking the time to reply, everyone! I really hope it's just part of the healing process, it's so annoying and painful at times. I will look at getting some potassium also.

What happens if you accidentally eat a food that you are allergic to? Do you have symptoms of glutening...?

Thanks again!

  • 5 months later...
shay3624 Newbie
shay3624
Posted

Hello everyone!

Well this is my very first post here, and I am glad to have found this site! A little background on me. I have a six year old son who has Type 1 diabetes and through routine bloodwork for that, was found to also have celiac. He has no symptoms of celiac, but the biopsy confirmed the sky-high blood test numbers. About 5 years ago I suspected that I may have celiac and had my blood tested and it was negative. I continued to have all kinds of symptoms. I ignored it and moved on assuming that it couldn't be celiac. So after my son's biopsy 2 weeks ago, I asked them to retest my blood. This time if was very positive and also they found that I am very deficient in B-12. I went back to the doctor for a shot of B-12. They told me to pick up a vitamin B supplement and I have been taking a B-12 that melts under your tongue.

Now to my question (s)! :). Although I have dealt with mild tingling in my fingers for the last several years, it has suddenly got much worse. Since right after the B-12 shot (in my left arm) my left hand has been killing me. All day and night there is tingling and an icy cold/burning pain. It even radiates up past my wrist. Could this be a reaction to the injection? Will it go away? Is there anything I can take to help with the discomfort? And also, should I go back to see my family doctor about this and if so, what can they do? Is there another doctor or specialist I should see?

Another thing I am hoping you can help me with, is how do food allergies come into play with celiac. Along with the blood test for celiac, they also tested for food allergies and it was noted I am allergic to pork..? I have been eating it my whole life, I never knew. Although since my sons blood test about 8 weeks ago we have been eating gluten-free, I still keep having bad days of diarrhea, cramping, headaches, and complete exhaustion. I realized I have been putting bacon bits on my baked potatoes and wondered if that could be the culprit? Sorry if that's a dumb question, I just can't figure out why I still feel like I'm being glutened when Im so careful.

Thank you so much for reading through all of this and any advice you can give!! :)

Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

shadowicewolf Proficient
shadowicewolf
Posted

I have a tomato allergy and red food coloring does not like me. Things seem to "pop" up once a major culprit is removed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Hi, did you ever get a diagnoses for this pain? Coincidentally, I also recv. a B-12 shot recently and I am experiencing the SAME almost exact symptoms. I too assumed it was from a sensitivity even though ive felt it before..just not in such as way. Its way more painful now. It seems to get worse with my wheat intake. Is it possible that BOTH the B-12 shot combined with the wheat creates some sort of extra toxic mix? I love the energy the shots give me but this hand. arm leg stuff...its not too great! What do you think since you have probably been back to the doc. since your last post?

Have you been tested for celiac? If not make sure you stay on gluten until that is done and do get tested ASAP. Celiac can cause nerve issues beyond the ones caused by B12 deficiency.

  • 2 weeks later...
1desperateladysaved Proficient
1desperateladysaved
Posted

How I think that allergies can be created by Celiac. I think that the small intestine gets damaged. Perhaps it even gets deteriated enough so that food stuffs leak out. The body discovers these particles and attacks them as foreign. They do not belong there. The body is designed to make antibodies which attack these particles anywhere in the body. . Then when you take in food with the same particles the body will attack.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.