Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Glutened...


Mateto

Recommended Posts

Mateto Enthusiast

So yesterday, someone told me I was: senile, full of shi*, foolish, acting childish, and that it was "all in my head"...when I requested my hamburger be barbequed on tin-foil so to avoid the CC from the sauce. I've done it before, and it worked wonderfully. This person told me "the sauce is burnt off when you cook it anyhow!"...and I tried to explain to him the concept of cross-contamination, but he's too damn stubborn to even listen. He won't let me get a word in, so I can't say anything to him though believe me-I've tried.

Anyhow, said person did it after because I said to "said person" that I won't eat it otherwise, and there was company around. Said peron had already cause enough upset, and other people tried to explain to him why I wanted to do "such a thing".

"Said person" disregarded me afterwards, and somehow ended up getting gluten on my food --whatever it was, I don't know. Now I'm suffering the consequences.

My question, after this, is: what do you find works best for you recovering from a fresh glutening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

It makes me so sad and so mad when I hear stories like this on the board. Why would somebody treat a celiac like this? I'll never understand it.

L Glutamine powder helps some. Drink lots of water. Eat simply and clean. And wait it out. Feel better soon!

IrishHeart Veteran

Lots of water, double up on probiotics for a week and rest.

Sorry you got "hit". :(

Even sorrier you had to deal with a dipstick who does not take you

seriously.

(hug)

Mateto Enthusiast

Thank you, both of you! I ask so many questions, but I always get the answers I need. I'm feeling better now, but will keep drinking lots of water and stuff. What about epsom salt? I read that epsom salt helps the gluten be removed from your body, or is that just foolishness? :P

IrishHeart Veteran

Well, sweetie, just do not eat it. :P

But if you want to soak in an epsom salt bath, go for it.

It helps to relax muscles. That's it.

Try to relax. A "glutening" sucks (in plain English :rolleyes: ) but it passes, literally and figuratively.

You're going to be okay!

  • 2 weeks later...
Marie1976 Enthusiast

I have tried the l glutamine powder too it seems to help. Also, resting. Ginger pills. And/or Immodium. Sorry people are such jerks. :(

Bobbie Jo Rookie

I always give my kids tylenol when we get glutenated. It seems to help, along with lots of water.

I've read 1% of people will get our diet, and we are to worship the ground they walk on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria6102 Contributor

I always give my kids tylenol when we get glutenated. It seems to help, along with lots of water.

I've read 1% of people will get our diet, and we are to worship the ground they walk on.

"glutenated"

LOVE that! Lol that's one I haven't heard before!:D

dani nero Community Regular

There's a word for "said person": butt-****

Sorry for the vulgarity, but "said person" really is :-(

Mateto Enthusiast

Well, sweetie, just do not eat it. :P

But if you want to soak in an epsom salt bath, go for it.

It helps to relax muscles. That's it.

Try to relax. A "glutening" sucks (in plain English :rolleyes: ) but it passes, literally and figuratively.

You're going to be okay!

I used to think epsom salts were a posh fancy baking ingredient, and I often wondered why they were in the personal care section of shops.

Above poster, you're spot-on.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.