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14 And Gluten Free... Making Others Listen

rml97

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rml97 Rookie
rml97
Posted

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psawyer Proficient
psawyer
Posted

I also use purell all the time (probably more than anyone is supposed to, but I don't like taking chances).

Just so you know, Purell has no effect on gluten. It is a disinfectant. To remove gluten, you need soap and water and scrubbing.

rml97 Rookie
rml97
Posted
  • Author

Thank you so much for this information! I alway use soap and water before I eat and purell only to make sure Im still clean.....I guess I was just wasting a lot of time and purell on that....

rml97 Rookie
rml97
Posted
  • Author

Do you know if wipes, like Wet Ones, would be a better option if I can't get to a sink?

tom Contributor
tom
Posted

Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

rml97 Rookie
rml97
Posted
  • Author

Hi rml,

I read your orig july5 post above which is now erased? I thought it was a good description of your situation, and well-written.

I know the "can't be too careful" mindset, and that there's plenty of times i'd go 'overboard' by someone else's definition, but THEY don't know what it's like, do they?

I say be as careful or overly careful as makes you comfortable, despite whatever else goes on in the house. As time goes by you might re-evaluate boundaries but family members that aren't affected (perhaps a "yet" belongs here) shouldn't be making the gluten-free rules for you. (Now I'm not certain how well I remember your post)

Everyone on the forum is rooting for you & will offer tips as much as possible.

Now, regarding the wipes if no sink around - I don't know. Would that be for if you for sure touched some bread, or more like "better safe than sorry"?

Im not sure what happened to my original post.... I asked about the wipes and then it was gone with just "......"

Anyway, I really appreciate what you said about being too careful. I often don't listen to others and just do what makes me feel comfortable even if I know that I sometimes go too far. I dont like taking chance and even if others think my precautions are crazy I try not to listen and do them anyway. My parents are starting to think that Im being obsessive over how causious I am, thats why I had mentioned being unsure of my careful ways...

As for the wipes it would be for "better safe than sorry" perposes....I dont touch gluten at all (and in the rare occassion that I do, I scrub up to my elbows atleast 3 times with a lot of soap and water)

Thanks! :)

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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